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Suffering in Silence: Hernia Mesh Patient Bruce Rosenberg

Bruce Rosenberg and '64 LeMans convertible

Bruce Rosenberg and ’64 LeMans convertible

MND, Jan. 6, 2014 ~ Transvaginal mesh has been used in women to shore up pelvic organs since the late 1990s but long before that, the same polypropylene mesh was used in the treatment of hernias.

In fact, it was thought that pelvic organ prolapse (POP) where the bladder, vagina, uterus or colon fall through the vaginal opening due to gravity and weak tissues, was a form of a hernia, so the transition was an easy one.  Unfortunately for many recipients of mesh, the response has been less than optimal as had the reaction and response to the foreign object in the body.

Bruce Rosenberg

Bruce Rosenberg

Bruce Rosenberg, 49, is a prime example.  He has turned his encounter with mesh into the nonprofit  The National Meshoma Foundation and now helps others with injuries when he is able.  He tells his story to Mesh News Desk editor, Jane Akre.

Celebrating his 40th

It started innocently enough. Bruce Rosenberg, his wife, Susan, and six-year-old daughter drove to Naples, Florida, the other side of the state from their Fort Lauderdale area home, to celebrate his 40th birthday. Bruce went to pick his daughter out of the pool when he says he felt a bump form. “It was a sudden twinge and felt like a bump, like a marble,” he tells Mesh News Desk.

YouTube, defective inguinal canal

YouTube, defective inguinal canal

Concerned, the family called their primary care physician who said, don’t worry it sounds like a hernia. It’s nothing.

Bruce had developed a left inguinal hernia, a small hole in the groin area that can grow with exertion, allowing the intestine to protrude through the hole and outside of the abdominal wall.

He consulted with a general surgeon who told him they use something called mesh to repair a hernia. Bruce was shown a Prolene Hernia System®, a medical device made by Ethicon, a division of Johnson and Johnson.  The doctor rolled the soft mesh, crumpled it in his hand. Did Bruce have any questions?

What happens if there is a problem with it? Can it be taken out?”  The surgeon seemed bothered by the inquiries so referred him to the inventors of the Prolene Hernia System, a hernia repair group in Florida.  There Bruce was told thousands of individuals had been implanted and only three people ever had any problems. That’s because they were put in wrong, he was assured.

Of course it can be removed but we’ve never had to,” Bruce says he was told. He wasn’t told that  nonabsorbable mesh is intended to remain indefinitely and is considered a permanent implant.

But this was a test site for Ethicon. Going to the right place would bring a better outcome with less pain and decrease any chances for complications, he reasoned.

Prolene Hernia System, sold by Medical Solutions

Prolene Hernia System, sold by Medical Solutions

Prolene Hernia System

The Prolene Polypropylene Hernia System is made of a petroleum-based plastic pre-shaped into a three-dimensional patch connected by short mesh cylinder. The fiber is nonabsorbable polypropylene filaments.

With more than one million hernia surgeries performed a year, and more than 700,000 involving an inguinal hernia repair, primarily in men, the mesh is thought to offer a stronger advantage over just suturing up the hernia.

Use of a bi-layer polypropylene mesh device (BPMD) for inguinal hernia repair began in 1998 and was the latest in a long evolution of material for hernia repair that included stainless steel, polyester, Dacron, Teflon and Marlex. In third world countries, where petroleum-based mesh is rare and expensive, mosquito-net cloth has even been used.

Marlex Mesh, Phillips Petroleum ad

Marlex Mesh, Phillips Petroleum ad

Pioneered first by Benjamin Pease in the 1950s and later Francis Usher, hernia repair mesh materials was originally made of polyethylene.  Polypropylene came along in 1962, a result of petroleum-based plastics developed by Phillips Petroleum.

Non-mesh options are practiced by doctors at the Shouldice Hospital in Toronto using sutures and the Desarda suture repair originated in India as a mesh-free and tension-free procedure that pays attention to the body’s anatomy but polypropylene mesh is considered the standard for hernia repair.

Did His Homework

Bruce did his homework. As a caseworker he was used to deep investigations, chronicling and collecting data on cases of abuse on the geriatric population and neglected teens. As a probation and parole officer, he was trained in tracing documentation to its source to uncover the truth.

Harry Rosenberg, NY Giants, 1930

Harry Rosenberg, NY Giants, 1930

After he moved to Florida in 1977, Rosenberg attended the University of Florida and graduated in 1986. Growing up in Levittown and East Northport, on Long Island, NY, Rosenberg’s grandfather and great uncle had been major league baseball players, one playing for Chicago, the other for the New York Giants. Harry and Lou Rosenberg were paid $6 a game back in the 1930s. After their athletic careers ended, they opened up a gas station in Brooklyn.

Rosenberg wasn’t offered the Desarda technique or any no-mesh repair. He was shown a 6 by 4 cm Prolene Hernia System the day before his 40th birthday, August 19, 2004.His birthday party planned for the next day had to be cancelled.

Right after surgery, when Bruce woke up he says he says he knew something was wrong.

He tried to walk and felt like something was too tight, a stabbing pain. “It was driving me to my knees” he says. More pain meds followed and on the drive home, he asked his father to pull over on the side of the Florida Turnpike to call the surgeon.  The doctor was annoyed. He said “it’s all in your head,” Bruce says today. Just go home and fill your prescription for oxycodone and you’ll feel better.

Hurricane Charley was hitting Florida and residents were battening down from the Category 4 storm. Despite that the doctor gave Bruce his cell phone number and said he’d be back to work on Monday. But that evening the pain grew worse and Rosenberg called the doctor. Again he was told it’s all in your head, you’re feeling anxiety, take two oxycodone every four hours, four times a day. Just double the dosage. That along with four Motrin four times a day was a pain med load on his 127 lb body.  Bruce says he couldn’t get off the couch and the pain was emanating from somewhere deep like something was grabbing him from inside. He knew something was not right.

Within a few months Rosenberg had lost 30 pounds and says he was doubled over with terrible groin pain.  He says of that time, “I couldn’t move. It was like I was on fire in the groin like a knife was stuck in the left side of my groin burning into the hip.”

By this time he could no longer function at work and was demoted becoming his assistant’s assistant.

“After 25 years as a social worker it was very demeaning,” he says.  Bruce had to wear sweatpants to work because he could not tolerate the pressure from the waistband.  He gave up his passion of restoring vintage cars. Because of the pain he could no longer bend over his watch repair desk, a skill he had learned from his grandfather or teach the skill to students at a nearby community school. A loving relationship with his wife was impossible. This is no way the pain is related to mesh, he says he was told by the implanting doctor.

 

Prolene Hernia System explant from Rosenberg, 1.5 years

Prolene Hernia System explant from Rosenberg at 1.5 years

Looking for Answers

Bruce spent the next two years looking for answers. He went to a dozen urologists, neurologists, gastroenterologists. The pain drove him to a dozen emergency room visits and he’d endured a half dozen CT and MRI scans.

“I was glowing in the dark from so much radiation,” he tells MND. It was later that he found out that CT can damage mesh. Polypropylene will degrade more rapidly when exposed to gamma radiation.

During the first session with a pain management specialist in January 2005, Rosenberg was told he had a “cigar” under his skin. Where the mesh was supposed to be flat, the prolene had rolled inside of his groin. Over time it stiffened and scar tissue began to grow, known as a keloid. The suture was popping out of his skin as his body tried to reject the mesh.

Surgery Number Two

After seeing blood on his shirt, Bruce went to his primary care physician who found something resembling fishing line sticking out of him. The doctor told he had a suture granuloma from the hernia repair, a condition Ethicon dubs “suture spitting.”  Bruce called the company and Ethicon reportedly filed the adverse event as a problem with the vicryl suture.

The original surgeon put Bruce on the gurney and cut out what Bruce calls a “chunk of flesh” calling it an aberrant hair follicle. By January 2005 the same surgeon did an exploratory surgery and confirmed the mesh had folded over. He removed about one-quarter of the lateral overlay of the Prolene Hernia System Mesh and intentionally cut some nerves, Rosenberg says neurectomy is a standard treatment or mesh-related pain.

Why did he keep going back to the implanting physician?  “He was the only one who would see me,” according to Bruce.

97 Pounds

The weight loss continued.  By January 2005, Bruce weighed 97 pounds and no one knew why. Prostatitis, it was thought. He was tested for AIDS and received a colonoscopy. At a local medical center he was given lines with solutions which caused his potassium levels to plunge to dangerous levels resulting in severe dehydration. He was rushed back into the ER to have potassium intravenously pumped back into him, resulting in a severe burning sensation at the infusion site.

“It’s not just the mesh problem,” he says. “You are subjected to the medical community and all the ills that come with it.  All the misdiagnosis, they think I have MS, lupus, IBS, arthritis and give meds trying to get rid of the symptoms. Chronic misdiagnosis problems befall many patients.  I was on eight pills three times a day – Zelnorm, Lyrica, Cymbalta, Trazadome, heart medications.  All cause side effects that are worse than original problem.”

Valentine’s Day

The Valentine’s Day card Bruce received on February 14, 2005 changed his life. By this time he couldn’t get out of bed, surgery had failed and he didn’t sleep through the night due to night sweats. The card came from his six-year-old.  “Happy Valentine’s Day Daddy – I hope your hernia gets better.”

“For me a little kid, this shouldn’t be on her mind.  It just floored me, I was already depressed. At that point I had a gun I couldn’t take the pain anymore and I was going to use it but I looked at pictures of her and my family and said I can do better than this, this can’t happen to others. I never took crap from anybody before, I’m a strong person. I put it down and took bullets out and threw them in canal behind my house at 3 in the morning. I put the gun back in the case. I just started typing.”

 

Finally Validation

For the next two years, Rosenberg continued the round-robin of specialists looking for any answer as to why he was in pain and losing weight. The circle expanded to include rheumatologists, internists and neurologists. He says he saw 40 physicians in all and kept paying the co-pays even with insurance.

Finally in February 2006, Rosenberg walked into a strip mall in Deerfield Beach to meet with Dr. Randy Kimmelman of New Jersey Surgery.  It took the general surgeon about ten seconds to identify the problem on the same CT scan the original surgeon had been shown.

That’s your mesh there,” he said pointing to the scan. You probably need to have it removed. Your original surgeon is not identifying the problem because he’s afraid of being sued.

“He was the first person who truly identified what the problem was and told me I was not crazy,” says Bruce today.

Dr. Kimmelman told Bruce he used mesh all the time in his practice mostly with good outcomes, but said “when they’re bad, they’re really bad,” Bruce recalls.

Surgery Number Three

 

Dr. Kimmelman didn’t remove mesh but he recommended Dr. B. Todd Heniford, an Ethicon consultant and surgeon in North Carolina who was the “fixer” when others went wrong. But Bruce had already sought a consultation with Dr. Jeffrey Sedlack, a surgeon in Connecticut, whose website said he had removed more than 100 meshes.

During a March 2006 scan, he saw the mesh pushing on the bowel and another one there wrapped around the spermatic cord.  In ten seconds, he put his finger on the same place in the CT scan as Dr. Kimmelman. “It has to come out. This is a meshoma,” Bruce was told.

A meshoma is a mesh contraction moving away from the pubic bone and inguinal ligament causing the mesh to wrinkle or ball up which can cause the recurrence of the hernia. In Bruce’s case, the meshoma had eroded through the peritoneum, the lining of the abdominal cavity.

Bruce recalls Dr. Sedlack asked if this was the scan he had shown his original surgeon. The doctor said the mesh should have been removed immediately before it caused additional injuries, trauma, psychological trauma and weight loss. The mesh is strangling your bowel, putting pressure on the bladder and crushing the spermatic cord and testicle. You could have avoided that if he had taken it out.

Surgery number three took place March 2, but there were complications. Removing such a large piece of mesh on a small body had created a defect, giant hole of six centimeters. Bruce says he sat up after surgery, his leg turned purple and his gut blew out. The sigmoid colon had herniated and was outside the abdominal wall like a piece of sausage.

Bruce recalls as he was being rolled into surgery a representative from Ethicon showed up. “I’m here to study your case,” Bruce was told. “I blew my stack. I’ve been calling you for months,” he said. “You’re only here to see if it’s your fault.”

The doctor said he wouldn’t do surgery if the rep couldn’t go in. Bruce agreed.

Post surgery #3

Post surgery #3

Improvements Immediately

“My pain went away when the mesh was removed. Even though I had a huge hernia I felt great. I started gaining weight, didn’t have a bowel problem, no neurological problems. I even started having sex again and walked a mile every day. I got into great shape with a massive hernia pushing outside of the abdominal cavity.

Bruce had a recurrence of the hernia but now it was larger recurrence because of the mesh removal. This time he was referred to Dr. Todd Heniford, the last chance surgeon who would later become a specialist for Ethicon.  If you go there I will come with you just to be by your side, said Dr. Kimmelman. Bruce says that’s exactly what he did.

Surgery Number Four

By this time Bruce Rosenberg was facing his fourth surgery. Since Dr. Kimmelman had recommended Dr. Heniford, Bruce chose him for what he hoped would be his final repair.

Ultrapro Hernia System

Ultrapro Hernia System

Dr. B. Todd Heniford, is a board certified surgeon at the Carolinas Medical Center in Charlotte, North Carolina where he also conducts studies for industry. At the time, a human trial was underway into Ethicon’s new lightweight mesh, Ultrapro. Bruce was enrolled in the human trial for Ultrapro. He was told the defect is too large for tissue repair and his body is too thin.

Bruce signed a waiver that he would not take Ethicon to court.

This time around the outcome was expected to be different. The theory was the lightweight mesh would call less inflammatory response so in July 2006 Dr. Heniford spent a half hour just cutting out adhesions to his mesh. Since his sigmoid colon was herniated outside of the abdominal cavity, to put Bruce back together the surgeon implanted a 30 cm square sheet of Ultrapro, about the size of a piece of notebook paper.

The giant mesh today covers his entire abdomen from the belly button down. His bladder had to be lifted out of his body to place the mesh. He was literally wrapped in mesh now. A second surgeon had to be called in a urological surgeon to remove the testicle which had been damaged by the first removal.

At first Bruce says he felt good but as the month wore on, the pain came back, chronic groin pain, sexual dysfunction, neurological, gastrointestinal problems, just not to the extent as originally.

“I called Heniford and he refused to see me,” Bruce told MND. I called repeatedly and made about 20 attempts to call him to discuss I’m still having pain, is there something I can do?”

Despite the promises of the less mesh the less mess, Bruce was experiencing inflammation; he had trouble moving and still could not have sex. “My local doctor tried to call there. The nurse said she spoke with him (Dr. Heniford) and said to tell you there must be something else wrong with you.”

“I had multiple scans and MRI even after that to see what was wrong. I started to lose weight again. I weigh 107 pounds now.  I’m 49 years old.”

American Hernia Society

For some reason, Dr. Sedlack was not done with Bruce.

He reached out to the injured man and brought him to the American Hernia Society meeting in February 2008 in Scottsdale, Arizona.  There he introduced him to another man who had experienced terrible hernia complications, Dr. Elliott Miller. The pair was joined by Bill Smith from Dallas, also hernia mesh injured, who had been researching his systemic response after being implanted with a Marlex mesh which Bruce says made him deathly ill.

The exhibition booth and table cost the group $3,000. Bruce sold one of the cars he had fixed to fund the trip. On the table of the fledgling foundation were handmade signs which said National Meshoma Foundation, a nonprofit he had formed a week before. Behind them on the wall was a blow up of the Topix website where hernia mesh patients share their horror stories.  On the table was a Rubbermaid container full of hundreds of vials of Bruce’s medication he had been prescribed over the past two years, about $12,000 worth. The sign said “Patient meds one year after mesh complications.”

Rosenberg’s implanting physician approached the table.

“Bruce what are you doing?”  Bruce told him, “I’m here to educate people about mesh complications.” There is no such thing, said the doctor.

Dr. Bruce Ramshaw, hernia surgeon

Dr. Bruce Ramshaw, hernia surgeon

Despite being ostracized by some at the conference, Rosenberg found some support among leading physicians present including Dr. Bruce Ramshaw and Dr. Robert Bendavid of Shouldice Hospital who hugged Bruce and said it’s about time somebody talked about this.

Dr. Robert Bendavid, Shouldice Hospital hernia surgeon

Dr. Robert Bendavid, Shouldice Hospital hernia surgeon

Apparently they too had been talking about these problems for years. In fact in 2008, Dr. Ramshaw did a presentation showing pictures of degrading polypropylene mesh from the explants he was documenting at the University of Missouri.

 

I interviewed 60 surgeons and asked them about their patients and it was all consistent; I send them away I don’t know what to do with them. I send them to pain management they all said.”

 

The National Meshoma Foundation

The newly formed National Meshoma Foundation focused on research, education and outreach. Bruce says he spent seven nights a week researching and slept no more than four hours a night for three years.

“I spent every night on the internet, libraries, book stores, met with doctors and interviewed them.  I went to hernia conferences and just kept pouring into it.”

His research started with Benjamin Pease and continued to Dr. Parvez Amid, of the Lichtenstein Hernia Institute and himself a developer of mesh products. He dove into industry-funded studies and retrieved early evidence that red flags concerning mesh had been waving since the days of Pease. He saw industry videos extolling the virtues of lightweight mesh.

He even paid for a few patients to go to Dr. Ramshaw for a consultation by selling a few antique cars.

As word spread, Rosenberg was brought in to consult with law firms and bring his research.  And thousands of patients found Bruce on the Topix page looking for a direction, any direction.

Patients responded, “It’s amazing what you do,”  “You’re a Godsend,”  “You saved my life.”

Before the internet, patients were turned away when there were complications, says Bruce. As a result, no one has any idea how many people died from septic erosion in the bowel.

Despite two hemorrhagic strokes at age 35, Bruce kept learning and listening.

He says there is a consistent theme among mesh-injured patients – many express frustration that there is nothing worse than being denied you’re actually in pain. Patients reported feeling crazy, suicidal, depressed due to the fact that no one believes the cause and extent of their pain, especially when they look normal on the outside. He would later learn it could happen to him. At this writing, his wife has decided to file for divorce.

FDA

Rosenberg said he had repeatedly called the U.S. Food and Drug Administration throughout 2006 and was told the agency had never heard of this problem. Bruce knew for a fact that many mesh sufferers had called to file an “adverse event report.” Still the FDA insisted it had never been called about this problem. There is no such thing as the contraction of mesh. Polypropylene is not plastic.

An Office of Criminal Investigation case was opened against several larger manufacturers to determine if polypropylene could degrade in the body. That case is still opened.

Transvaginal Mesh

Unlike the FDA’s warning that transvaginal mesh complications are not rare and the benefits of its use may not outweigh the risks, a notification posted on the agency’s website in July 2011, hernia mesh has not received such a warning.  The FDA’s hernia mesh page says:

“The most common adverse events following hernia repair with mesh are pain, infection, hernia recurrence, adhesion, and bowel obstruction. Some other potential adverse events that can occur following hernia repair with mesh are mesh migration and mesh shrinkage (contraction).

“Many complications related to hernia repair with surgical mesh that have been reported to the FDA have been associated with recalled mesh products that are no longer on the market. Pain, infection, recurrence, adhesion, obstruction, and perforation are the most common complications associated with recalled mesh.”

This is perplexing because besides the well-publicized Composix Kugel mesh recall of several lots, which was later put back on the market, there have been very few recalls of hernia mesh with the exception of a few manufacturing lots recalled over mislabeling, sterility or counterfeit mesh issues.

The only other large hernia mesh recall was in September 2005 by LifeCell Corporation over its AlloDerm mesh. It was determined that about one-quarter of those implanted with the donated human/cadaver skin mesh had complications including infection and rejection.

Ethicon’s Prolene Hernia System remains on the market. Marlex, the Phillips Petroleum plastic was made into Hula Hoops in the 1950s. It is still used for inguinal hernia repair. #

*Editor’s Note– In transvaginal mesh litigation, MDL PTO #66 orders Defendant Ethicon to produce backup data on hernia products and on Ethicon’s decision to redesign them to move from “a heavyweight small pore design to a lighter-weight, larger pore hernia mesh…” including documentation on Prolene, Prolene Soft Vypro, Proceed  and Ultrapro and including research conducted by Dr. Heniford, among others (Klosterhalfen, Klinge). Dr. Heniford later made a video extolling the virtues of lightweight mesh. Plaintiffs’ attorneys say much of that evidence was not preserved by Ethicon.

Learn More:

Bruce Rosenberg- The National Meshoma Foundation– brosenberg1@bellsouth.net, the group does not have a website yet.

Background story on Mesh News Desk Hernia Recalls here

J&J Evidence Not Preserved story here

197 Comments

  1. Brenda Owen says:

    I have had Ethicon physiomesh fail. It was utilized in a hernia repair in Sept. 2011 and had to be removed by August 2012. It had bunched up and adhered to my bowel and the hernia reoccured. It took 5 1/2 hours in surgery to repair my abdomen and there is still a quarter sized piece of it in there that they could not take out. I now have a scar from hip bone to hip bone. I still have pain due to scar tissue, etc. This has been a nightmare. I registered the Ethicon physiomesh as a failed medical device with the FDA last year. Have not found an attorney to take my case. If it wasn’t a case involving vaginal mesh, they don’t want to bother with it.

    • Jane Akre says:

      Brenda- thanks for bringing this to everyone’s attention. Attorneys are paying attention to hernia mesh. I predict we will see more cases. Thank you for filing with the FDA. ~ ja PS- Check with Bruce on medical and legal issues brosenberg1@bellsouth.net

      • Angie Shackelford says:

        I emailed Bruce two weeks ago and I still haven’t got a response! My husband had the Bard3D Max Mesh for a inguial hernia and developed so many major health issues! He had it removed May 2015 and lost 3 nerves due to the mesh had gotten into them,he has a enlarged prostate,cysts on his liver and keeps getting denied his disability benefits due and we have been told he has a malpractice case but no attorneys in Kentucky will take it! We are still finding more and more organs that have been damaged and my husband was a perfectly healthy man up until the mesh

        • Jane Akre says:

          Bruce gets overwhelmed, there are so many hernia mesh cases. I will send along your post to him…..Remember this is a volunteer effort for him and he is also injured so please have patience.

          • Angie Shackelford says:

            Thank you Jane ! My husband has been suffering with so many health problems from the mesh and now the mesh removal that it hurts me to see him go through all of this ( I did not post on here all of his problems but I’m sure Bruce understands what he is going through)

        • Ed Price says:

          My prayers for your husband. I to had bilateral hernias’ repaired in 09 with bard 3d max and still suffer with many of the same issues. No one was willing to remove it. Now they try to say I have an auto immune like disorder. Overactive system. My issues have left me unemployed and no insurance. But I serve A GOD who is greater than whats the matter. Blessings to you both.

          • Marina says:

            Have suffered for 26 years following Marlex Mesh implant for obturator hernia (a rather rare hernia). Didn’t walk for several months following surgery. No one had answers. Last 3 years having more problems and recently much worse, along with sinus/pulmonary infections. Seems so difficult to get doctors to try to understand but, yes, my Lord knows and in Him only can I trust.

        • Megann says:

          My hubby has the 3D max mesh too, and it has to come out. Where did you get it taken out and how did they repair the hernias? Also check out Hollis law firm website on the 3dmax by Bard. We are signing with Danziger and bellamo in Houston, tx. They really seem to know what theyre doing and you wont have to wait so long to get your money, Bard is pretty timely in their settlements.

        • Megann H says:

          Where was it done and how did they repair the originsl hernias then?

    • Barbara Weldon says:

      I am crying reading all of these. I thought I was the only one!! I have been in pain for YEARS after a prolene mesh repair for a hernia, in and out of ER’s, being treated like a drug addict, only to finally have a surgeon point out EXACTLY what went wrong: the mesh shrunk and surrounded a nerve. He fixed it and I am out of pain but for the rest of my life I will have a numb right thigh. That’s my trade off…forever. And there is nothing that we can do because no lawyer will take my case. I’m so sorry that you guys have suffered like I have, and even more so for some of you. If any of you have had any success for your case, please let me know. My kids have not had a fully healthy mom for almost three years. So frustrating.

      • Jane Akre says:

        You are definitely not alone…… have you reported to the FDA? they need to hear from you. Bruce Rosenberg of The Meshoma Foundation is a helpful resource 954-701-5094.

      • Vikram Daga says:

        Hello Barbara,

        What issues do you face with numb thigh?

        To all: My bother underwent a surgery for “inguinal bilateral hernia repair” in 2010. In Jan 2016, one of the sides of the mesh caught an infection and resulted in appearance of a bulge. They tried things like antibiotics, draining the liquid in the bulge but later in July the infected mesh was surgically removed as he started getting fever from infection. It was said that he should heal up in a few days after surgery but since then he has been facing issues of infection and discharge. Every day he has to irrigate the wound and sometimes he still gets fever if the discharge is blocked within his body. Everyday for about 7 months now, he has been getting discharge out. The surgeon told him about 3 months after surgery that a part of the mesh was close to vessels (behind limbs) and therefore was not removed. I believe he felt that the body will handle and control the infection…The doctor says that it could take anywhere from a few months to a few years to get healed, he is not sure. He also says that there are risks in attempting to take out that remaining part of the mesh.

        I am trying to see how I can help, what can be done. Anybody who has faced this issue, please let me know.

        Also, are there specialists that specialize in complicated mesh removals? Any references?

        I have written an email to Bruce Rosenberg but have not yet heard back.

        Thank you all. Wish you all the best.

        • James Rose says:

          To Vikram (& any other mesh sufferers searching for a surgeon to remove their mesh)

          My story is so much like that of Bruce, it’s uncanny. After having two unsuccessful revision surgeries, I was fortunate to find the right surgeon to help me. A compassionate, skilled surgeon who was both willing and able to remove my infected mass of remaining shriveled plug & patch material and other damaged tissue, in order to finally give me the crucial root cause resolution I so desperately needed.

          After suffering with mesh complications for 2 1/2 years, the surgeon who finally removed my mesh realized that the surgery literally saved my life. Prior to my surgery we learned that I had actually had a staph infection the whole entire time (fortunately not MRSA though), which had already perforated my membrane (peritoneal) encasing the intestines and had firmly adhered to them too. He told me he suspected it would only take another month to 1 year before the mass of infection perforated my intestinal wall, which would consequentially lead to sepsis.

          That said, I am now of firm belief that if you too suffer from mesh complications which include recurrent infections, you essentially have no other option but complete mesh removal. Furthermore, if removing that mesh requires the use of replacement mesh, I strongly suggest having it replaced with only bio-mesh that your body is able to fully absorb.

          So, back to the original point, if you are hoping to find a surgeon for your mesh removal and you’re able to do so in the Southeast, I suggest you contact my surgeon. That surgeon for me, whom I strongly recommend, is John V. Cattie, MD, of Union Surgical Associates located just outside of Charlotte, NC. The hospital where Dr. Cattie performed my surgery, and just one with whom he is affiliated, is Carolinas Medical Center – Union. For your convenience, below is a link to his website:

          http://www.carolinashealthcare.org/locations/union-surgical-associates

          I sincerely hope you and everyone else gets the medical attention they require and truly deserve, and that my surgical suggestion is helpful to someone.

          Good luck and take care!

          • Troy Gamble says:

            Interesting. Dr Cattie is wonderful. He has seen me several times. He referred me to Dr Heniford. He has retired from Union Surgical in Monroe, NC One of the finest men I know. I’m still searching for answers.

          • Jane Akre says:

            Thank you for the doctor referral…..

  2. Bejah Notrettu says:

    I read this story about Bruce when it was first published here but I could not respond because I found it somehow so devestating. His courage and perseverence in the face of such horror is astonishing. I am thankful to him for telling his story here. His account reminds us all that this is not only a story about women and their devestated lives, it is a human story. I wonder now how many men and women are “suffering in silence” due to other kinds of mesh surgeries, and indeed other “medical device” surgeries resulting in injury due to faulty production and marketing. Thank you Bruce for your heroic efforts.

  3. Annette M. says:

    I had a ventral laprascopic hernia repair on 11-25-2013. During my consultation with the surgeon he immediately said I needed surgery to repair the hernia and he made it sound like it was a piece of cake surgery. He said “you can go back to all regular activities with no restrictions whatsoever.” I told him I have a special needs child who weighs 110lbs and asked about causing issues by lifting him too soon and said that when a person sneezes or coughs, its the most pressure you can put on the abdominal wall and that you cant tell a person not to sneeze or cough and if you can sneeze or cough you can lift a 110lb child. He then told me and my husband that he himself had the same procedure done on a friday afternoon and returned to work by that monday. Of course at that point I thought the surgery was going to be easy and that I would recover quickly, but that didn’t happen at all. By Thanksgiving night 11-28-2013 I was in so much pain I could not move at all. I was stuck in a recliner unable to move much less get out of the chair to go to the bathroom. I ended up having to call an ambulance and was transported to the University Medical Center where I was admitted and kept until Saturday 11-30-2013. My pain was finally manageable at that point and it started to get a little better but I was still having severe pain when I stood up, sat down, coughed, sneezed, moved the wrong way or even just bending over. I still couldnt lay down because the tugging pain was so bad it felt like my stomach was shredding. I followed up with my surgeon 3 days after being discharged from the hospital. He was running late and despite the excruciating pain I was in, I sat patiently in his lobby for just under 2 hours before being called to a room. I was then seen and quickly examined by a med student. I told her about the pain, the hospital stay and informed her that the CT results from the hospital showed a fluid collection that was considered by the UMC surgeons to be “outside of the surgical area and was slightly abnormal” she left the room to look up the CT report and came back in with the surgeon. He spent a whole 2 minutes with me, did not allow me to explain the pain or my experience and just said that everything was fine and everyone gets fluid collection after surgery and then he instructed me not to return to his office unless there is a major issue. I spent last evening (01-18-2014) in the ER because the pain has not subsided. Anytime I do anything that uses my stomach muscles in any way I have sharp, burning pains that feel like my stomach is being ripped apart and its unbearable. The ER at UMC did another CT scan and said that there is a lot of “fatty strands” of tissue around the mesh that is very inflamed. They also said it could be an infection but my lab work was ok so they dont think its an infection but they cant rule it out either. At this point I want the mesh out of me immediately. I am so angry at this surgeon. He mislead me and he flat out lied to me and misrepresented the true recovery time that most people require after this surgery. Had I known the truth I would have never allowed him to put mesh in me at all. He didnt even tell me about the possible complications fromnusing mesh other than the risk of infection. I dont know what to do, but this surgery has cost me a lot and I think its disgusting and definitely irresponsible for a surgeon to not fully inform a patient about this mesh crap. Anyone with any medical or legal advice would be very much appreciated.

    • Jane Akre says:

      Annette- I’m so sorry. I’ve never heard of someone being told a two day recovery, especially when you have a special needs child you need to be able to lift. Bruce Rosenberg is available to talk at brosenberg1@bellsouth.net He may be able to guide you with appropriate medical care, which you clearly did not receive.. Again, I’m sorry. ~ja

  4. Julie says:

    Hi Bruce ~ As I read your article I thought you were talking about me. It is amazing! I also was told that my problem was lupus, ms and gynecological. I have been in pain ever since my inguinal hernia surgery (Ethicon Mesh) (Vicryl Sutures) on my right side since May 09. I have seen many doctors/surgeons, had nerve blocks and to boot they convinced me that it was gynecological. I had a hysterectomy at 39 years old and I am still in unbelievable pain and pray everyday that someone will listen and remove this mesh. I am on a crusade to fix my problem and any advice or direction would be greatly appreciated.

    • Ellen says:

      Try Dr Spain At Stanford Hospital.He is a great Surgeon

    • Jenny Bills says:

      Julie, my experience sounds very similar to yours! Since having the Prolene mesh implant in 2004, I have had two more surgeries to attempt to alleviate my chronic abdominal pain, one being a complete hysterctomy at the age of 43. These attempts failed miserably and made my pain so much worse. I went to every specialist imaginable and had every test known to man taken, to come up with no other cause. I even went on a liquid diet for months to see if food intensified the pain. I even successfully lost 40lbs in the attempt at alleviating my pain. I was on narcotic prescription pain medications for seven months and couldn’t drive a car for all seven of those months. I have pretty much had to exist laying down all day everyday with ice packs applied directly to my abdomen either in bed or on the couch as sitting, standing or bending is excruciatingly painful. Please let me know if you’ve had mesh removal and/or taken legal action.

  5. Barbara Dykes says:

    Thank you for sharing your horrible story.I have a grown son who had a hernia repair and forwarded this to him. I have been a R.N. for 25 years. I also had a “Mesh implant” for POP (Pelvic organ Prolapse).That was about 6 years ago. I too love to investigate and get to the truth of situations. Not all MDs I worked with but some/and those I went to gave me a funny look like “its all in your head”. As a former Hospice Nurse, I would NEVER doubt a patients concern . Long story short, I may be getting near the end of a lawsuit that includes women all over the USA under Ethicon (Johnson and Johnson). I grew up thinking they were a caring company…after all, they made products like baby powder, etc. It turns out that over a 10 year time span, they destroyed documents, erased hard drives, and ignored FDA warnings for the almighty dollar. The wrath of God is upon them as a Judge has decided to stop trials and charge them with “Spoliation” which grants awards to over 30,000 women. There are other companies in trouble too…American Medical Systems, Bard,Boston Scientific.The Judge is “Angry that they put profits before Peoples health. Even though many of us had Mesh Removal, the pain and suffering/ destruction of our female parts/and bowels scarred forever. They test on hamsters/rabbits for a short time and set about making billions all over the world.Karma always catches up. Hope you are well.

  6. Sue says:

    Dear Bruce,

    WOW! You have been through so much! I had Right Inguinal Hernia surgery in June 2010. Been in pain ever since! It is also getting worse, and no help out there. Same CT’s, MRI’s, X-rays, and Ultrasounds, to no avail. I had Atrium Medical’s Pro Loop Mesh and Plug used. I am not able to continue my normal daily functions. However I am also scared to have it taken out with all the horror stories of people having that done. I am depressed, and I know that the FDA has a complaint letter to Atrium Medical from 2011, for unsanitary conditions, and they also have Several Recalls. Any suggestions???

    Thank you,

    Suie

  7. Margaret says:

    Dear Bruce, It’s nice to put a face to your name. I’ve followed your post’s in Topix from the beginning and I thank you for freely sharing your knowledge. I, like every mesh victim, felt immense relief knowing that I was not malingering as accused by the medical profession. My nightmare began in 2008 with a “simple” ventral hernia repair. Like so many others I lost it all and now live in chronic pain on SSDI. I was fortunate though to find a surgeon and a plastic surgeon once I had medicare to perform my 5th and final surgery. It was far from a simple procedure to remove the polypropolene. I am thankful that there are those tenacious souls like yourself , Jane Akre, Noni Weidman, and so many others who spend their time learning, sharing, and offering support.

  8. Linda Dodson says:

    Hello My Friend,

    Thank you for your continued work in educating people about the deadly mesh complications. You’ve done a great job in telling your story and I’m sure it will help other’s. It’s been a while since we’ve talked and I’m glad you have continued your fight against mesh complications.

    God Bless You!

    Linda

  9. Dan Bolton says:

    Bruce’s journey post-surgery is an extraordinary one. As an attorney investigating hernia mesh cases, I’ve been struck by the large number of similar stories from persons who have suffered chronic groin pain, nerve damage and other debilitating injuries after hernia repair surgery with polypropylene mesh. Our firm will soon be filing a case involving the ProLoop mesh marketed by Atrium Medical Corporation. I’ve written an article on this website in the Feature section about the deficiencies of the FDA 510(k) process for clearance of hernia mesh devices.

    • Judy Chapman says:

      Mr. Bolton I have my own botched hernia mesh story to tell. I am currently looking for a lawyer to represent me. I contacted a law firm in West Virginia but they only do transvaginal mesh cases. Please provide your phone number, thank you.

    • Judy Chapman says:

      Attorney Bolton, do you know of any attorneys that are handling cases resulting from a failure of a Bard 3D Max Mesh from hernia surgery?? I had a botched ingunial hernia surgery 1.4 years ago resulting in the mesh letting loose (immediately) and migrating into my abdomen. It took surgeons 9 months to figure out it wasn’t just the huge hematoma causing my pain but r

      • Angie says:

        My husband had a inguial hernia surgery and the Bard3D Max mesh was used in him! When he went to see a doctor he was told it was a easy fix and in 6 weeks he could go back to Work! He started having problems from the surgery the next day and his health just keeps getting worse( he was a healthy active 42 year old man until the surgery) now he can’t work and yes he tryed a easier job then what he did before surgery. He has had a allergic reaction to the mesh and broke out 2 days after surgery, he has hair loss,stays swelled and in pain from his stomach in his groin and down his leg, fatigue, days he looks juadice, moody,no sex drive,severe breathing problems and is on 2 inhalers ,problems using the bathroom and has to lay down after he eats, he can no longer ride his Harley and at times can’t drive his pickup truck ( it’s a 5spd) and then there are times he can’t stand to ride in my car, he sleeps with a pillow between his legs at night! He has seen 8 specialist and went to pain management for injections and got no relief! His family doctor and the pain management dr both say the mesh needs to come out but we can’t get a dr to listen and can’t find a lawyer to help us!!

        • Ed Price says:

          My prayers are with you and your husband. I also suffer so much like your husband. I had bilateral hernias repaired. over 5 years ago and it has left me disabled No one will even try to help me, all they want is to give pain meds and I will not be a victim to those. Again Best of luck to your husband.

          • Angie says:

            Thank you Ed and I pray you can find a doctor to help you too!

          • Jenny Bills says:

            Expert hernia surgeon Dr. Bruce Ramshaw of Daytona Beach, FL can help you! I’m traveling down there next month to have my polypropylene mesh of 12 years REMOVED by the grace of GOD

          • Jane Akre says:

            Just make sure he understands (put it in writing that he signs) that he will not do the repair with any more mesh!

    • ACurtis says:

      I had PROLENE mesh put in me during my umbilical hernia surgery in Nov 2002. Nothing had been mentioned to me or my husband about mesh needing or maybe being used until AFTER the surgery was done and over–the reason given was that the muscle had torn so much that there wasn’t much for the surgeon to use to stitch me back together (I suffered a hernia when I gave birth to my daughter and it wasn’t detected by my doctor for 2.5 years). I did, at one time, receive information on a mesh litigation lawsuit–but at the time, I wasn’t having any issues. Now, in 2015 and 13 years later, I am. I am worried that I have another hernia now (or some other issue resulting in pain and bloating) and am also worried that my chronic fatigue as well as my high blood pressure are all because of inflammation inside my body–inflammation from having this foreign body (petroleum based) inside. I am so upset I can hardly see straight! Seriously, it’s only now that complications have cropped up that actually point to what the problem most likely is (the mesh). Can the mesh be taken out after this long? And how much do I have to go into debt to go see and have a surgeon/doctor who actually knows how to take this out, is willing to do so, and knows how to repair a hernia so that mesh doesn’t need to be used? I would love to hear from others on this! In August 2015 I started an exercise program–walking, bicycling, and using my ski machine–and I can’t even do those things without having pain. I can’t wear any jeans/pants that have zippers, buttons, or belts (was able to up until July 8-9; went to bed July 8 and woke up July 9 feeling like I’d gained 2 jean sizes. That hasn’t changed or subsided as of today. This “incident” happened before I started trying to exercise/work out; I didn’t put 2 and 2 together that it was hernia related/complications until 2 weeks later, when I began suffering from pain.). I am livid! My father had an umbilical hernia operation repair years ago; his was worse than mine, protruding out of his abdomen, having to be pushed back in (mine was never seen externally; it was all internal)–he has NEVER had any complications from his surgery and they did NOT use mesh on him. Someone told me they try like hell to use mesh on hernia repairs because a standard hernia operation where they seal you back up by using the muscles in your stomach only costs $5000 but using the mesh they can charge $10,000 and above–it’s all about the money, you guys. All about the money. Not about us and our health.These companies should be sued until they go bankrupt. Using US as test dummies? OH!…..

      • Kathy Sabatino says:

        I had my infected Mesh from a hernia repair taken out in 2011 and it was

        put in me back in 1994. It was killing off my lymph nodes and causing swelling

        and infection. The mesh had come undone and was wrapped around many organs.

        Kathy

        • Cindy Madrid says:

          What was your mesh material? I am interested in the long term mesh issues. I had a hernia repair Dec. 17, 2015. I am still recovering. Mine is polyester Coviden composite. I had a huge hernia defect so my mesh is 4X7 inches. The repair was a modified shouldice type repair using muscle tissue to close the defect. The mesh in imbedded between the abdominal layers. I have a goose egg size seroma lump over the repair. Pain is decreasing everyday.

  10. Sereda Parker says:

    I have a friend are having the same problem you had he can’t find a doctor that will help him and he also is looking for a lawyer that will take his case please help me. Thank You

  11. Lisa Duncan says:

    I have 3 transvaginal Mesh implants and have had a second surgery. The original surgeon never told me he had messed up on the first surgery, and ended up putting 3 Mesh Implants in. Had to go for 2nd surgery, the Dr. still never told me anything regarding the 3 Mesh Implants even after the 2nd surgery, all he told me is that he took the Mesh out and put another one in…

    I didn’t find out anything in regards to the 3 Mesh Implants, I found out about the 3 implants until I retained a lawyer, and the lawyer got my medical records and they informed me….

    I have been so severely sick since 2007, I mean deathly sick, in and out the hospital… I can’t work, and was just declared quote unquote disabled, well that means i have been disabled since 2007.

    THE FDA KNEW ALL ALONG ABOUT THE PROBLEMS WITH THE MESH, IT IS MADE OUT OF THE SAME COMPONENTS AS THE BACKING OF YOUR EVERYDAY CARPET… seriously CHEVRON PHILIPS CORPORATION MAKES THE PRODUCTS.

    and the PHARMACEUTICAL COMPANIES also knew about the problems…..AS EUROPE completely OUTLAWED THE PRODUCT 2-5 YEARS before they started using it THE USA……

    THE fda and the pharmaceutical companies hid this knowledge until all to many women and men became ill…this is a POISON in your body…

    THEY started promoting and using the MESH, as this was a quicker and more of a money maker for ALL PARTIES CONCERNED. THE old style surgery took longer and the PROFITS weren’t at all the GREAT PROFITS THAT ALL PARTIES CONCERNED COULD MAKE OFF OF THE MESH SURGERIES.

    our GREAT GOVERNMENT knew about the problem along with their entity FDA.

    the KICK BACKS TO ALL PARTIES CONCERNED WERE EXTENSIVE…..

    WHO ARE THE LOSERS…………WE THE INNOCENT PUBLIC……..

    THERE HAVE BEEN NUMEROUS AND I MEAN NUMEROUS DEATHS TO THIS MESH PRODUCTS,,,,BECAUSE DR’S DON’T BELIEVE WE ARE SICK ,,,,,,IF I HAVE HEARD IT ONCE, I HAVE HEARD IT OVER 50 TIMES BY DR’S………….IT IS ALL IN YOUR HEAD…………..

    NO DUMB ASS DOCTORS,,,,,,,I THOUGHT YOU SAID YOU PUT THE MESH IN MY LOWER ABDOMEN…

    SCREW ALL OF THEM……………..I DESPERATELY NEED RECONSTRUCTIVE SURGERY AS I AM ALMOST BEDRIDDEN……………….I AM ALWAYS SICK,,,,MY SKIN IS TERRIBLE,,,,,I AM LOSING MY FINGERNAILS….AND HAIR…….FROM ALL OF THE MEDS MY TEETH ARE GOING BAD, and i prided myself in regards to my teeth and took great care of them…..as my parents afforded braces for me……..boils and hives on me, i itch all of the time… I HAVE A SEVERE RECTOCELE IN MY COLON, that needs to be fixed, this is due to the pressure of the 3 MESHES IN ME….I have constant internal infections…..and ON and ON it goes….

    FOOD AND SLEEP ARE MY WORST ENEMIES….

    I NEED TO GO TO THE HOSPITAL ONCE AGAIN, Infections again, but am scared to go as they all treat me like I am nuts…

    THIS MESH SHIT IS ALL BECAUSE OF THE ALMIGHTY DOLLAR AND BULLSHIT “GREED” AT OUT EXPENSE….

    NO ONE WANTS TO HELP ME AS i HAVE NO INSURANCE NOW…….BUT THEY WERE SURE WILLING TO BULLSHIT YOU AND I TO PUT IT IN US….

    I AM SLOWLY DYING I CAN FEEL THE AFFECTS OF THE MESH ON AND IN MY BODY ON A DAILY BASIS…

    THEIR HAVE ALSO BEEN NUMEROUS SUICIDES BECAUSE WE CAN’T GET THE HELP WE NEED…

    AND I AM STARTING TO BELIEVE ALL THE ATTORNEYS ARE JUST IN THIS FOR THEIR CUT OF THIS MALICIOUS PIE….

    WE DIDN’T DO IT TO OURSELVES WE TRUSTED

    IF WE DAMAGED OTHERS LIKE THEY HAVE DAMAGED US,,,,,,,,WE WOULD BE IN JAIL…..

    AND BY HIDING ALL OF THIS FROM THE GENERAL PUBLIC,,,,,,ISN’T THAT TAMPERING EVIDENCE….

    GOT TO GO….I HAVE WANTED TO DIE,,,,,BUT THE MORE PISSED I GET THE MORE I WANT TO HELP OTHERS LIVE, SO THEY CAN HELP ME WANT TO LIVE……

    • Jane Akre says:

      Lisa~ You clearly need some competent medical help… I’m sorry this has happened to you. Do you have insurance? Can you travel? please write me and tell me what part of the country you are in… there may be patient advocates near you who can reach out . You should not be going through this alone… ~ thank you.~ jane a.

      • Wade McCaughey says:

        I need to find a patient advocate in the Denver Colorado Area….My situation is getting worse and I am now getting the crazy looks….I need help.

        R.

        Wade

        • john nix says:

          hi wade,

          i’m in co springs and was wondering if you found the dr advocate you were looking for? i had mesh removed in june. please let me know and fill me in on how you are doing.

          regards, john

          • Wade says:

            John, Please call me….you replied the same day I was in a bad car crash.

            Please call me any time…I am trying to get sorted out here but not having much luck…I would like to hear about your experience.

            303-881-2664

    • tom mcnamara says:

      Thank you for sharing, I like bruce have been suffering since 2009 with no positive results, 1 attempted suicide, lost job, pretty much bed ridden became oxycodone addict and pretty much everything else that bruce had now this year I got an infection in my mouth and all my bottom teeth had to be removed. I need help just don’t know where to turn…..I just pray that I die every night.

      Tom McNamara (Illinois)

      • Jane Akre says:

        Tom- “m so sorry… Contact Bruce, clearly you need some competent medical help. brosenberg1@bellsouth.net As I often say, we don’t treat dogs this way. 954-701-5094. He can provide the names of doctors in your area. It’s hard to believe that doctors leave their patients in this shape… unacceptable doctors if you are listening!!!

  12. Bryan says:

    I had a dual inguinal hernia so I had both of them repaired with mesh but I haven’t had any issues since recovering and I have been working and working out without pain. So there has to be something more behind peoples suffering I mean if most people return to normal life then there must be allergies at play here or crappy surgeons.

    • Jane Akre says:

      Bryan- the truth is no one knows why some people react and some do not. There has been a proposition to do pre implant assessment but that is not being done because no one would know what to look for.

      • Cindy Madrid says:

        I am seeking pre-surgical allergy test to the mesh. Wouldn’t you just do a regular skin scratch test using the prolene and look for inflammation? Seems pretty simple to me. I have experienced violent reaction to prolene suture in the skin in the past. I am trying to prove this allergy so I can qualify for a biologic bovine mesh tacked in with fibrin. It costs more and I am on medicaid. I have a large umbilical hernia due to a surgical wound from a laparoscopic gallbladder surgery. The small incision unzipped my belly.

        • Cindy Madrid says:

          I was able to avoid the polypropylene mesh and got a Coviden composite mesh. It is polyester with a polyglycolic acid absorb able suture type substance back fashioned like velcro. The mesh does not require suture tacking. My research has it that it will take 18 month for my body to “absorb” and expel this material. The polyester will make a softer scar and presumably not turn hard like the polypropylene.

          My repair was a modifiyed “shouldice” style dissecting the abdominal layers and constructing a closure over the hernia defect with muscle tissue. The mesh is placed in one of those layers.

          A little less than a week following surgery, I had a severe allergic reaction to surgical adhesive including chemical burns from steri-strips and hives from dermibond. These are clearing up with topical steroid creme, Claritan, benedryl and occasion low dose of Ibuprofen.

          I have a goose egg seroma over the defect repair site. It is firm and not sensitive to touch or pressure. Surgeon says it is what is left of the hernial pocket filled with fluid. Presumably it will resolve over time.

          Taking temperature everyday, there is no sign of infection. I had a bad reaction to narcotic pain med, oxycodone. This reaction had similar symptoms to infection so I was in the ER 3 or 4 day out of the surgery. Blood test showed no sign of infection having acceptable white blood cell count. Temperature was slightly elevated at 99.2F.

          I am to wait 6 weeks for recovery. My pain is less everyday. I have a home health aide and another adult in the house taking care of me. I hope to get physical therapy after Jan. 31, 2016, my 6 week mark. I had the massive incisional hernia so long that I am very de-conditioned from lack of mobility.

          I had a follow up visit with the surgeon on Jan. 5. No vitals were taken at the visit. Surgeon uninterested with post surgical allergic reactions or intolerance for pain narcotics. He felt the seroma. He told me I will not be seeing him again. The most dangerous thing is if I gain weight blowing out the tissue surrounding the repair creating more hernias around the mesh. The mesh will not expand with an expanding girth.

          I will keep you posted as I heal and even long term.

          I want to give credit to this site for allowing me to see the hazards of the polypropylene mesh and for allowing me to ask for the constructive defect repair dissecting the layers and constructing a closure over the defect. I am glad having read this site. Now, we will see the result in the coming months and years.

  13. Robert Barnes says:

    My childhood best friend has had multiple types of mesh installeed during a handful of hernia operations. He has suffered the same complications (constant fever, vomiting, distension, pain etc…) as so many you on this page. I am at a loss to even begin to describe how devastated this man’s life has been. He has lost his job, marriage, house, health insurance and now, his will to live. The degree to which he has been given the run around by the medical establishment is shocking, and quite frankly, embarrassing to me as a human being. Now, he is living in poverty and is unable to get treatment because he does not have insurance. I cannot fathom letting him die, but cannot see a way out for him. Confused and helpless.

    • Jane Akre says:

      Robert- I’m so sorry.As your friend could you direct him to Bruce Rosenberg 954-701-5094. Bruce talks to the doctors who are mesh aware and may be able to offer some direction. I’m glad he has you as an advocate. Thank you for writing. ~ ja

  14. Sam says:

    Ok so what happened to Bruce’s case? Is he without pain now? Besides his divorce there is no update on his pain and condition. I am looking for answers about a possible hernia surgery for myself. Should I choose a mesh repair or desarda technique? I am in KY. I emailed Bruce and waiting for reply. Thanks.

    • Jane Akre says:

      Bruce is permanently injured. He spends his time helping others. He carries on the best he can. I’m sorry the ending is not a happy one but he is amazing in his selflessness. I hope he is eventually seen as a whistleblower and receives a portion of recovery. ~ ja

    • Ang says:

      My husband had inguial hernia surgery on July 14,2014 and was A healthy man until the hernia and now since the surgery he is not able to work, is in constant pain in lower stomach,groin area,hips,leg! He breaks out and will swell after eating, days he looks juadice and others he Is pale, now has trouble with his breathing and standing or sitting still for any amount of time (42 years old and lost his sex drive) we are in Ky and are looking for a good Dr and a lawyer as the Dr who did his surgery says my husband is healed and can work doesn’t want to see him anymore! We have seen a total of 5 specialist and the only one who has done anything to help is a allergy-immunology Dr which has only helped with his breathing and itching problems!

      • Jane Akre says:

        Please reach out to bruce rosenberg… hernia mesh injured and educator.. 954-701-5094.. keep trying until you reach him…. it will be worth it.

  15. Gina Clark says:

    This story, its like reading my husbands lfe on paper…his surgery was in September of 2007! 2 days after the surgery he knew something was wrong…within the first month 2 trips to the emergency room & 7 visits to the surgeon…the surgeon said, theres nothing wrong with you…go see someone else…its been non stop doctors, pain management, vascular, cardiologist, spinal….on and on…..my husband has no desire to get out of bed…pain that never stops….and like you all say, no doctor knows what is wrong other doctors just make money off of you trying to say this is wrong or that is wrong…its all from the hernia patch/plug! I wait for the day the doctors have to admit their ignorance!

  16. diane says:

    This is similar to our story also. Over two years ago our life became a nightmare due to a “routine” hernia repair with a plug and patch. Immediately after the surgery my husband was in horrific pain. I fought worker’s comp for a year for another option/opinion while he sat in a gravity chair unable to move in life threathing pain. After making an appointment with a well-known mesh removal doctor that we were going to pay, another surgery was scheduled at Cedar’s. A huge meshoma and nerves removed from his body. He awoke and was immediately placed on oxycodone….he continues to live a nightmare. I am continuing to research and seek advice from the few surgeons qualified to repair (if possible) the damage that was initially done as the second surgery was not successful. The public needs to be aware that no “routine” hernia repair should be taken lightly. Everything in our lives have changed, my husband has lost all hope, and lives in a chair in unrelentless pain. Too many people are suffering from this horrific mesh and unaware of the potential for an unimaginable loss of life.

  17. Carolyn Kriebel says:

    I have spoken with Bruce several times, and need to contact him again. I had a ventral hernia of my abdominal wall and had a Bard Davol ventralex mesh put in. This happened June 30, 2010. I went back to the surgeon two times telling him I was having severe pain, diarrhea, constipation, and vomiting. He told me to go get nerve blocks and that it was not the mesh. He said “if it was the mesh he could just take it out, piece of cake, but it was not the mesh causing my pain.” He basically dismissed me.

    I survived bone cancer and have been in remission, healthy and active……until the “flesh eating mesh” ruined my life.

    I cannot walk correctly because there is so much nerve damage and abdominal adhesions. I limp and have to use a cane or crutch most of the time. I can’t sleep well. Now, I have 5 bulging discs in my back and one herniated disc in my neck from not being able to walk right. I have worked my entire life and now I cannot. I lost my job and was given Social Security Disability, but the company I worked for keeps denying my long term disability. I have to have this thing taken out of me. I vomit daily and take Zofran like it is candy to help with the nausea, but it is really not working well anymore.

    I found a doctor named Dr. Esam Omeish in Alexandria, VA who says he has removed mesh successfully. He was hesitant to even see me because again, he won’t take on other surgeons patients. My primary care physician who has known me forever stepped in and he agreed to at least see me.

    I am very nervous about having surgery again, because of it becoming worse than it already is.

    I still have not made a decision about having the surgery. I know I need to talk to Bruce first.

    I also filed a report with the FDA and sent them documentation that it was the mesh, but they say that they have not scientific documentation.

    Another suffering silently……thank you Bruce for all that you have done.

    Carolyn in Alexandria VA

    I had a hernia when I was in college and they repaired it the good old fashioned way with sutures and I never had a problem. This one is a nightmare.

    I have gone to several doctors who won’t touch me because the procedure was not done by them. They want me to go back to the original surgeon, who no longer does that type of surgery, he only works on breast reconstruction now.

    • Jane Akre says:

      Hi Carolyn- thanks for writing. Bruce Rosenberg is an unsung hero helping thousands of people with hernia issues. He is hernia injured himself. He founded a nonprofit Meshoma Foundation but has no website. He is up to date on the medical and legal aspects of hernia mesh, though he is not connected to either entity. His number is 954-701-5094. He really deserves some support and if anyone would like to, I don’t know anyone more deserving. Thank you!! ja

      • Carolyn Kriebel says:

        Jane,

        Thanks for responding. He did help me a lot. Did you have a hernia?

        I noticed you are responding to most questions on this website.

        Are you helping with the meshoma foundation?

        I will contact Bruce again, and let him know what the doctors are telling me.

        I am so sorry that he is still suffering. He truly is a hero, and completely selfless.

        Best,

        Carolyn

    • Joelle D says:

      Hi Carolyn,
      Did you have your mesh removed? I hope to hear back that it went well and you are recovering from this battle.
      Please let me know if Dr. Omeish was able to help you.
      Joelle

  18. Pat Cook says:

    Has any one had s successful mesh removal? I am considering having the mesh removed from a umbilical hernia I had repaired in Dec. of 07. Like every one else I have seen a lot of doctors trying to figure out was is wrong with me. It wasn’t until a piece of the mesh starting sticking out of my belly button that I made the connection. Since I started researching it, what a nightmare this has caused in a lot of people’s lives.

    • Shari says:

      Hi Pat Cook/ and anyone else who is considering mesh removal surgery,

      I had a large round mesh put in me in 2002. I had a slight surgical hernia and a 2 major nerves cut in half from a botched laproscopic surgery in 2001. I was told the mesh would strengthen my weakend lower left abdominal wall. I was in horrible pain and desperate to get better,,,as I relied on my physical strength for work ( I was a wildland fire fighter on a HeliTac crew, and a competitive horseback rider.) Like every one else I was not told anything about the mesh except it would make me better. I have been disabled ever since. After the surgery I was in worse pain, and in a wheelchair, no Dr.s would not even give me a pain pill or an MRI, I suffered a long time..as the pain pathway got stronger. I finally got some pain management so I could walk with a cain and do basic things. After a while dr,s and even some family didnt believe I was in pain or that anything was wrong with me. So. I went off pain meds. to prove that I was not some drug addict, and suffered, went back to a wheelchair and lived in isolation. The Pain finally got so bad that I felt I was being poked with a wire from the inside. I went to many surgeons and was told that nothing was wrong with me or the mesh. I had to suffer for 10 years waiting for my mesh to be RE -Called. Only then would they listen and give me a cat scan. But still I was turned down by the best surgeons in the country. The Dr. that finally removed it, was the same one who put it in. Since it had grown into my flesh for 10 years it was really difficult to remove. Upon removal they found that the mesh RING was broken and the mesh had folded into itself 3 x. It migrated toward my bladder and a major artery. If I had not been persistent , it would have eventually punctured my bladder, or sliced my artery,,,and I might have died. It was surgically extracted in may of 2012,. I am worse now. The surgeon had to remove a portion of my abdominal wall, internal tissue, and nerves. It was not the thin film that it was when they put it in. Instead, it was a large chunk of hard jerky like of my insides. The surgeon did not offer to put in a new mesh at the time, because he didn’t think I had a true hernia by looking at the catscan. I now am bed ridden with constant chronic tender pain,,and horrific stabbing pains if I ride in a car or try and stand to long the burning deep knife like pain is unbearable and drops me to the floor. taking my breath away. I was on a descent pain management program..but my State just made new laws limiting how much pain meds a person can take in one day. So,Too everyone thinking of mesh removal ;. Check and see what type of mesh you have and if it has been recalled and why. I know some peoples bodys just reject them no matter what. Know that it will cause a lot of damage to take it out. the longer it has been in, the more damage it will cause to take out. Unless its a matter of life or death…consider the risk of explant damage. I do not know how long I can live like this. I used to be a singer/songwriter and musician..wrote and published two c,d s, performed many stage shows, and like I said, had a career and life. I got a pathetic settlement, where the attorneys took 50%. I bought property and have a half built house, as I ran out of money. Anyone who lives on social security being disabled knows how hard it is to survive month to month .I live in an expensive part of country, so I didn’t even get enough $ to buy a livable condo or house. I was as frugal as I could be, and bought my land for cash at a county auction. If my house ever gets finished my life will be a little easier, as it is wheelchair accessible, and built custom for me. For now I am stuck in a nasty 30 year old 5th wheel next to my house, The shell is done, its enclosed with a roof , doors and windows, I am about 30,000 short and can not get a loan as I have no credit, even though I have all this paid for in cash. Anyway, As much as these horrible mesh companies and scumbag attorneys have taken from us.Some how we have to find hope and strength in each others stories, We cant let them win by giving up..no matter how bad the pain is or how unjust this all is, The corruption sadly runs deep, There has got to be a point of healing for the victims though. Please everyone keep telling your stories so others avoid pain and learn the truth about mesh before it is to late for them. My settlement amount was one of the highest they give because my mesh ring was broken..but you can get more of a settlement from a hot cup of coffee or a broken finger from a car accident. The amounts were all carefully orchestrated by huge teams of attorneys. the pharmaceutical co. the FDA. the lobby scum .For having our lives taken. and to live in torture . it is really amazing to me how far apart our society has become. almost like 2 races. The disgustingly wealthy corporate mesh company owners,. the corrupt wealthy attorneys that take half of the slap in the face settlement. ‘ The wealthy paid off FDA officials. Then, there’s the rest of us; honest, caring, trusting, hard working compassionate humans that get lied to by them ,hurt by them, and we are forced to live in poverty and physical pain. The gap between them and us is unfathomable, and they have no compassion for us. But, we can have compassion for them, as they have no hearts or spiritual wealth. They can not take that away from us. It may sound trite/.But, don’t let them eat your soul with the anger and injustice you feel, just keep spreading the word..so others do not fall victim to their sick cruelty and lies about their products, which are banned in the rest of the world. They are part of a messed up self centered society they will have to evolve to survive on this planet in the future. Hang in there everyone. write me if you need hope to get through another day, as I need all of you to get through as well. Peace.

      • I suggest that we try to be constructive in ways of disseminating “the truth about hernia mesh” to the general public. It is obvious public opinion isn’t going to change overnight. From the governmental perspective, we are a small population that means nothing to them. They are happy to pay out disability and force corps to pay out lawsuits. It is pennies to them. It is just enough to prevent sufferers from anarchy, but not enough to give us the resources to take real action against them. Keep in mind, both wealthy individuals and physicians have suffered the same fate as you and me. I am hoping they will do more to act on our behalf. The public is more likely to believe them, anyways. Use technology to spread the word to as many people as fast as possible!

  19. KImmelman and co the worst says:

    The piece mentions Kimmelman. From first hand knowledge I can tell you he is the most vile,disgusting slime with an attitude to match his ethics.Along with many from his surgical group If you ever have a hernia or any other issue stay as far away from Kimmelman and co as you can get. I might add that someone left a response on another medical blog that Kimmelman misdiagnosed something and the man then lost his leg. Please know that the complete history of a doctor before the surgery because after it will be too late !!!

  20. Kelly says:

    My story is the same as Bruce. I had surgery for a hernia in 2005 and have had pain every day since. Went back to surgeon said no problem, went to family doctor said it was all in my head. I am shock, crying and have been to the hospital with several CT scans, x rays and all doctors say nothing is wrong. I called the hospital records to get the lot number for products used and there are not any. After reading this article I will definitely pursue the issue now, my life has not been the same. Thanks for everyone who shared the their stories I have a little encouragement now trying to type through my tear filled eyes, I have lost 10 years and time lost at family functions and spending time with my grandchildren Any suggestions for a doctor to help me please respond.

  21. Linda says:

    Jane and all others: I have thoroughly read all of your experiences with mesh products and it is alarming. I will pray for all of you. I am scheduled to have surgery next month to repair an incisional hernia and the surgeon said he will be using mesh. The first hernia repair was in Jan 14 after an ileostomy reversal but the hernia came back. I told him of my concerns in using the mesh based on my investigation and he said if he sutured again, the hernia would come back, however if he used the mesh, my chances are better However, after reading your feedback, I am devastated and have so much anxiety I can barely write this.

    Please advise as the surgery is scheduled for mid Oct.

    God Bless you all.

    Linda

    • Jane Akre says:

      Linda- it is impossible to know who will react to mesh. If you have not had mesh yet, sutures will suffice sometimes. Check with Bruce Rosenberg 954-701-5094, who is hernia mesh injured and an advisor to many.

  22. Carlton says:

    I was hurt on the job in June of 2009. I was driving for a company that delivered appliances and maintenance supplies. I was in the middle of a delivery when suddenly my I felt this heavy, excruciating amount of pain in my stomach. When I let go of the stack of ceramic tile that I was carrying, I quickly grabbed my stomach and felt a huge bulge sticking through. Once I managed to basically push it back in and wrapped some pallet wrapping around my stomach and back to hold it in place. I stopped at a general store and bought the strongest bottle of Tylenol that I could find and finished the last two stops I had to deliver. After reporting the injury to my Supervisor, I went through the motions and all to finally have my repair done two weeks later. The initial Surgeon that I was referred to worked out of 3 different clinics and his office visits were very timely. Like for instance, a 10:00am appointment would tie you up until 2:00pm; and that was the norm. So I quickly requested to have another referral and finally found one on my own. He was well known, coming from a family of Doctors and had a daytime commercial that aired frequently. Falling the for the flashing lights, I just knew he could get the job done. Day of the surgery, all was well and my family loved his comedic side because he reassured my Wife and Mother that he took “GOOOOD CARE of me…” I recovered at home for about 3 weeks before he released me back to work, FULL DUTY. I was curious about the short recovery time and then being able to perform my job. He insisted that if I went on ahead with my normal range of work activities, that it would make the repair heal quicker and that it was totally okay to put a little muscle into it. So, I returned to work and was serious trying to take my time and go easy. My Boss on the other hand read the words, “FULL DUTY…NO RESTRICTIONS…” and sought to put me to the test. I loaded my truck slowly and carefully as I could before he approached me and reminded me that I had “NO RESTRICTIONS” Other drivers pitched in to help but he still wanted me to perform at my regular pace; I was one of his best drivers. Well, day 2 comes and guess what happened? I was in the middle of a delivery and the EXACT same thing happened except this time, the pain was not only in my stomach, but it was also in my rectum. I dropped to the street because the pain totally numbed my legs. The costumer whom I was delivering to this time actually called other maintenance men and they helped me get back into my truck while they closed my truck for me. I managed to drive to the ER and had my Supervisor to come and take my truck. While I was being stabilized in the ER, they tried to contact the Surgeon and he refused to speak with the ER Doctors. My primary physician whose office is located in the Hospital of the ER came to check on me and was aware of the Surgeon refusing to cooperate. So I ended up finding another Surgeon to fix the re-injury. After that surgery, he explained what happened. The first Surgeon stitched the mesh to my intestines and it tore when the re-injury occurred. Since then, my naval area is numb to touch still to this day. I have constant pain 24/7 and can’t lift much without pain. Off and on the bleeding from the rectum has continued. I went and had a Colonoscopy done and they said that I have Diverticulitis. My Primary Doctor thinks that this came from the 1st hernia repair and the issue of the mesh being stitched to my intestines. I sought after legal help and actually had an attorney to take my case. However, she pulled back because another Surgeon told her that the mesh could’ve migrated and that the claim wasn’t very valuable. Since then, I stopped pursing any legalities and have just dealt with the pain. I tried to set up an appointment to see the Surgeon whom performed the last repair, but the Work Injury Clinic whom I have to go through by referring me back to the Surgeon, feels that there is no need to see the Surgeon because of having stomach pains. Tests show that I have no hernia but I am in pain all the time. Now I am being told that possibly both of my meshes are on recall; I don’t know where to turn. In the meantime, the suffering continues. Somebody help me!

    • Jane Akre says:

      Please reach out to Bruce Rosenberg- 954-701-5094. He is hernia mesh injured and can direct you. Thank you!!! and I’m sorry.

  23. cindy says:

    I came upon this site thinking the prolene hernia mesh I have just may be causing the horrendous problems I’m having. In Nov 2013 I had gallbladder removal. Never really felt right. Feb was having severe burning bloat and distention and squeezing pain near inscion site. Went to ER. CT showed diverticulitis. I kept telling the Dr of this other pain. They had mo answers. Completed the meds for the diver continued to have burning, nausea squeezing excruciating pain with a buldge by the inscion site. Went to the ER at least four more times. CT’s done each time. Finally pne Dr. Told me to see the surgeon that did the gallbladder that it looks like a hernia that never showed on all the CT’s. Went to the surgeon. In two seconds he was ordering mesh and scheduling an OR. The night before the hernia repair surgery (open) I found out this surgeon was sanctioned and fined for two yrs due to malpractice. I was a wreck and gave him the bennifit of the doubt that someone msy have just been sue happy. WRONG!!! I had the surgery and have never been right since. Gastro problems, distention, bloat, burning, poking all where the hernia repair is. Repair wad done May 2014 it id now Sept. Numerous trips to the ER. More xrays and CTs. One dr says CT reads hernia is still there. Another surgeon says oh no was a mistake ct was read wrong. Another ER trip ct again. This dr asked who did the surgery. I told him as well as othets thst asked and rolled their eyes. Well this dr say my agony. He got up and closed the glass ER doors. He said if you repeat this I will deny it but please please go to a diffetent surgeon. I learned of 4 malpractice suits and failure to disclose a dwi when redoing his license.Omg I am just sickened. I did go to the chief of surgery who had a lookand said oh your just not healed and turned out to be friends with the initial surgeon. I went to my GI ( all mentioned practice in the same hospital and any involved in the Catholic health system.) The GI seemed troubled.He scheduled me for endoscopy and colonoscopy which I just had july. I woke up from pain on the surgery side twice during the procedure. More sedation was given. Findings were gastritous, hiatal hernia, acid reflux and an ulcer. I never had these problems ever! Another visit to the GI no answers he told me to go outside this system and handed me the name of a different surgeon. I did try another surgeon recommended but he would not see me conflict of intrest. In the meantime I have been keeping up with other dr appointments. Now have heart arrythmias since this surgery. Feels like something is smashing my diaphram. Dizzy spells, pressure on head, whooshing pulse on ear, twitching muscles and burning and tingling down neck back arms whole body like a zillion bees are inside me. I have just had 3mri’s and mra to rule out stroke ischemia or anything likd that just last week. Since these symptoms have worsened and the pain, poking, distention and reflux is unbeable. I have been researching for weeks. Full of anxiety which I am suffetet of diagnosed panic disorder for yrs. Yet another ER trip. Pvc’s pac’ coupled atrial tach tingle like brain fog all that. Labs good scan showing work I had done. This dear Dr took his time with me along with all nursing staff. He told me to make a call to see a certian surgeon that heads an academic surgical team. He pretty much insisted to see them . They are out of another hospital but have privilages at the other two I was at. I have two options for surgeons to call. I looked them up on health grades they are both 5 star ratings. Today was holy hell worst ever. Wanted to just end my agony. I kept on reading on every disease with these symptoms making myself insane. What I really think especially after reading all these posts that this mesh isbotched or infecting/affecting my body and nervous system. I am at wits end like all of you. I am 56 and never had these problems. Any advice is welcome. Can this affect your nervous system? I am scared to death and riddled with anxiety! Can’t sleep, move well or anything like I used to. Please please please someone help me. Thank you all who shared their stories it helps. I’m sorry for the lengthiness a big story to tell. Please excuse the typos as tears are dripping as I write msking ig hard to see. I hope we all find answers get the help we need and restored to better health. Thank you for reading.

  24. cindy says:

    A special thank you and note of appreciation to Bruce who shared his story. Know that your tenacity and your crusade regading this mesh is touching the lives of others and making a difference. Someone that cares and took the time to do the work. Respect for your fellow man and humanity.

  25. Julius says:

    Hi my name is Julius R. I had two hernia repairs with mesh and been havin medicals problems since the first piece was put in in 2003. Ive been goin to same charity hospital for all problems but one. I had second piece put in in 2008 and my medical problems got worst and now doctors are sayin it could be twisted. Im writing because i need some help if anyone out there can help me or give some info to lead me in the right direction i would be very grateful. Thank you for all you have shown no more silence

  26. Alison says:

    I had an incisional hernia repaired on 9/15/14 with mesh. A couple of days after the surgery, I had intense itching around my incision. I had three previous abdominal surgeries and had never experienced itching like this. The continued but began to move to my epigastric area and pubic area – this is the area where the mesh was. Over the next week, I began itching over all of my torso and began having a rash. I now have a rash and SEVERE itching on my back, chest, hips, arms, thighs, and stomach. I have never had any type of rash or itching like this in the past. I am wondering if it could be an allergic reaction to the mesh?? I have contacted my surgeon, and he said it could not possibly be the mesh. I am now very worried, because I suspect that it is an allergy to the mesh, and he is going to try and deny it. I can not continue a normal life with this rash and itching! Any suggestions??

  27. DEAR MR. ROSENBURG,

    MY NAME IS LINETTE SCHMIDTKE. I HAVE READ UR ARTICLE SO MANY TIMES, ALONG WITH THE SO MANY OTHERS SUFFERING. MY SITUATION IS COMPLETELY HEARTBREAKING ! SAD TO SAY, IM HEADING IN THE SAME DIRECTION AS YOU, I FEEL LIKE MY WHOLE LIFE HAS BEEN TAKEN FROM ME AND MY FAMILY. I HAD LAPR DOUBLE HERNIA SURGERY IN 2001 AND RIGHT RE-DONE 2002. APPRX MAY 2013, I EXPERIENCED THE WORST PAIN EVER IN LEFT SIDE. I THOUGHT IT WAS THE HERNIA ACTING UP BUT WENT TO E R AND SAME SURGEON FROM 2001/02 WAS ON CALL AND GAVE ME AN ANTI-INFLAMMTORY SHOT, RIGHT IN CENTER OF HERNIA. I GOT IMMEDIATE RELIEF AND WAS BACK TO WORK THE NEXT DAY. IM A LETTER CARRIER FOR THE POST OFFICE AND WORKED 60+ HRS A WEEK UP UNTIL 6-2-14, WHEN THAT WORSE PAIN EVER FEELING CAME BACK, BUT NOW ON BOTH SIDES, JUST LIKE THE YR BEFORE. I SEEN THE SAME SURGEON THE NEXT DAY AND HE SAID I HAD TO HAVE DOUBLE OPEN SURGERY, NO OTHER OPTION AND CERTAINLY DIDNT SAY NERVE DAMAGE WAS A POSSIBLE COMPLICATION. IM ONLY 39 YRS OLD AND HE SAID HES NOT GOING TO BE RETURNING ME TO WORK, I WILL BE ON PERMANENT DISIBILITY ,BECAUSE ONE SUDDEN MOVE COULD CAUSE CHRONIC PAIN THAT I WOULD ALWAYS HAVE TO LIVE WITH. I TOTALLY IGNORED THE THOUGHT OF THAT AND WAS TOLD OF A 6 WEEK RECOVERY. I KNEW ( JUST LIKE YOU ), SOMETHING WAS TERRIBLY WRONG. HE TALKED TO ME BRIEFLY IN RECOVERY AND NOT ONLY MENTIONED DISIBILITY AGAIN, BUT ALSO SAID THAT HE DIDNT FIND ANY HERNIA OR TEAR ON THE RIGHT SIDE, AND PUT MESH IN THE FRONT AND BACK ANYWAYS. THE FIRST 2 FOLLOW UPS WERE SAID TO BE EXPECTED, BUT THINGS TOTALLY TURNED ON ME MY 4 WEEK CHECKUP. HE WAS MAD, BELLIGERENT,RUDE, AND DOWN RIGHT MEAN AS I TRIED EXPLAINING MY PAIN. HE COULD SEE FOR HIMSELF AND DID A GREAT JOB OF RUSHING ME OUT, WALKING ME TO CHECKOUT,SAYING, MY PAINS NOT FROM THE SURGERY, AND THERES NO MORE HE CAN DO. HE HAD HIS RECEPTIONIST SCHEDULE ME AN APPT WITH MY PRIMARY DOC, ( WHOM I TOLD I NEVER SEEN BEFORE BECAUSE SHE WAS JUST ASSIGNED TO ME), AND GAVE ME MY LAST SCRIPT TO LAST 4 DAYS. I SEEN MY NEW DOC 2 DAYS LATER, AND SHE DIDNT WANT ANYTHING TO DO WITH ME OR THE PAIN. IT WAS 7-25 AT THIS TIME, SHE REFERRED ME TO A PAIN DOC, AND HAD TO WAIT TIL 8-11 TO SEE HIM. I BEGGED SURGEON AND PRIMARY DOC NUMEROUS TIMES TO CALL IN PAIN MEDS AND BOTH REFUSED. PRIMARY DOC ORDERED CATSCAN, TO SIDE WITH SURGEON ON POSSIBLE FEMALE PROBLEMS. THAT SHOWED FLUID AND SURGEON TOOK 4 WEEKS RETURNING MY CALL, ONLY TO TELL ME HES NOT GOING TO DO ANYTHING, IT WILL GO AWAY ON ITS OWN. EVERYTHING IS GOING GOOD WITH PAIN DOC. HE DIAGNOSED ME WITH ILIOINGUINAL NEURALGIA, HAS ME ON FENTYNL PATCH AND 4 NORCOS A DAY. IVE HAD 2 UNSUCCESSFUL NERVE BLOCKS. HE SAID ON 9-17, THAT IVE GOT TO FIND A NEURO SURGEON TO TAKE MESH OUT, HE CANT REFER BECAUSE ALL THESE DOCS ARE COLLEGES AND CANT CHANCE NEW ONE SIDING WITH OLD, AND CHANCING THEM BEING DISHONEST FOR HIM. AND SAID HE ALSO KNOWS HIM, HES A NICE GUY AND WOULDNT DO THIS ON PURPOSE. I HAVE AN APPT WITH NUERO SURGEON (NOT LOCAL) ON OCT 14. IVE BEEN READING SO MUCH ON DIFFERENT PROCEDURES BUT NOTHING SEEMS PROMISING. BUT AT LEAST NEURO SURGEON SPECIALIZES IN WHAT IM DIAGNOSED WITH. I FOUND INFO ON STRAINED MUSCLES A.C.N.E.S. AND REALLY CURIOUS IF THATS WHAT I HAD ALL ALONG. MAKES SENSE TO ME IMAGINING MESH AND SURGERY BEING APPLIED TO CONTRACTED MUSCLES, AND THE PAIN IT COULD POSSIBLY CAUSE. I WAS SO FED UP WITH THE LACK OF INFO BEFORE SURGERY, THE PAIN IM STUCK WITH, AND HIS LACK OF CARE AFTER THE SURGERY, I CALLED A LAWYER. IT DIDNT TAKE NO TIME TO GET A RESPONSE OF NO CASE AND TOO EXPENSIVE TO CHANCE THE 100,000 LOSS. THE LAW FIRM DIDNT EVEN GET MY MED RECORDS OR WAIT FOR NEURO SURGEONS THOUGHTS. SO HERE I AM, SUFFERING IN THIS RECLINER BEING AT LEAST HOPEFULL IVE GOT SOMEONE THAT CAN READ THIS AND ACTUALLY RELATE. I SURE HOPE THIS ISNT JUST A BUNCH OF BABLE, I TRIED TO JUST SPEAK FACTS AND KEEP THE PITTY TO A MIN. I SURE HOPE U GET THIS CAUSE IM COMPUTER ILLITERATE. HAHA ANY SUPPORT OF WORDS OF WISDOM WOULD BE GREATLY APPRECIATED AND I WOULD LOVE TO KNOW HOW YOU ARE DOING ALSO. THANK YOU SO MUCH FOR YOUR TIME AND ALL YOU DO FOR PEOPLE LIKE US. SINCERELY, LINETTE great2bnettie@yahoo.com

  28. Debra Cole says:

    It was a strange day today. My friend’s dog was taken to the vet. Its leg had been stripped of its skin, from its groin to its knee, and the vet sutured it all back up with a huge strip all around its groin. A $ 500 vet bill. It affected his penis and one testicle. It broke my heart..

    I have been very ill. I had hernia mesh surgery on August 26. There was very little pre-op. I have extremely rare blood which was not taken into consideration. I had had a few consultations with an advanced urologist and a vascular surgeon in February. My mom developed a tumor on her pituatary gland resulting in the death of the gland and I helped her through Christmas until now and helped Dad, who just got over colon cancer, on the farm clearing some brush, though I hurt really bad. I had a vaginal mesh placed in my body during a hysterectomy in 2008. Another urologist recommended this mesh, as I was to have the hysterectomy because the cells of the uterus were on the verge of turning into cancer. Two months later my mom read an article in a woman’s magazine that the polypropylene mesh was causing many women great problems. The hernia surgery was scheduled because I was having many increasingly bad symptoms. I didn’t understand exactly what these two doctors were going to do.The vascular surgeon examined me and told me I had tissue that was under my pubic bone. i was diagnosed with a small hernia a couple of years before this.

    At first, I thought they were going to remove the vaginal mesh. The vascular surgeon said he had removed many meshes. I did not realize he was talking about hernia meshes.. I had begun to lose my urine again, pretty badly, so I spoke to the urologist, who reassured me that he could fix the problem. He obtained my records from the hospital where I had my vaginal mesh done. He ordered a CT scan without contrast. I had previously gone to my regular gynecologist for an exam. I told him that I was having major problems with the vaginal mesh. I also told him I was filing a lawsuit against the mesh manufacturer. BIG MISTAKE. He asked an intern to examine me. I was in the stirrups when he began yelling and scolding me for hiring a lawyer, condemning all the lawyers for being out of line and being greedy. I was appalled and lying there in a really bad position. I spoke with the doctor and all he could say was “This mesh was the best thing we had to work with. ” I pulled the hospital records and began giving my lawyer necessary medical records. I got his number from the TV. I went to a woman gynecologist, who told me she could feel the mesh, but there was nothing she could do. She prescribed estrogen cream. I could no longer have sex with my live- in boyfriend, so I asked him to leave. It hurt too much to have sex. I began to have a sensation of bugs crawling down there and a foul odor. An old boyfriend visited, and we ended up having sex. There was blood all over us and the couch. I thought it was me, but later learned that the vaginal mesh had cut his penis. The mesh had migrated through the vaginal wall toward the opening. No more sex thereafter. I went to another gynecologist. He told me there was no mesh there. ??? So I went to have things fixed that were going south. I asked my family doctor to help me interpret what the surgeons were going to do. He ordered a CT scan with contrast. He wasn’t sure of the procedure.

    So I returned to the urologist who told me the best thing to do was to put a hernia mesh in. I said, “O my God,” but he reassured me that it was necessary and it was the best thing they could use. So did the vascular surgeon. Stupid me. Ended up on August 26 with a sore stomach and a horrible cough and an extremely bad time with breathing for several weeks by myself at home. I have just begun to work in my yard, raking leaves, decorating for fall.( Can’t sit through church services.) Afterwards I had a horrible pain. I went to my doctor who gave me hydrocodone 5-325, and lidocaine patches. Didn’t help much, but felt some better. Diagnosed me with a true slipped disc, advanced facet arthropathy , in addition to the mesh problem. I have been throwing up, extremely nauseous, and developed a severe kidney infection. I am so tired. I visited my friend and found out about the dog today. I am so depressed. And the cat next door disappeared and I am afraid my two are next. I have been fighting Bipolar Disorder, and Anxiety disorder and Diabetes forever.. Now– Another setback .I called my counselor for an appointment and was told he was leaving after 10 years of being “My Rock” I cried and cried. My old truck broke down. My daughter left her husband after many years. I have felt a pulling and a burning around my incision, like the skin is pulling apart. So I decided to look up Hernia Mesh this evening. And read Bruce’s story. Reminded me of Job in the Bible. Something led me here. Didn’t mean to write so much. Got a letter from the vaginal mesh lawyer.this week. Lots of terrible injustices to women by meshes and juries. Some major awards in the millions, some total denials with the same products. Varying state by state. It upset me very much. My claim is coming up this year .It’s been over 2 years of gathering doctor’s records. And now I have read the horrible stories on here and am too late again to avoid the mesh. I am terribly disheartened. 2 detestable meshes. I wanted to get married again and I miss the sex.and the company. The doctors said I was all fixed up and ready to have sex again and now I’m sitting here all alone, getting old, and scared to think about dating again with all my problems. I am sorry for everyone’s hurt. I am so sorry for Bruce’s real nightmare. But I am glad not to be all alone in all of this. Love to All. —Deb

  29. Jake's Wife says:

    Have you guys heard of Dr. Kevin Petersen in Las Vegas? He helps patients who have had mesh surgeries “gone wrong” and has done many, many successful mesh removals. You can see a video here: https://www.youtube.com/watch?v=2dgd-y1xZTg&list=PL361738F6A46ABDAA

    If this link doesn’t work or I’m not allowed to post it, go to YouTube and type in: Dr. Kevin Petersen on Non-Mesh Surgery. He sounds like a really good doctor who has helped a lot of people. He has lots of videos on youtube and some are from patients.

  30. I have read and lived this pain…………from Oct 25, 2010 when dr Boone did this surgery to Nov 5, 2010 when he took it and most of my muscles of my chest out….. woke up with a football sized hole in my chest covered with a sponge and tape on top….. smelling like something dead on the road……. 3rd surgery was with Dr. Amhad, a plastic surgeon well known in Ohio, where he took what grew back and made me look bigger than I was went I was pregnant, so big that I couldn’t see my shoes or to button and zip my pants….. it is now 2014 so much pain and no lawyer to take case, they are too interested in the trans-vaginal mesh and not worrying about the other victims US !!!! I talked to lawyer as soon as I got out of hospital and off iv’s at home…. this is sooo VERY PAINFUL !!! even though the mesh was taken out and tried to make better, IT’S NOT… IT HAS RUINED MY LIFE, EVER SINCE OCT 2010 HAVEN’T GOT TO HAVE SEX WITH MY HUSBAND…. I’M 50 YEARS OLD AND MY BODY LOOKS AND ACTS LIKE 100…. I CAN’T WALK, IT EVEN HURTS TO JUST SIT DOWN, AND SOMETHING IS INTERFERING WITH MY BREATHING… PAIN STARTS WHERE BOONE CUT FROM BREAST BONE ALMOST TO C-SECTION, LEAVING ME WITHOUT ANY TYPE OF BELLY BUTTON OR CORE MUSCLES THAT HELP MY BACK, WHICH WAS ALSO SCREWED UP BACK IN 2002…… WE HAVE TO FIND LAWYER FOR OUR PAIN, IT ISN’T JUST TRANS-VAGINAL MESH, SAME MESH DIFFERENT USES, MINE LEFT ME INCONSTANT, I CAN’T MAKE IT TO BATHROOM….. PLEASE IF ANYONE KNOWS OR HAS LAWYER CONTACT ME !!!

  31. Andy Richard says:

    The case of Bruce Rosenberg is an eye opening for many who want to got hernia mesh implant. Need to think critically before going for such surgeries.

  32. Cindy Madrid says:

    I am considering a large hernia repair. I know I am allergic to plastic. Is there an allergy test for the prolene mesh? I will not let the surgeon put this mesh in my body unless I know I will not react to it. I am also afraid of the nerve damage causing the chronic pain. I have a large incisional hernia from a gall bladder removal surgery.

    • Jane Akre says:

      Cindy- No one can offer you those guarantees in my opinion. You might consult with the Shouldice Clinic in Toronto or Dr Kevin Petersen in Las Vegas if either one of those is convenient. Allergic to plastic should be a contraindication in my opinion, but I’m not a doctor. It is however common sense.

      • Cindy Madrid says:

        Thank you Jane. I am considering the biologic mesh. The bovine mesh may not react like a plastic mesh. Have you heard anything about the biologic meshes?

    • Christy says:

      Hi

      I went to an Allergist who contacted Ethicon and requested the polypropylene mesh to do a patch test on me and they wanted to charge us $750. My Allergist went through my medical insurance and lucky for me they covered it. The Allergist put the mesh patch on my back for 24 hours after 24 hours I went back and they removed it. There was a perfect imprint of the mesh patch on my back, red and rash looking. I returned after another 24 hours and they documented. My Allergist said that once the air hits where the patch was placed it will get worse if I am allergic which I already knew I was but after 72 hours my entire back was a big rash and I was extremely sick. If I ever have to undergo another hernia or any surgery again I will definitely be tested before letting a doctor put anything in me again because once they do its to late. Good Luck

      • Cindy Madrid says:

        Thank you so very much! I knew I was lousy allergic to prolene stiches. I avoided the polypropylene mesh and had a Coviden polyester composite installed. SO far, so good. I was afraid of being allergic to the absorbable suture part of the mesh and I am afraid the surgeon may have used prolene stitches for the actual defect repair. I am awaiting long term ramifications if any at this point.

        I have a goose egg seroma over the repair that is not sensitive to pressure or touch. It is supposed to resolve over a long time.

        I reacted violently to the surgical adhesives getting chemical burns for steri-strips and adhesives that fixated monitors during surgery. I had hives radiating from surgical wounds covering my entire abdominal area. This is all resolving with topical steroid cream, antihistamines and Benedryl, occasional Ibuprofen.

        So far, there is no sign of infection and I and feeling better every day. I have to recover for 6 weeks before attempting physical therapy or going outside or driving etc. I am hopeful.

        Surgery was Dec. 17 and today is Jan. 7. Still healing.

  33. Kathy Sabatino says:

    I just want to keep my name and new email in the loop. I had a hernia repair done in 1994 and they put in the Ethicon Prolene patch (without ever even mentioning it to me). I thought they would just be sewn me up. I too woke up from surgery and immediately knew something was very wrong. I ended up back in the hospital for 9 days with internal bleeding. After decades of chronic pain and 2 hip surgeries (doctors all said the groin pain had to be from my hip not the hernia repair) I am still in pain and have nerve damage on the surgery side. I am one of the lucky ones to get most of the infected mesh taken out of my body, but it has left pain behind. I have tried many times to report this to the FDA, but it doesn’t fit the categories and spits me out of the system. They MUST take this off the market!

    Thank you,

    Kathy Sabatino

  34. denise schrader says:

    Sick of telling lawyers about my dealings with mesh, would like to get everyone together that has delt with this so that the courts can see it is just mesh. ..”ANY MESH HURTS, NOT JUST TRANSVAGINAL”, it is a new page under denise chuck schrader, my facebook… please like and explain what it has done not only to you but your family suffers as well

    • Christy says:

      I am with you… Financially drained no Attorney will help. I am allergic to Ethicon Polypropylene mesh it is hard and shriveled up almost pokes through my skin. The Surgeon wont remove it saying it is to risky. Second Surgeon will not remove it saying it is to risky. I am so sick.

      What kind of mesh was used on you?

      • Joel Haubenstock says:

        Go to this surgeon, he will remove it and help you.

        http://www.noinsurancesurgery.com/about-us.htm#gsc.tab=0

        • John Nix says:

          I am glad Joel had a positive outcome with Dr Petersen at no insurance surgery. My experience was the opposite. He removed mesh from me in 2014 and my pain levels and disability have increased since his surgery. Please be very cautious with him and his testimonials. Others besides me have had very negative results which don’t get published.

          • Jane Akre says:

            John, anyone should check out a doctor and yes experiences will vary. No we generally don’t bash someone here but your comment is being published. In the past you have gone on and on……rather unfairly I believe. One of the reasons mesh whether hernia or pelvic is so dangerous is that it cannot be removed safely, and in some people it causes horrendous complications. There is very little a competent doctor can do to remedy that fact. Your complaints really lie with the mesh manufacturers for not understanding who will react and for not finding a safer replacement to polypropylene mesh, in my opinion.

          • John Nix says:

            I am sorry if the telling of my experience comes off as bashing. I think it’s paramount those considering mesh removal know the truth..recovery from mesh removal is daunting! The surgeon should be as diligent in the recovery process as the removal process.

          • Jane Akre says:

            That should be part of the “informed consent” process, just how hard it is to recover from a removal of a permanent implant. Thank you for adding one more thing to the growing list of what true informed consent should look like. Working on a story on that now.

          • Kathy says:

            I was lucky enough to find a surgeon at Kaiser (my medical plan) willing to attempt removal. She did her best and overall I am fortunate to have most of the infected mesh out of me. The recovery was the hardest I’ve ever experienced and I still have pain, but it is much less than before. When I ask what limitations I should expect she reminds me that we were lucky that she was even able to stitch me closed. I was told before surgery to,”get me affairs in order”.
            It was very hard, but I’m glad I got it removed.

          • John nix says:

            I look forward to your story Jane. Thanks for all your effort.

          • FRANK DIMICHELE says:

            I have to agree. Many “great surgeons” are great because they know how to use “differential diagnosis” to determine if somebody will benefit from their surgical techniques. Many surgeons are not “jacks of all trades” and can only do one or two very specific techniques in a given anatomical region despite a wide variety having been historically practiced with positive results. Honestly, an autistic person would be one of the greatest surgeons. They wouldn’t be able to bullshit you, and would be extremely detail oriented when doing surgical consults. It’s too bad, you won’t see very many people with these brains in medicine, but they will show in IT departments.

  35. Ed Price says:

    WOW so many sufferers. I too had bilateral inguinal hernias repaired with bard 3d max in 09. It has now almost cost me my life. The pain is horrid! Prostate growing at an incredible rate, and in a strange way. Chronic inflammation. No possible way to hold a job. I have been probed and stuck to many times. Can’t tolerate anymore.Several doctors have told me it is a reaction to the mesh. BUT no one was willing to remove it. I have liquidated all my assets just to survive. All things come to an end one way or another. May God bless all you who suffer. My prayers are with you.

    • Jane Akre says:

      Ed- if you can Shouldice Clinic in Toronto or Kevin Petersen in las vegas… also Bruce Ramshaw in Daytona Beach… they are the most knowledgeable that we know of. Check with Bruce Rosenberg 954-701-5094 call him often to get through. He is hernia mesh injured and very aware of what’s going on.

      • mj says:

        This is what I would like to know : If these doctors are paid by mesh manufacturers , isn’t that a financial conflict of interest ?

        Do they get a commission for every mesh they implant for hernia repair ? In effect a salesperson for the mesh company ?

        just like doctors makes a commission on the sale of chemo drugs !

        • Jane Akre says:

          They are being paid for services rendered such as training other doctors not per mesh implant as you indicate. Yes that would be a conflict of interest but it could be said that being wined, dined and compensated for any service could be a conflict of interest as well.

        • Ed Price says:

          At this point without the finances and No insurance I am certain No one will remove it. Anyone Know of an attorney who will take such a case?

  36. Judy Chapman says:

    Does anyone know of a law firm that represents people permanently injured from a Bard 3DMax mesh from an inguinal hernia repair failure?? Hernia lawsuits are new compared to transvaginal mesh lawsuits. I found a hernia law firm but they only take Bard Kugel mesh cases. It looks me like there has to be recalls on a particular mesh for a law firm to want to get involved.

    I had a right inguinal hernia repair with this mesh in Nov. 2013 for a small hernia. Right after I had poking/stabbing pain in my groin and couldn’t sit up at the table or even the couch to eat. The mesh then let loose less than a week later giving me a huge hematoma, chronic pain and deformed me where I once had a nice flat abdomen. In August 2014 I had the mesh removed by a different surgeon but continue to have groin pain which hurts me every day at work just trying to do my job at the computer. My surgeon tells me I am at an elevated risk to get my hernia back. All this has been for nothing while others gain ($$) we only suffer.

    • Kathy Sabatino says:

      I too would be interested if anyone knows of

      a lawyer taking hernia mesh suits. My was a J & J

      Prolene patch. Thank you.

      • Christy says:

        Mine was also Ethicon Polypropylene I would be interested in starting a petition of names to take to a Law Firm. I feel like if we collect enough names an Attorney might consider going after them. Please share your thoughts.

        • Jane Akre says:

          Christy are you referring to hernia mesh? thank you.

          • Kathy Sabatino says:

            In response to: “Mine was also Ethicon Polypropylene I would be interested in starting a petition of names to take to a Law Firm. I feel like if we collect enough names an Attorney might consider going after them. Please share your thoughts.”

            Ditto! I had my shrunken, infected Ethicon Polypropylene hernia patch removed in 2011 after becoming disabled by it. I even had a total hip replacement because they thought the groin pain was from my hip. That did nothing for the pain because it was the infected mesh causing many problems since 1994. It hurt immediately after they put it in, but no one would listen to me. They just gave my pain meds and said it must be my hip.

            Please include me on any list to fight against J&J still using this mess of a product.

            Thank you,

            Kathy from SF, CA

          • Christy says:

            Thank you for the reply I will save your e-mail.

          • Christy says:

            Yes I am referring to hernia mesh

        • Jenny Bills says:

          I suffered for nearly 12 years with Ethicon’s polypropylene mesh for abdominal hernia repair. I was finally able to have the mesh removed, but 9 months later I am still often bed-ridden in extreme pain due to all of the damage the mesh caused. I too am a voice that would like to be heard by a lawfirm.

    • Angie says:

      I would also like to know of a attorney that would take a case for my husband! He has the Bard 3D Max Mesh and it’s ruint our lives ! My husband is not able to work and he’s health just keeps getting worse! We are working on finding a doctor in Ky to remove the mesh! It has been in him for 8 months and we have talked to Dr Petersen but there is no way we can afford $10,00 plus travel! My husband has insurance and we are living on my income only! He lost his job due to the Hernia and was hurt on a so called friends property and he didn’t have insurance at that time and they wouldnt help with his medical bills ! So needless to say that person is no longer a so called friend!

    • Angie says:

      Judy my husband is going through the same thing ! He had inguial hernia surgery on July 14,2014 and started having pain the next day and he has the Bard3d Max Mesh and has been to numerous doctors who say he needs mesh removal but we can’t get a doctor in Kentucky to help him! They just set back and let him suffer while they give him the run around and burn up his insurance! We need to get a lawyer ASAP for him but it’s not easy to find one and now my husband is so messed up he can’t work and has no income so we are fixing to lose everything we own!

      • Kathy Sabatino says:

        I’m also in that group. Had inguinal hernia repair in 1994.

        Constant pain from the day of surgery. Saw dozens of doctors

        over the years and was told the pain was all in my head. In 2000

        I had a total hip replacement because I was told my groin pain

        was from my hip. Finally about 4 years ago when my lymph nodes

        we’re being choked by the mesh and my groin was so red & swollen

        a dr at Kaiser removed most of the infected mesh. By them much

        damage had already been done to some organs. although it’s better after

        surgery I still live with daily pain.

  37. Kim says:

    Hello, I have been going through a lot of the same problems with mesh. It all started in 2012 with a routine hysterectomy and waking up the next day with a perforated colon. I spent 3 days in ICU, an 2 weeks in the hospital. About a week later I found out I had a fistula and a month later a stroke. 3months later I discovered a hernia(incisional) which was repaired with a mesh. Life has been hell!!!! After the hernia repair it seemed to be getting better 5months into it, I started having problems with the mesh which had to be taking out. Due to right hip, groin, leg, pelvic, and butt pain and even started to affect my bowels. I was told by the surgeon that the muscles were heal and shouldn’t be a problem. Nope!!!!! 2months later my hernia was back and had to have a bio-mesh put in. Since, Dec.2014 I had been in so much pain an been back in forth from GEN. SURG. to PC. It hurts to walk and especially sitting which causes swelling in that area. My recent visit to the ER revealed a meshoma and now I’m probably going to need surgery again. I have talked to a few lawyers about what has been going and am told they cant take my case. None of there lawyers handle hernia mesh cases and can’t help. Is there anyone who can help????

    Thank-you for listening to my story,

    Kim S.

    • Jane Akre says:

      Kim- Do you know the type of mesh you have? That would be important to finding a lawyer. I am hoping that lawyers will finally understand the enormous toll of polypropylene hernia mesh. If you don’t have your records, please gather them….

      • Christy says:

        I had the Ethicon Polypropylene mesh placed in me in 2007 and again in 2008. I have been sick every since. In 2014 an Allergist did a patch test and I was diagnosed that I am allergic to the mesh. It is hard as a rock and shriveled up it almost pokes through my skin. I would be interested in joining with others to take our case to an Attorney. Maybe if enough people join together an Attorney might listen.

        Christy

        • Jane Akre says:

          Christy- There are many lawsuits already underway… about 100,000 in the US. Please look at the legal section of Mesh News Desk to see what has transpired in court.

  38. Todd VanDiepen says:

    I have also had a left Inguinal Hernia that i have had repaired with a 15cm x 7cm piece of ULTRAPRO Mesh. In the last 8 months i have been very ill and have what they thought were diverticulitis infections and pain (same area of body) but after a colonoscopy, and low and behold no diverticula so the doctors have been playing prosses of elimination i have done an EGD due to esophageal pain like heartburn but wont go away the colonoscopy half a dosen blood testes a HIDA test and three CT scans the ones with the radioactive drink and still no help. I have had to quit working do to this injurry and have given up a lot of well life due to it. i just want to feel better dont care about money just want my helth back. I have an apointment as of 05/04/15 at 3pm so pray this surgeon is a godsend. i dont know if it needs to come out or just need the scar tissur bands cut away i dont know im not a dr. thankyou for having a place for people like us that need to talk about it and get a lil bit of faith that there is still help out there. Thanks

    Todd VanDiepen

  39. John says:

    I wanted to share an update with the forum. Next month I will be having surgery to correct damage to my left groin. Thanks Bruce for recommending me to Dr. Goldsteing he told me straight that he could correct the problem due to mesh complications. Extraction of the mesh for inguinal hernia were removed couple years ago. Doing much better stabbing pain in pudeldal nerve went from 100% pain to 5% which is not bad considering all the damage. God Bless.

  40. john says:

    Wanted to share Lidocaine infusions for the nerves. I got two injections one on the left and right butt in January 2015 now end of May and has helped my pain in the pelvis. As far as the pudendal nerve it did not do anything for me.

  41. Abandoned says:

    Dear John,

    Thanks for sharing about the lidocaine infusions and best of luck and prayers for your surgery scheduled this month!

  42. leyla says:

    Hi

    I need a surgeon in New York City to fix my hernias, umbilical and inguinal, without mesh, prefer Shouldice. In pain for years after multiple gyn and hip surgery. Can’t afford to go out of state/country. Does anyone have a Dr?

    Thanks

    Leyla

    • Jane Akre says:

      Leyla- It may not be convenient. check out Shouldice Clinic in Toronto, or Dr. Kevin Petersen in Las Vegas. Also Bruce Rosenberg would know at 954-701-5094. Hernia mesh injured who is up to date on the latest in medical care for hernias. He might know.

  43. Lynda Plumb says:

    Hi

    I not sure if I am in the right place , to answer a question

    I had an Inisc 8×4 hernia mesh was put in The mesh was Sepramesh made up of bio polypropylene and seprafilm

    ..was done in 2007 ..every day day I have pain and other health issues from this … Am I right in saying at, a lady has gone to a lawyer to get the FDA to it going on the market, due to a death of a family member who died with just having Seprafilm put in

    How does this leave us that have had both in

    Many thanks

    Lynda

    • Jane Akre says:

      Bruce is available at 954-701-5094 thank you.

      • Beau says:

        Hello,

        I emailed Bruce. I just had propylene mesh for 2 inguinal hernias 4 weeks ago. I am having prolific itching on my palms, feet, ankles, wrists, neck and all thin parts on my body. My doctor told me this week in the follow up he has never heard of problems with mesh or titanium rivets. I have had metal allergies my whole life, titanium, rodium, vandium, nickle, and silver. I can only wear 14k gold. I have been losing sleep and having blurred vision. My hernia surgeon basically told me it was SC allergies and referred me to an allergist. I am meeting the allergist Wednesday the 19th. The hernia office is supposed to send a sample of the mesh and titanium screws but they have been very very reluctant to provide and information on the manufacturer. I am 36 years old, always been healthy and now freaking out because of the itching. It is the worst hell imaginable. I want this crap out of my body! Please help me!!

        • Jane Akre says:

          Bruce is your best bet for advice. Make sure you have all of your medical records. Where are you located?

        • Christy says:

          Hi

          I had the Ethicon Polypropylene placed in me in 2007 and again in 2008. I knew something was wrong I could not recover from the surgery and I broke out with this bad rash on my back, I itch on the inside, nausea, the mesh began to turn hard and almost pokes through my skin. No one would listen to me for years. Finally in 2014 I found an Allergist who fought for me I think he didn’t think I was allergic but he wanted to know if something like this could really happen. Went to the hospital to request my medical records and you also have to request the nurse notes because that is where it is written what mesh was placed in you with the brand and lot number. My Doctors office contacted the mesh company and they would not supply us with the mesh patch. My Doctor found a company where we could buy the mesh patch for $750 it took a while but the Doctor convinced my insurance company and lucky for me they covered the cost. They placed the entire patch on my back and covered it. I could not touch the area on my back, no shower or bath for three days. After 24 hours I went back and they removed the patch there was a definite outline that was red and bumpy, returned in another 24 hours to document, returned in another 24 hours by day three my entire back where the patch had been placed was red and rash. The Doctor said once they remove the mesh patch it would get worse if I was allergic and it definitely did. I became very ill almost like my body was being overdosed on the mesh. I have been off work for over a year it is like it is attacking my body. Two surgeons and no one wants to remove it because one patch was placed in my femoral which would be extremely risky. Good Luck & feel free to contact with any questions.

          Christy

          • Jane Akre says:

            Hi Christy- Thanks for the tip about the nurses notes….. Could you please explain further what a mesh patch is? Are you referring to something that is essentially an allergy test? Thank you.

          • Christy says:

            A mesh patch is the patch that they place inside of you to repair the hernia. My Doctor ordered that exact same mesh patch and tested it on me by placing it on my back and covering it with paper tape and then removing it after 24 hours.

            I hope this helps, please feel free to e-mail me if you have other questions.

            Christy

  44. MMD says:

    I had a tummy tuck in 1993 and had no idea that my health issues could be tied to the Marlex mesh that my doctor had used during surgery. After surgery I complained of pain in my left leg and the dr. said it will over time go away. I have suffered with constipation, bloating, fatigue, weakness and too much name. I have just associated it with age. I have seen all types of doctors and have been given meds after meds with no explanation or origin of where my pain comes from. As said in the previous post I look normal but in pain within. I have no idea where to go or where to begin. After reading all the comments I am wondering if this is my issues.

    • Jane Akre says:

      This is the first time I’ve heard of mesh used during a tummy tuck. Interesting. Do you have your medical records so you can see what type of mesh was used and how much? The general rule is the more mesh, the more mess.

  45. ACurtis says:

    Interesting, Jane. So if my surgeon only used a 6″x6″ square–and he “fashioned it to fit in the preperitoneal space to reinforce the area” (hernia was just above the umbilicus), which I take to mean he cut it smaller to get a piece that he needed size-wise–then sutured with a Prolene suture–I might not have a huge mess in getting this back out? Because I think the area where I am having pain/issues is pretty much darn near where he did the surgery back in 2002.

  46. clem says:

    I have a hernia and they want to sew it up and use a mesh, so if the polypropylene is not safe then what mesh material? I go back tot he doctor in two weeks and will discuss it with him. Also will call bruce

  47. Jerred says:

    Hi everyone, I had a 4″ x 6″ physiomesh implanted in December of 2014 to repair a hernia from a previous lymph node dissection surgery, after almost a year the actual incision has healed and doesn’t necessarily hurt but all along the edgesit feels like steel cables are poking me. It has seriously affected my mobility, my sex life, and my overall physical shape. I cant find a doctor who would even have a consult with me because im guessing they don’t want to dirty their hands. The last straw was when I finally went back to the idiot that inserted it and told him I needed pain management, hoping for a nerve block. The doctor felt my stomach for 30 seconds and then “diagnosed” me with heartburn.

    after that ive pretty much given up, I don’t know what else to do, any suggestions would be greatly appreciated.

    Thanks,

    Jerred

    • Jane Akre says:

      Please contact Bruce Rosenberg… 954-701-5094. Her is hernia mesh injured and very knowledgeable. He has a nonprofit addressing mesh injuries. keep trying because he is injured and overwhelmed.

      • jason says:

        had an umbilical hernia repair in 2014. 4 months later the hernia felt fine but I was getting wierd pains. Back to the doc, surgeon office. They checked me over said the repair is fine. They could not explain the issue. 8 months later more wierd pains and another visit. you guessed it normal, the repair is fine. Well now it’s been almost 2 years and I’m getting pains in my side and groin area. The crazy thing is the area that was fixed feels fine, but its almost like I have nerve damage I that aera. It’s very sensitive like it felt when. I had the original hernia. This sucks and I hope it’s not getting worse. Seeing the doctor said the mesh was only the size of a quarter to make the repair. I feel like crap and am very tired. 8-10 hours at work and I’m exhausted. I just wish I could figure out what the heck is going on. And like everyone else the doc said you’ll be in and out back on your feel in about a week. Yeah, he was right about that now 2 years later I’m having issues. My eating habits are good. My biggest concern back then and now is when I have to go to the bathroom I have to go asap or the pain gets worse. It be nice to have a normal bowl movement. I wish I NEVER would have had the mesh used. I truly believe its all related to that. I have a super high tolerance for pain so for me, to feel it means for the normal person it be like a dagger, it just freekin annoying and it nag’s and nag’s. I hope it does not get worse. Roughing it out, but I fear after reading g and finding this site, it may get worse.

        My new as I a call them pains are center of stomach sometimes it hurts like bad when I bend over. Abdominal pain, light groin pain and occasional gonad pains. Latley it been more random pains and like I have indigestion with tingling feelings. Might sounds wierd but if I get super bad diarrhea, it like a total relief. Painful but I seem to feel better. The problem is I’ve talked to others and some people are 100% fine while 10% say something is not right. Either way I’m just sharing my story as someone else reading this whi is considering mesh repair don’t do it! If you’ve come here there is a reason.

        In my case I can function but I feel like crap take over the counter stuff drink more thank I should now, and try and lay around flat as it seems to relive it. It sucks. And the doctor who preformed the surgery looks dumbfounded as to my issue . really? Like I told him it like getting punched in the stomach all day long, and depending on the lunch is where the pain is. Anyway, if I get worse or better I’ll update my issue. Best of luck to all. Mesh is not the way to go!!!!

  48. Phil says:

    Although Alloderm mesh ended up deemed really protected, latest studies introduced by patients’ display that AlloDerm meshes are connected to serious problems. These consist of significant infections, abscesses, irritation and inflammation, contusions, extreme pain and pain and the recurrence of the hernia. Due to these issues, further surgical procedures have been required to get rid of the mesh and fix the hernia yet again.

  49. Steve says:

    Shocked to see such severe complications related to hernia mesh. The worst part is many are not aware of such complications.

  50. Christy says:

    In 2007 I had the Ethicon Polypropylene mesh placed in me for a hernia repair and placed again in 2008. After the first Ethiicon Polypropylene mesh was placed I knew something was wrong. The mesh eroded, I broke out with a rash on my back, I was nausea, tired, I felt like I could not recover from the surgery. I contacted the Doctor who pretty much ignored me and told me I was fine. Not knowing at this time it was the mesh that was causing me to be sick I had to again have another hernia surgery where again the Ethicon Polypropylene Mesh was placed. I have been getting sicker and sicker over time. My body radiates with pain, I itch on the inside, random rashes on my back, nauseated, respiratory is compromised, insomnia, depression, anxiety, erosion of mesh, the mesh is hard, shriveled up and almost protrudes through my skin. This only goes to prove the longer this defective product remains in me the sicker I am going to become. 2015 Allergist Dr. Mark Rose performed a patch test on the mesh and it came back that I am allergic and the mesh needs to be removed. I don’t know if this is possible. One of the surgeons who put in the mesh refuses to remove it. The surgeon said it would be to risky, could cause more damage. I cant continue to live like this…. I have been off work for a year, lost my job and my life savings is being depleted. I cannot find an Attorney, they only want Transvaginal mesh but what Attorneys do not realize is this Ethicon Polypropylene Mesh is dangerous and there are thousands of people out there just like me.

    P.S. Ethicon charged me $750.00 for the mesh patch for Dr. Rose to test on me, luckily at that time my insurance paid for it.

  51. sandy says:

    when I had hernia repair surgery the surgeon stated he used dissolvable mesh; however, many complications later I found out that the mesh did not dissolve. The surgeon had stitched the mesh to my bowel (common procedure I was told) and the mesh had perforated my bowel -In January 2014 I was hospitalized with sepsis, kidney failure, and acute bronchitis. I was in the hospital (ICU) for a week and when I was discharged I was very weak and I had developed a blood blister on my abdomen. My doctor was not sure what the blood blister came from and I was discharged on a Friday even though and my abdomen was sore. I was weak and I had fallen and the blood blister had broken (Saturday). I was taken to the hospital by ambulance and underwent emergency surgery twice to clean the dead tissue from my wound. The surgeon told my family it was very serious and it was possibly I would not make it. My abdomen was filled with dead tissue. I had a serious bacterial infection known as necrotizing fasciitis. Necrotizing fasciitis is an infection that starts in the tissues just below the skin and spreads along the flat layers of tissue (known as fascia) that separate different layers of soft tissue, such as muscle and fat. My infection was located in my abdominal wall and is fatal in 30%-40% of cases.

    Necrotizing fasciitis is a term that describes a disease condition of rapidly spreading infection, usually located in fascial planes of connective tissue that results in tissue necrosis (dead and damaged tissue). Peritonitis is an inflammation of the peritoneum, the tissue that lines the inner wall of the abdomen and covers and supports most of your abdominal organs. Peritonitis is usually caused by infection from bacteria or fungi. Necrotizing fasciitis is a serious condition that is often associated with sepsis and widespread organ failure. Necrotizing fasciitis refers to a rapidly spreading infection, usually located in fascial planes of connective tissue that results in tissue death (necrosis). Peritonitis can rapidly spread into the blood (sepsis) and to other organs, resulting in multiple organ failure and death. The first symptoms of peritonitis are poor appetite and nausea, and a dull abdominal ache that quickly turns into persistent, severe abdominal pain, which is worsened by any movement.

    An internal fistulae—(when an abnormal connection develops between organs that do not usually connect). The surgeon discovered that I had a bowel perforations caused by the vicryl mesh. The contents of the bowel flowed into my abdominal cavity, leading to a variety of problems, including peritonitis. I have an open wound on my abdomen 22 cm wide by 18 cm. The surgeon stated that this was the largest wound he ever dealt with. I was in the hospital for approximately a month and then sent to a nursing home for a month. I had a wound vac on my abdomen. I had other numerous admissions to the hospital during this time. I also was on TPN (this was liquid nutrition) that is intravenously given to me through a pic line that was inserted into my arm. I am not allowed to eat or drink. The results of surgery is the loose bowels due to having a bowel resection. This I am told I will have to deal with the rest of my life. All this due to mesh! Who knew.

    • Jane Akre says:

      So sorry Sandy….. mesh anywhere near the bowel is a bad scenario which you clearly have first hand knowledge of. Sepsis is a real danger. We already know of deaths from basically blood bacteria from mesh. Are you finding the docs agree about the role mesh has played in your condition?

    • Ron Vilarino says:

      Diet changes and herbs have helped me fight infections that I believe are caused by my mesh screen. Antibiotics have only partially helped me. For me, long-term help has been using natural methods for pain and infection. Get together with a good Acupuncturist and natural doctor of medicine for help with herb use. Also, an doctor of Osteopathic Medicine has helped me breakdown the scar tissue that was causing obstructed bowels and fascia issues. Western medicine doesn’t really know what to do or is afraid to help due to liability.

  52. Beth Sheehan says:

    Do you know of any surgeons that do non hernia repair in Colorado!

  53. Ron Vilarino says:

    I need abdominal mesh screen removal. I live in California. Anyone in CA that you would refer me to?

  54. Pa Peggy says:

    Good job Bruce … Bring them down to there greedy pockets … You are a David after Goliath…

  55. Lori says:

    Glad you had a good outcome. Dr. Kimmelman disregarded me when I told him I felt like I had an ovarian torsion as I lay in a hospital bed for 5 days on a morphine pump only to have exploratory surgery which revealed severe ovarian torsion and resulted in my having a salpingo oopherectomy. His associate, Camile Sader, performed a bilateral lap hernia repair with mesh in 2011. Worst pain from any surgery I ever had. I notified him and his office multiple times about the chronic severe pain but was never afforded the common courtesy of a return phone call. Once the dr operates they don’t want to deal with any complications from the surgery. They just write you of as a neurotic pain patient.

  56. Geof Savage says:

    I suffered a blunt force injury in 2009 that supposedly injured my right groin area (it did). Following laparoscopic surgery with a Kugel Composix patch, I have been in pain every since. I still have a small bulge area on my right side. Laying down is not such a problem – but walking, or standing, or sitting for extended periods can, and usually does – set the groin area into a painful, aching nightmare. I have had numerous doctors (VA) tell me that – “everything is fine”. With the constant pain, how can everything be AOK? It is not. I now have a tumor on my right testicle (same side, cause unknown). I did contact the Shouldice clinic in Toronto, Canada, and they referred me to your site, at least for some possible advice. I have been advised that the ‘removal’ surgery could be risky, re: nerve damage. I did have a ‘nerve’ test (EMG) performed in the VA hospital, Portland, Oregon in 2014. The results were – “the nerves look fine, BUT, something may be rubbing on a nerve” (migration?). I do realize that the majority, if not ALL the Composix patches, have now been removed from circulation, and implantation, per a ruling from the FDA. The patches have 1. come apart- 2. folded – 3. migrated. Any suggestions? The surgery I had performed was at the Orlando, Florida Regional Hospital, downtown Orlando. As far as I am concerned, any interested party, doctor, is very sketchy about removing the mesh. My belief is that if the mesh if left as is, it will in time, become much more damaging to other organs, and my general health. Are you, can you refer me to any doctor that specifically deals with this type of mesh? I am scheduled, through the VA hospital, Gainesville, Florida, for another, more precise CT/MRI in September or October of this year, 2016. The results I receive can be presented to any doctor of my choice for analysis. This is now an issue with me that basically determines all my daily activities. I understand the possible risks, but ……. I prefer to not take pain meds to mask over or make the issue go away. Thank you. Geof Savage rockyflyer@att.net

    • Jane Akre says:

      You bring up some really good points….Docs seem across the board to deny that mesh can cause pain. You know “everything is NOT fine.” Docs are afraid of medical malpractice claims as you know so reluctant to remove mesh or acknowledge it is the problem since it is the standard of care. Good for you to avoid pain meds. Shouldice is good….. kevin petersen in Las Vegas is involved in mesh removals, Bruce Rosenberg is a patient advocate and very knowledgeable. 954-701-5094. The VA hospitals do not have a good reputation in dealing with mesh, just speaking generically, not this hospital specifically, so you may want to consult further before going there.

  57. Ron Vilarino says:

    I have found pain relief from mesh screen complications by going to an acupuncturist. For infections, research herbal remedies to avoid meds addiction. Also, a doctor of Osteopathic Medicine, who is a surgeon, can manipulate internal scar tissue to help reduce or eliminate pain. This is what I have had to do, since medical doctors won’t touch you due to liability. A mesh screen is like you have a criminal rap sheet! Nobody wants to deal with you! Rosenberg is busy, he was never able to contact me, I talked with Dr. Petersen, sent my operative reports, he never followed through with my situation for whatever reason. I have literally taken to solving the problem myself. I even break down the scar tissue in my abdomen by massaging myself. Seek Holistic practices for help, that is the only path that I have been able get some relief and healing.

  58. Joe Vickers says:

    Is prolene hernia system the same mesh as physiomesh . Answer is nowhere to be found.

  59. Chris says:

    Discovered this website just after being diagnosed with inguinal and umbilical hernias, but before surgery. Is there such a thing as safe mesh? Should I do a no mesh repair?

    • Jane Akre says:

      The overwhelming cry would be YES if you can find a doc to do a suture only repair, that would be ideal. Check out Shouldice Clinic in Toronto or the DeSarda Method.

      • Chris says:

        Thanks, Jane– I’m researching Shouldice right now. Will look into DeSarda as well.

        • Jane Akre says:

          Desarda is an East Indian method of repair. some US surgeon do it, is my understanding, particularly those who were foreign trained. Bruce Rosenberg knows far more about this than I do 954-701-5094. If you can avoida mesh repair the first time, it would be wise to do so…is my opinion

  60. Lana W. says:

    Hello,
    This is on behalf of my husband who was implanted with Ethicon mesh May 2015 for an inguinal hernia and now has burning. It is not constant but does occur intermittently. It almost brought him to his knees on a trip to Canada. His family doc says the surgery had failed. I do not want to go to anyone – he cannot have multiple surgeries as it affects his already existing short term memory loss – which is still under diagnosis. We are moving to Gainesville, FL shortly – is there anyone in G’ville, FL that can perform a consultation – if not we don’t mind driving to Jacksonville, Orlando or Daytona to have his hernia checked out. Is Dr. Bruce Ranshaw someone we should contact. I don’t trust anyone after reading this…. if I need to contact Bruce Rosenberg I will but maybe others know on here? Thanks in advance.
    Lana

    • Jane Akre says:

      Bruce Ramshaw is now in Tennessee
      https://www.healthgrades.com/physician/dr-bruce-ramshaw-x6wpd

      Bruce Rosenberg is in Florida 954-701-5094.

    • Angie says:

      Lana I feel for you and your husband as I have already been through all of this with my husband since 2014 and he had a inguial hernia with Bard3D Max Mesh and his body started rejecting it the very next day,It took us almost a year to find a surgeon who would remove the mesh.When my husband had his mesh removed he also lost 3 major nerves in his groin and is in constant pain,not able to work at the age of 44 and keeps getting denied his disability benefits and now he has another hernia along with cyst on his liver,enlarged prostate, depression and so much more . I can tell you I called Bruce numerous times and he will not return a phone call and if he does answer by some chance he will tell you that he needs to call you back.Well I’ve been trying to talk to him for 2 1/2 years now and I haven’t had any luck! I will keep you and your husband in my prayers!

      • Lana W. says:

        Thank you Angie – I am going to call Dr. Bruce Ramshaw and see if there is a way to get in to see him. It’s worth the flight.

        • Angie says:

          Lana Bruse Ramshaw is one of the best around.He was in Florida when my husband had his mesh removed.My husband has another hernia and we plan on going to Tennessee to see Dr Ramshaw to help him with this one since that’s not far from home! I wish you and your husband the best of luck and will keep you in my prayers!

  61. Angie says:

    Oh and I was talking about Bruce Rosenberg not taking my phone calls

    • Jane Akre says:

      Angie- I’m sorry. Bruce is severelely injured. He gets about 20 calls a day from mesh injured. He works tirelessly for others with no compensation. Keep trying… it is not a personal slight.

  62. Marina says:

    After 26+ years of sciatic injury from Marlex Mesh implant for obturator hernia, now the mesh has moved. Told by one specialist that the mesh has to come out; told by another that I will have more problems and pain if it is removed. Waiting for family doctor to find a surgeon in Toronto familiar with mesh removal (?), with whom I can have a consultation, but expecting the wait to be very long. Can relate more to experiences of Rosenberg and others who had mesh implant for hernia repair, than with ladies who had TVM. Meanwhile, miserable with pain, nausea, and fear. Life on hold.

  63. Phyrun Heng says:

    So far so good. I’m reading all the horror stories and it scares me. So far perhaps I’m lucky but I have inguinal hernia on both left and right side. Operation done on 12/12/16 and now it’s 1/3/2017 so it’s been 3 weeks now. No pain, didn’t even take any medications after the surgery. just the very mild tugging sensation sometimes in the abdomen, sometimes on the inner thighs which occurs once in a while. According to surgery report, Dr used Covidien Mesh 15x10cm 70% collagen, 30% polyester. I’m keeping my fingers crossed that I don’t have any chronic pain down the road. Should I be concerned?

    • Jane Akre says:

      Please get on with your life and just be smart… no weight lifting or heavy exercise for awhile…..We are wishing you the very best!

  64. Tony V says:

    Where is the light at the end of the tunnel? I was implanted with plug and patch marlex in 2010. I lost 40 Pounds and have sexual dysfunction as well. Everyday I feel extreme kicked in balls pain in the testes, gut wrenching twisting stabbing pain inside abdomen, and burning shootingpain all down leg/thigh/groin/six pack. This aggravtes my spinal degenerative conditons and i cant stand up str8. I have systemic infections of mrsa because the doctors would not acknowledge complications with the surgery. I wake up in pools of sweat when I can sleep. I’m now miserable and grumpy to my amazing wife and I can’t seem to shake the feeling. This isn’t me. The old me is dead. I used to fish and hunt and hike and go bowling, work on cars and in the garden. Now I have been on my couch since 2012. Cant walk morethan 5 min cant stand more than 5min cant sit without feeling a knife in my gut. Life sucks with mesh!!! P.s. I used to have extreme hate for the implanting surgeon but I forgive him now i know he didnt expect this ormwant this to happen to me, but I’m still ruined.

    • Tony V says:

      Also I was only 22 when i was implanted and my life taken away.

    • Jane Akre says:

      Tony- Can you talk to Bruce…..954-701-9054,,, keep trying he is tough to reach. I hate to hear you are suffering if there is anything that might help you, Bruce would know.

  65. Audrey says:

    I am going through some other problems since my bilateral hernia surgery on 6/5/15 and have a question, however, how can I help. I will run an article on this if you would like.

  66. Meredith says:

    Unfortunately it looks like I came to the right place and it is truly unbelievable that this is happening to so many people. In my case, I feel like a guinea pig because I have had mesh for a very long time and have suffered with a variety of illnesses over the years. In recent times I was diagnosed with several things at one and they all are located or are affecting the pelvic area and my legs. These issues are neurological and severe; some are not reversible. To think that there could be ANY logic involved when it comes to placing a Petroleum based product inside the human body is beyond measure ~ insane!! I do not know the exact condition of my mesh but hoping there is a chance of removing it and having it analyzed. Even though I am female I do not see view this as a female issue but rather a health issue for all people including the unborn. Certainly the makers of my mesh know who I am and who knows…perhaps they have observed me over the years without my knowledge. I think there are so many responsible for this catastrophic failure in medicine …placing blame is one thing but getting well should be the focus of all of us. We should NOT be financially responsible for the process of trying to regain our health…if it is even possible. And for crying out loud doctors must stand up for us and work toward safer solutions. EVERY patient should have a CLEARLY stated opportunity to understand exactly what is being placed in their body and the complications it brings along with a warning that describes the ingredients of the materials and the illnesses that the guinea pigs have suffered.

    Signed,

    A Petroleum Guinea Pig

    • Jane Akre says:

      You are so right Meredith… True informed consent is severely lacking. If women saw a video of a mesh implant as part of informed consent, she would never agree to have it done. Hernia complications- do doctors not know or would they rather not know?

  67. Frank Williams says:

    My comment is for anyone that has a hernia and needs surgery. I had inguinal hernia surgery 4 years ago and thank God I have had zero problems since that time.
    My story is this…I was in terrible financial shape at the time that I decided I really needed surgery. I had suffered for years. Because of my financial predicament, orange county was going to pay for my surgery 100% from a doctor that was volunterring his time. I interviewed that doctor. I asked him how many hernia surgeries a year did he do…he was a general surgeon that performed many different types of surgeries…i asked the doctor if he used mesh..and he replied…yes, every time. at that moment i knew i had the wrong doctor. 1. he only does a few hernia surgeries a year 2. he “always” uses mesh. I thanked the doctor and i continued researching for a “hernia specialist” in florida. I found one. His name is Dr. Tomas in Ft. Myers. This was not a “free” doctor. I dug deep and coughed up $3000 dollars. dr. tomas does nothing but hernia surgeries. more than 1500 already. i begged the dr. not to use mesh. i had researched hernia surgery and read about all the horror stories. dr. tomas said he might need to use mesh and he would know only after he cuts into me and can evaluate the condition inside…if it is strong enough to hold the sutures and not “shred” or if it is weak then he will need to use mesh. Fortunately, my internal condition was super good and i was delighted after the surgery to learn it was mesh free. that surgery was in 2012 or 2013, i dont remember now. but i am happy to say that i have had zero issues. no pain, no anything and a very small incision scar. my advice…is push hard for mesh free surgery…push very hard….Good luck!

  68. chris says:

    im in search of a dr to remove physio mesh and perietex out of me i had them both implanted in 2012 and now suffering from chronic pains in my groin i cant walk,stand,sit, or even lay in them same position for a period of time ive been to 6 surgeons who all told me not to get the mesh removed as ill be in worse condition then i am now. right now im am fighting for permanent disability

  69. John Ellis says:

    I’ve had to hernia surgeries, left side in 2001 and right side in2007, and both give me much pain. Last year I was at work and lifted a bucket which put me out of work for some time…they gave me injections and said that is all they could do. The injections did nothing and I went back to work in Dec. of 2016. I now reinjured myself at work, and they were going to place a neuro device in me but this was rejected by workers comp. insurance. The pain management doctor is now telling me the surgeon told him that I do have another “only small hernia” like if that makes a difference. I told the doc, you knew I have a hernia and you wanted to give me a pain masking device. I asked the doc to request an ultrasound to see if the mesh has moved…hopefully workers comp insurance allows for this, but I am at their mercy. I did get a lawyer that many people at my company use, but he is useless…I called other attorney’s to take my case, but they say I have been with this attorney too long and “married to him” as one put it. Please pray that I will get the attention and medical I need, Thanks everyone!

    • Jane Akre says:

      Hi John-
      You may call the folks who advertise on this site. You would want to know the type of mesh you have. Just FYI, law firms will generally be more interested in recent cases so if you are suffering, don’t let the doctor tell you its to be expected for years! No, he is letting the statute of limitations go on you suing him, is my suspicion, though I’m not a doctor or lawyer. If you have pain after 6-8 weeks, do something! You probably need a specialist attorney and please seek out a doctor who can do a non mesh repair, they are out there. Shouldice Hospital in Toronto,,, Kevin Petersen in Las Vegas is another. Put it in writing so there is no dispute when you are out that you did not want any mesh. Just my opinion.

  70. Gary says:

    Something I did not see addressed is a relevant new procedure at least in the States called “deep Botox injections”. When I first learned of it there was nothing but shinning, wonderful remarks by both patients and physicians. My chief concern was all the applications we’re in Europe and “Mexico”.

    They have being using it ten years+ but I could only find one US physician and hospitial. That being the same physician referenced by the site owner a Doctor Todd Heniford at Carolina Medical in Charlotte. Several are considering it all are bragging about it. It can be used in any reconstructive surgery, improves recovery time, reduces pain greatly improved success.

  71. Tony Leger says:

    Thanks to all the postings I was able to find assistance for the removal. I’m not going to blog the details because it matches with what all else are saying. Dr. Peter Billing in the Seattle area was able to instantly recognize my condition on October 12th 2017. We scheduled the surgery for November 20th. I am recovering nicely, energy has returned as well as skin and eye tone. My mesh was implanted in 2000 and we don’t know exactly what kind of mesh was used. It was not mentioned in the operative report we obtained from the hospital.
    WE believe it may be Marlex. I have pictures of the removed mesh/tissue that I would like to share if anyone is interested. My rejection of this mesh was immediate as described by many others also. I’m lucky as can be that my body was able to carry this load for 17 years. I also had Dacron panel implanted on the other side in 1997. I do not know if that one is having complications. I will be able to tell now that the main offender has been excised. I am a 30 year member of the medical community and I am available to speak publicly about this. I would be honored to help any credible organization educate Physicians about mesh failure symptomology.
    Bless Bruce and all the contributors, I likely owe you my life.

  72. Tony Leger says:

    Please correct 1997 to read 1987, I missed that on the proof read!

  73. Johnny r Johnson says:

    Suffering for almost 4yrs.

  74. Michael Schwab says:

    I had bi-lateral inguinl hernias, with the Prolene Hernia Mesh put in in 2007. I suffer from chronic pain in my groin now. Unable to work, experimenting with different medications for the pain.

    Dr. Bruce Ramshaw removed the Prolene Mesh from my right side, but the pain continued.

    I then had another surgery to remove part of a nerve to see if that will remedy the pain. Instead, the pain got worse.

    Now I am having problems with the left lower abdomen where the mesh put in. A never ending pain….

    I rue the day I agreed to have the exploratory surgery with ending up having mesh put in on both sides. At the time, nobody talked to me about the problems with mesh, And prior to the surgery, I was not told that there might be mesh put in. So now, I live with the pain. Trying to scratch out what life I can get

    • Jane Akre says:

      I’m sorry Michael… can you contact patient advocate Bruce Rosenberg 954-701-5094— text him is best…. He is hernia mesh injured and very knowledgeable about doctors, procedures and lawyers……

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