What Will Opioid Users Treating Mesh Pain Do If CARA Becomes Law?

//What Will Opioid Users Treating Mesh Pain Do If CARA Becomes Law?

What Will Opioid Users Treating Mesh Pain Do If CARA Becomes Law?

Jade R graphic

Jade R graphic

Update on Opioid Prescription Legislation which will affect users experiencing mesh pain! 

Mesh Medical Device News Desk, May 31, 2016, by Still Standing ~ I have periodically tried to update you on what is being done in Congress to  impact how opioid and opioid-type prescriptions are dispensed, so here is a quick look at HR. (House of Representatives) 953 and S. (Senate) 524 bills. The official title of the act is the Comprehensive Addiction and Recovery Act (CARA).

Still Standing graphic

Still Standing graphic

The Act was just passed out of a House committee with some amendments, but this is significant because if the Senate passes a bill, the House has to provide the funding and there is plenty of approved spending in this bill. This bill stands a good chance of being enacted because there is bipartisan support and it is an election year. The name of the bill sounds harmless enough and one that most people would say “sure, we need this program.” Who would say they are against preventing opioid addiction?

However, unfortunately, all people who use opioids for chronic pain management have been swept into this over-reaching bill.

It was introduced to address the high rate of heroin, prescription drug and opioid addiction, which has sharply increased in the past five years. New Hampshire has been particularly hit hard.  They do need help, no doubt. However, if you go the govtrack.us website and read the summary of the bill, there is NO place in the summary that talks about how this will impact people who have chronic pain conditions and who have good pain management using opioids.

holding handsHere are the summary points:

  • Allow naloxone to be prescribed with opioid prescriptions
  • Improve prescription drug tracking programs in each state
  • Treating people with addiction who are incarcerated
  • Prohibit the department of education from asking about the conviction from possession or sale of illegal drugs on the Federal Student Aid (FASFA) form

However, there are many things written in the 128-page document that are significant to people with chronic pain.  So, here are the take-away highlights from the 128-page funding bill passed in the House committee that will have significant impact on physicians who prescribe even appropriate levels of pain medication to manage pain and what options will be best practice for treating patients.

Many of these regulations seem to group those with chronic pain with those who have addictions. An interesting new label in this act is the term “opioid use disorder.”

Opioids, FDA

Opioids, FDA

This applies to people who are opioid dependent and pertains to any drug that is opioid, opioid-like or potentially addictive. I have read the bill multiple times and still can’t figure out how they will determine if someone who uses opioids for chronic pain will be classified as having an opioid use disorder.  It is loosely defined as a person who has developed a dependency or addiction to opioid prescriptions based on the brain chemistry that occurs with these drugs.  But, basically, if you have taken opioids for pain, you do have an altered brain chemistry. Physicians who treat people with opioid dependency must go through at least 8 hours of training on opioid use disorder in order to be a qualifying practitioner under this act. They will also be required to obtain a written agreement from each patient, signed by the patient, that the patient will receive and initial assessment and treatment plan, will be monitored  for medication adherence and substance use, is informed of all treatment options, and they understand that regular counseling services is critical to “recovery.”

While this still sounds like a good plan, treating people with chronic pain seems to be only a peripheral concern.  The American Academy of Family Physicians (AAFP) sent a letter to Congress on March 1, 2016 with the following concern:

American Academy of Family Physicians logo“The CARA (Comprehensive Addiction and Recovery Act) provision to require the Pain Management Best Practices Inter-Agency Task Force (created by this ACT) to impose so-called ‘best practices’ on receiving and renewing registrations for prescribing medications regulated under the Controlled Substances Act raises very serious concerns.  The AAFP opposes action that limits patients’ access to pharmaceuticals prescribed by a physician using appropriate clinical training and knowledge.  Family physicians and other primary care clinicians play a vital role in effective pain management, which could include the prescribing of opioid analgesics. The creation of additional prescribing barriers for primary care physicians would limit patient access when there is a legitimate need for pain relief.”

The link to the full text of this letter is here.  The Academy supports all of the other sections of the bill. The Task Force will be made up of many government agency appointees and must include one person who has chronic pain. Wow.

One funding part of the bill is that states can apply for funding to put in place a surveillance system that can be accessed by physicians and other medical providers that will track your opioid use. Physicians will be required to access this system before they prescribe opioid or other habit forming drugs.

Insurance companies are also jumping on the opioid bandwagon. Cigna has already introduced an initiative that “flags” customers who are determined by them to be high risk. These are patients who take large quantities of pain medications or those who are filling pain medication through several different doctors.

The article, available here , says that the insurance carrier will consider refusing to pay for opioid medications for patients who fall under this high risk category.  A big concern just from thinking this through is what medical credentials will the insurance company employees have when they decide that a customer is high risk? What recourse will patients have to become “un-flagged” as high risk if they feel that they have been unfairly labeled?

CARA does mention alternative pain management methods such as cognitive behavior therapy and complementary and alternative medical alternatives. However, it is important to understand that these interventions don’t provide immediate relief nor total relief.  It takes time to learn to apply the skills needed for Cognitive Behavior Therapy to help you. Other interventions such as yoga, physical therapy, mindfulness can certainly help reduce the experience of pain. So, what should women with mesh do to insure that they are not a victim of the fallout of this bill?

Talk to your physician NOW! Ask him or her if you would be considered as high risk under this bill and if so, how will that impact your pain management plan? It is vitally important that you have this conversation before the heavy hand of the government comes down squarely on your very personal pain experience. This will become law. Be educated. Be prepared.


If you are interested in keeping track of this legislation go to:



What are Opioids?

Painkillers That Could Actually Cause Chronic Pain, PsyBlog, May 31, 2016




By | 2016-05-31T11:53:34+00:00 May 31st, 2016|Medical News|39 Comments

About the Author:

I’m National News Editor, Jane Akre and I began Mesh Medical Device News Desk aka Mesh News Desk (MND) in the summer of 2011 just after the Food and Drug Administration issued an explicit warning to the public that complications associated with surgical mesh used for prolapse repair (POP) and incontinence (SUI) are NOT rare! That was the starting point for the litigation you see today and thousands of lawsuits have been filed by women whose lives have been altered, some permanently, by the use of this petroleum-based product.


  1. Cathy May 31, 2016 at 12:35 pm - Reply

    I’ve chosen not to take any kind of pain med for my chronic pain. I have lived with this pain for 14 years and had five surgeries.
    It was a difficult decision and there are days I want to be numbed but I will not take this form of prescription. Anti-inflammatory is helping me at this point to live a little better quality of life.
    I was even diagnosed with early onset Alzheimer’s in 2012 and wonder if this foreign object has caused my body to develop this incurable disease…

    • Jane Akre May 31, 2016 at 5:48 pm - Reply

      HI Cathy. I’ve not heard that association but anything is possible especially as the body is fighting itself. I’m sorry.

      • Still Standing May 31, 2016 at 7:40 pm - Reply

        Cathy, so much is being learned about the brain as brain imaging gets more enhanced. Below is a link to one article about the growing research into Alzheimers and inflammation. Some studies support a theory that Alzheimers is driven by inflammation. Of course, that isnt a proven fact at this point, but it is certainly an idea that has a lot of traction in scientific research. Some studies have looked at non steroidal anti-inflammatory drugs as part of therapy for Alzheimer’s disease. I’m so sorry you have this heavy diagnosis on your shoulders but you say that anti-inflammatory medications are helping you feel better, so maybe they are helping reduce the inflmmatory process in the brain. I dont take pain medication, either but I would want it available if I ever decided I needed it to get through my day. I have had gret success with following an anti-inflammatory diet and I can easily tell when I have been a little ( or a lot) rebellious. All I can say is that I had a bad eating week last week and what did I get for all my carousing aroung in the land of sugar, dairy and bread? My first UTI this year. Havent had one since I got serious about my diet and inflammation at the start of the year. I was having UTI at least monthly, so this was a big aha moment about the link between UTI and inflammation. Lesson learned, till next time I fall off the food wagon.
        Here is the link: https//www.nia.nih.gov/alzheimers/publication/2011-2012-alzheimers-disease-progress-report/understanding-biology-alzheimers#immune

  2. Kitty May 31, 2016 at 7:55 pm - Reply

    I wonder what is really behind this addiction farce?

  3. Janis Urban June 1, 2016 at 3:56 pm - Reply

    Here in Ohio our Governor notified Physician’s several months back with strict guidelines for dispensing opioids. All 5 of the Doctors I see will not dispense any pain killers or tranqs to me because of these guidelines and has referred me to Pain Management. So with what the Federal Government proposes…wow! So I have been without Pain relief since last December. They had automatically schedule a appointment for me with Pain Management to which I had No knowledge of. I refused to go.. No one asked me? Now if you have a procedure Dr.s will prescribe smaller amounts of pain medication? I fear it is like putting a loaded gun in someones hand these new laws and guidelines…I pray I am wrong!

    • Kitty June 2, 2016 at 9:32 am - Reply

      I thought Ohio had that wonderful Republican govenor. What a farce.

    • Still Standing June 2, 2016 at 2:04 pm - Reply

      Janis. I just attended a meeting last night and the speaker was the head of the American Academy of Pain Management. There are currently NO federal mandates on opioid and benzo rx. States do not control a physician’s DEA registration for prescribing Schedule II drugs. That is federally managed. The governor of Ohio did not have the authority to give this directive, and, I imagine it was just a simple explanation of a complex issue. The governor could have had a directive on State Medicaid, but unless he is a physician, and he isnt, he way overstepped his legal areas of governance. It is likely that insurance companies are not wanting to fill pain medications, doctors are afraid of looking like they are over prescribing, wholesale suppliers of narcotics are under more scrutiny…so there is just pressure from so many areas. They dont want to be held accountable by the patients who are hurting, so blame gets pushed off to anyone in the path. Ask your doctor for a copy of the governor’s policy guidelines ( like I said, states do not control this), contact your governor’s office to get a copy of the guidelines he issued. I imagine they are the CDC guidelines, but these are not law yet, just GUIDELINES. Pain management doctors cannot handle all of the patients who are being pushed off to them. It is just a big hot mess, made worse when politicians want to score some publicity points. Cant believe Kasich did that. I’m so sorry you are not being managed for pain. It is cruel, really,just very cruel. It isnt going to get better soon, Im afraid.

    • Still Standing June 2, 2016 at 2:15 pm - Reply

      Ok Janis. I found the guidelines, and, as I said before,they are just guidelines. These guidelines pertain to people who are being treated for acute pain, not chronic pain. They have suggested that physicians prescribe less than 30 pain pills after an acute injury( this could be an accident, or surgery.)It is not a directive about chronic pain. Big difference. Talk to your doctors. Here is the news article. http://www.morningjournal.com/article/MJ/20160128/NEWS/160129522
      This will be a hard battle to fight, but those with chronic pain absolutely have to stay on top of the truth of the story and hold providers accountable for the narrative they are spinning.

  4. Still Standing June 1, 2016 at 10:09 pm - Reply

    Kitty, please know that opioid addictive is not a farce. According to the CDC, 165,000 people died from prescription drug overdose in the U.S. in 2014. Countless more are treated in ER rooms across the every day. There is much blame to go around for this mess and it does need to be addressed. After all, mesh women are asking for more oversight of the FDA clearing process for medical devices because of how many women have been injured. Unfortunately, people who have chronic pain have been caught in the crosshairs of this very urgent and sometimes ugly public discussion. It is people with chronic pain who will bear a great deal of the burden as the medical community grapples with correcting this very real problem. It is sad and there are no clear answers about how to stop the drug addiction epidemic while being responsive to the needs of those who need narcotic drugs to alleviate their pain. What can you do about it? Just keep communicating honestly with your physician and be willing to tell your story to anyone who needs to hear it. I imagine that once the CARA act is passed, they will figure out over time that it was an overreach and pass other bills to correct it. However, that certainly doesnt do much for the pain community in the present.

    • Kitty June 2, 2016 at 5:58 pm - Reply

      SS thanks for all your research

  5. Kitty June 2, 2016 at 9:17 am - Reply

    So happy for both of u that u don’t have pain that requires strong meds; however,ibuprofen works well for inflammation. ARICEPT AND NAMENDA WILL HELP YOU RETAIN COGNITIVE SKILLS.

    • Still Standing June 2, 2016 at 8:04 pm - Reply

      Kitty, I realize you are angry on many levels and you have a right to be, but please dont assume that the women who choose not to take narcotics dont have significant , overwhelming pain. You are patronizing to state that. As I have said before on other discussions, it is no one’s right to question the severity another woman’s mesh damage and pain. I have very valid reasons for making my decision. My father was an alcoholic and I have made a conscious decision throughout my life to avoid addictive substances because of that. Was it the best choice for me? Yes, but was it and is it the easiest as far as pain? Absolutely not. I was in tears yesterday at my doctor’s office because of a tremendous pain flare. He takes me seriously because he knows what I do intentionally on a daily basis ( exercise, diet, rest, developing mindful discipline) to control my pain and we work together on different approaches. I listen to him. He listens to me. We figure it out. Using narcotics may be the best way to contol some mesh women’s pain but it certainly is not a way to meausre HOW MUCH pain or how debilitating it is in our life. We all deal with things in different ways. We come here to be educated and supported, not put on some arbitrary scale of how much pain is enough to be legitimately damaged. I just dont think those comparisons are in anyone’s best interest. I have tried to inform mesh women about the current political landscape on opioid drugs. I do that by fully accepting anyone’s decision to use them for pain and with hope that it will encourage honest communication with their physicians. Pain management is a very serious and very personal decision and each person should have that decision honored by at the least, other women who have mesh complications.

  6. Kitty June 2, 2016 at 9:27 am - Reply

    Only officials in the FDA that have gone thru medical school and have done the grueling on calls should have anything to say. Let the government patrol the borders and arrest the drug cartels???spelling

    • Still Standing June 2, 2016 at 8:51 pm - Reply

      This article was not about FDA regulations, but the DEA, which is the agency that regulates drugs and also enforces those regulations. Doctors who prescribe drugs must have a DEA number. Im sorry I didnt spell that out.

  7. Kitty June 2, 2016 at 9:31 am - Reply

    Please don’t patronize the FDA.

  8. Kitty June 2, 2016 at 9:43 am - Reply

    It is interesting that we are blaming big pharmacy for our crippling pathetic ..pain filled lives…but who actually invented the mesh? Was it the××##¥¥%€ Dutchmen? I hate their guts. ….all of them.

  9. Nameless June 3, 2016 at 11:48 pm - Reply

    It is interesting that we are blaming big Pharma for our pain filled lives but are willing to give the doctors who held the knives a pass. I don’t buy the “they didn’t know”. Especially, after the FDA warning of 2012. Don’t they keep up with the world. How many of us were lied to? This is something that they know how to do. The initial question was “what will mesh injured who used opioids to relieve pain do if their medication is taken away”. A lot of us will kill ourselves. Can you hear the truth of that and not flinch. We are not doing enough politically. We need every AG out in the public. We are in a phase of discovery now. Some are waiting for the settlement charade to liberate them from financial and mental distress. Some are interviewing doctors for removal surgery. More and more women are rolling in and out of the operating room. We are aging and compromised. What will women do – some will end their suffering. I’m trying to find an individual lawyer that will represent me to initiate a case against the hospital and Doctor. I had a law suit against an entity that took my sons life. Yes. Took his life. Dead. It took twenty years ladies. With top of the line representation. It took twenty years to wring a settlement out of a multimillion entity. They didn’t have to capitulate. CEO’s came and went. An entire generation of employees came and went. Twenty years before the case was settled. Longer than my sons life. This could go on longer than yours. The public sees happy giggling babies for JnJ products. They know nothing about the evil money makers. Time to wake up and shake up those people that hurt you. Waiting for the MDL to fix your lives is a passive non creditable possibility. The few that got something is not going to be happening for you or me. If those arrogant stupid doctors had done their homework they would not have used us like cadavers to prove it could be done. And get their kickback. They have the luxury of denial . A kick in the wallet would change their tune. As you get sicker or just have another surgery are you going to continue to wait for the MDL to save you. They had us in vulnerable pain and disbelief at first. Ok. So now what. Twitters good. Suing is better. While you are out there looking for a good doctor – look for a good lawyer willing to represent you. Maybe a relative. A friend of the family. Word of mouth referral. Everyone become aware and investigate just as we are doing in an effort to find good doctors. I’m crippled by this. Live alone. And need to move into a care facility. This could happen to you. Your family, your spouse may not be able to be there for you. Spouses age as well, and develop their own issues. A care facility can cost any where from $3,000 to $10,000 a year. Let’s get real here. Time is moving on. Pretty depressing – I know – and I’m sorry. But they are playing us. The man or woman that held that knife and implanted this poison should have informed us of the FDA warning. I asked and mine said “not my mesh”. I wanted to trust him. He did not warn me or perform due diligence by failing to do so. If ever you are alone without that kind of money or family, there is no safety net. You cannot be bedridden and keep groceries in the house or get you to Drs appts. That’s the reality. The AG’s coming out and opening these issues to the public is serious-movement forward. Anyone knowing of a law firm willing to take this kind of case please let me know. Because I am so ready to go after the b——s. That did this to me. The both of them are walking around without a care of what they did. I would prefer to sue them, so I can afford care, rather than kill myself. In plain English. I know it’s not easy to find a lawyer that will take this kind of case on or professionals to testify – there has to be one someone who has a mother or sister, wife or even a hernia mesh victim that will accept our pleas for relief. AUGS is so full of hubris that it continues not only to mislead its members but, I am sure, implicitly sanctions their membership if they differ in any way publicly. I want to stop them and I want to be able to afford care for this body that they injured.
    So, what do you think mesh injured women who used opioids to handle the pain are going to do? No one has answered the initial question. Tramadol (you will be lucky if you get it) is not a true opioids. Did nothing for me. Has side effects. Anyone for pelvic floor therapy? Injections? I don’t know do they just want us dead. Explanting is supposedly too dangerous and we’re not supposed to medicate the pain.

    • Jane Akre June 5, 2016 at 12:32 pm - Reply

      Nameless- try the referral service on page one here. I am not aware of who is taking cases but they may be….. thank you.

    • Kitty June 6, 2016 at 12:37 am - Reply

      Nameles…your story rings true to so many of us that are headed for care homes way too early. Your statement about AUGS makes so much sense…after all who wants to be osterized…stick with the program and continue to use mesh as the gold standard even though mesh shrinks and pulls and causes crippling pain that prevents ambulation. Gimme me a pain pill… I ain’t got time for a wheel chair. Is Tramadol an opoid? It should be listed as poison with skull and bones. The withdrawal is like a suicidal nitemare. Don’t take it for long periods.

      • Still Standing June 6, 2016 at 12:34 pm - Reply

        Tramadol is now a schedule IV narcotic, maybe reclassified for a couple of years. It is a synthetic medicine that is considered to cause opioid like addiction and changes to brain chemistry. It is not up there with morphine or other schedule Ii drugs. I however, don’t know how physicians are going to handle the prescriptions. They may just wash their hands of the whole process and divert people with pain to pain management doctors. However, these doctors are going to be somewhat limited in the number of patients they are treating. Quite a catch 22.

        • Nameless June 6, 2016 at 4:12 pm - Reply

          Doctors have been diverting pts to pain management for a long time. It’s a complete new industry that has its own hierarchy of pain mgmt protocol. No physician wants a waiting rm full of script refilling pain customers. I would assume this kind of customer could only be rated low on the scale of provision of service. Have you ever seen the little box ticked off that describes the level of reimbursement care. Depending on the procedure and time spent can identify how much the pt is charged or his/her insurance deal will pay. The stigma is too great against pain meds that these folks might as well imagine they are in a methodone clinic. That’s what the doctor and staff fear their waiting rm will appear. The way the regulations are being written it appears very few will be getting refills, Out come the steroid hypos for those that are desperate to get relief. I think they are willing to stick those needles every and anywhere. This is medicine? What s boring job. I had knee pain s few years ago. Went to NYU Langone. The orthoped told me the damage wasn’t that bad and that I didn’t need surgery yet. He stuck his steroid needle into my knee. Nothing. I dragged my leg around a few more wks until I found an ortho that cleaned up the torn meniscus. I was walking in three days post procedure. The steroid shot was completely at the descretion of the first ortho, I don’t know what he thought was bad enough – but I enjoy walking on two legs not one and dragging the other. We are looking at an unprecedented world of medicine in the decade to come. Cut us open, put in untested plastic garbage. Excuses for why their mistake can’t be repaired and no pain relief.

    • Still Standing June 6, 2016 at 4:18 pm - Reply

      Nameless, what a great post. Your thinking forward to aging needs AND aging spouses was very good. Sometimes it is so hard to think that far ahead because the present pain doesnt allow it. Im sure you triggered some good thinking.

  10. Kitty June 8, 2016 at 8:12 am - Reply

    Wanted to make another comment re: pain et al…..
    Botox is said to help pelvic pain…but I refuse to have that. I’m afraid of side effects. Would rather take a pill that Icancontrol…o so. I do appreciate any one that refuses pain meds due to fear.

    • Jane Akre June 8, 2016 at 10:06 am - Reply

      I do too, totally sucks the choices you are left with, pain or pill addiction…….what doctor in his right mind can think that “pain management” is an acceptable outcome and way of life. Really?

      • Still Standing June 8, 2016 at 2:36 pm - Reply

        Right on. I tell those I teach that pain management is not a good term because when you are able to ” manage” something you know what you have to work with. If you manage your finances you have an idea of how much money you have; when you manage personnel, you know how many people you are scheduling. Pain cannot be “managed” because we don’t know what it will be from day to day or even hour to hour. Those who think that pain can be managed as other things are managed have not experienced the minute to minute impact of real chronic pain. This is what we need to tell our physicians…it just is not that simple.

        • Jane Akre June 8, 2016 at 2:57 pm - Reply

          I talked to a man today with hernia mesh. His doctor, fresh out of medical school, told him he would have to learn to “live with it.” Grrrrrrr

  11. Bejah Blue June 8, 2016 at 11:51 am - Reply

    Dear Still Standing, I just wanted to thank you for your comments about Tizanidine, etc. Not only is the opinion and experience helpful but the evidence of your caring about others is like medicine, good medicine too! Thank you so much. Agree about the vibrator as well. I do not have the will to use it so much these days but when it comes over me I do and you can almost feel a certain mysterious energy course through your veins, enhancing your wellness, your will to live. I think it is also very important for us all to take hormone replacement therapy which can be expensive but if we understand how vital it is for our wellness that will help is adnust our budget to allow for it. Also the cream applied digitally (with finger tip full) every few days will not have a body wide impact but will strengthen the tissues in the pelvic region of the body which is important for us. This, actually both the pill (.625) and the cream last a relatively long time. I do not know enough about the plant based forms but it seems something we should have a discussion about. Take care all.


    PS Thanks Jane & SS for your kindness.

    • Still Standing June 8, 2016 at 7:49 pm - Reply

      I use Estrace three times a week and use the Climara estrogen patch. My doctor says I will use them for the rest of my life as vaginal thinning can lead to additional mesh erosion or stenosis from scar tissue. mesh women should use something! Thanks for revealing your relationship with the vibrater. Desperate times……

      • Disgusted June 9, 2016 at 9:12 am - Reply

        I will try the Climara. Do you notice any edema from it? I have problems with hormones causing edema. I do use the estrogen cream estrace. My insurance will no longer cover it, they want me to take premarin. My Dr. gave me some free samples and I swelled my fingers felt like balloons and the rings were so tight. What is up with this? My Dr. is also telling me they are no longer covering many bladder relief medications. I am in real trouble with this as it is costing over $500 a month just for prescriptions.

        This is all so hard, and so incomprehensible. I have so many women tell me that they have friends who have this with no problems. I think “just wait and see”. I would love to see a commercial or something, other than from a law firm, that tells the horrors of mesh. Like the smoking commercials. At least then, people would have some warning, and if they get taken in by some fast talking doctor, it’s on them. Some of the problems we have is that our issues are internal and not seen as clearly. They are no less devastating. As we all know too clearly!

        I have gotten ulcers from NSAIDS. Opiods dull the pain, but don’t remove it. There are no easy answers, but I think the ones who caused the problems should be forced to come up with a plan (and pay for it) to get us back to wellness. It is unbelievable that so many are hurt and it is still being ignored for the most part. This is not including any illegal activity involved with the products – that’s a whole other level. A one size fits all law never works, there are always exceptions. We are all different. Our chemistries our different, etc. The pharmaceuticals have introduced us to a whole new form of medicine. They need to be held accountable.

        • Still Standing June 9, 2016 at 7:52 pm - Reply

          It makes me so mad that insurance wont cover so many of the things that doctors have discovered can actually help. Many of these are compounded. I just picked up baclofen and ketamine vaginal suppositories today that costv$100/month. They help, but there isnt an end. .they dont cure anything, just hold the dam. One compounded med that has helped a lot is called LDN (low dose naltraxone). It is used mainly to wean people off opioids, but they found a paradoxical effect in very minute doses, and that is it reduces inflammation. And it does. About $50 a month, no side effects. It is only 4.5 mg. ran out for a couple of weeks and my what a difference. You should ask your doctor about it. As far as estrace and premarin, there is a big difference. Estrace is pure estradoil, premarin is actuallyseveral hormones mixed together, one of which comes from the urine of pregnant horses. 1st test sheep, now horses. Heavens. My doctor will not ok the Premarin. As far as Climara, it is a patch, it is expensive, about $120/month. I just went on Medicare and no rx supplement will cover it. There is a generic, but I am allergic to the adhesive in the patch. What are you doing for bladder? Have you tried the bladder cocktails? They help when I flare. Actually, my doctor taught me how to mix and instill so I just get syringes, bottles of the medications and do them myself. Very cheap this way. Now, for one more hint, my integrative health doctor started me on D-Mannose supplements. They Promote bladder health and are better than cranberry tablets. You can order them online. Take 4-6 daily if you have uti or flare, a couple a day for maintainence. I think it helps. You are right, a whole new medical field. We are the teachers in this college of life. I am arranging to donate my body to research. I want them to cut and slice me every which way to see everything that was impacted by the mesh. Im looking at a few universities that do research in womens health. Please post up some things that have helped you. We have much to share.

          • Jane Akre June 9, 2016 at 8:28 pm

            thank you so much Still Standing,,,, you are a blessing to many!!!

          • Still Standing June 10, 2016 at 8:18 pm

            Here is the link to a study about D-Mannose and recurrent UTIs. It can be purchased in capsule or powder form


          • Disgusted June 11, 2016 at 5:37 pm

            Yes. Once again thank you Still Standing, Jane and others in this fight against the travesties of mesh. Uribel has helped me significantly. No longer covered. Mixed vaginal suppository of flexeril, lidocaine and valium helps, not covered. I find Phillips colon health probiotics help significantly. I have tried so many brands! One thing to be aware of is lactobacillus overload. It causes vaginal burning. Another area to know is antibiotics don’t cause humans to be more resistant to them, they cause the bacteria to become more resistant. The CDC has reported that C-Diff is now showing up in healthy individuals who have no history of antibiotic use. Age did not seem to be a factor. There are some different theories out there of why. One of them suggests the heavy antibiotic use in cows and their feed. One side effect of antibiotics in cows is weight gain. Once again, follow the money.

          • Jane Akre June 11, 2016 at 7:28 pm

            Industrial agriculture uses more antibiotics than you and I… and it has to stop. Everyone knows it, but like many things, it doesn’t change. What are we waiting for?

    • Still Standing June 10, 2016 at 3:22 pm - Reply

      Bejah…did you see your doctors this week? Have been anxious to hear your update.

    • Kitty June 11, 2016 at 8:52 pm - Reply

      If a woman has pudental damage a vibrater
      would be like going to a torture chamber

  12. Betty June 17, 2016 at 9:42 am - Reply

    This mesh!!!!! Has caused me pudental nerve damage !! After 2 surgeries to have it removed.I have been on pain meds for over four years in pain management I take oxycodone 30 mg six x day I take Percocet 10 /325 four x day I take Valium 10 mg twice a day I have fibromyalgia now because of it and I am on topamax and baclofen , I take 800 mg ibuprofen 4 x daily of course all the meds have caused my stomach to go out of control so stool softeners , merilax and and reflux meds. Every Saturday I go to the hospital and get put to sleep for a nerve block. Some choose not to take pain meds and I respect that, but I can’t live without them at this time, I tried!

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