Suffering in Silence No More: Lisa Pashenee Takes Her Vaginal Mesh Protest Public

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Suffering in Silence No More: Lisa Pashenee Takes Her Vaginal Mesh Protest Public

Mesh Protest in California

Lisa Elford-Pashenee was mad as heck and didn’t want to take it anymore.

She was tired of unresolved questions about her vaginal mesh complications, about a succession of doctors who denied she had a problem, and about a California HMO that denied her a referral to a doctor who could help remove the mesh.

In 2004, Pashenee, then 41, had a Gynemesh TVT sling implanted for urinary incontinence. She tells MDND her incontinence was not bad, but she did leak urine when she had a cough or sneeze.  Lisa says she mentioned it to her Ob-Gyn who said he had something that would do the trick.

“Back then they didn’t know there were complications,” she says, referring to the abundance of information that is available online today. “I was told it was permanent and not meant to be removed.  I wasn’t told about the complications and risks.”

Pashenee says during the surgery the mesh was inserted vaginally through two holes put on either side of the vagina. She was brought out of anesthesia and told to cough. When urine leaked, the doctor pulled up on the mesh ends and told her to cough again. Again the mesh was tightened.

Lisa Elford-Pashenee

Chronic Bladder Infections

Pashenee says for two years it“worked great for two years,” as far as urine leakage. But there was another problem that would soon be become chronic. In 2005 she had had 4 bladder infections and every year she would experience a minimum of four to six infections. But Pashenee says they were minor and were treated with antibiotics.

By the time the round of antibiotic was gone, so was the infection.

By July 2011 she went in for urodynamic testing to determine why she still had leakage. The urogynecologist said she may need to double the mesh but the test came out okay. Then he sent her for acupuncture.

The succession of antibiotics and infections continued for years until October of last year, when Pashenee says she has a bladder infection for 36 days. When she felt a urinary tract infection beginning her abdomen would seize up and out of nowhere a sharp pain would cause her to cry out. “I felt it pulsating inside of me for two hours,” she says.

Lisa thought it was a really bad urinary tract infection.

Even with four different medications, the infection would not go away. In the last eight months, Pashenee says she had 11 urinary tract infections, one right after another. At the writing of this story she has another.

Her urogynecologist denied there was any problem when Lisa suggested it might be the mesh.

“Show me the data on infection,” she says she was told, though the doctor had seen data on mesh erosion. Both are listed as complications of mesh implants by the U.S. Food and Drug Administration (FDA) which has issued two Safety Notifications to the public about the dangers of surgical mesh. Instead, the doctor said everything was fine and he sent her for acupuncture.

Her Own Investigation

Lisa decided to begin her own investigation. Online she found sites where women talked about repeated bladder infections caused when the mesh was pulled too tight. She also found recommendations for four doctors, one who told her if she didn’t have bladder infections before the mesh and had them afterward, the mesh had to be implicated.

During January and February her doctor had her taking the antibiotic, Septra, used to treat urinary tract infections (UTI).

Going back to her original doctor, she was tested for mesh erosion in February. A kidney ultrasound showed no kidney stones. The doctor told her he knew of two other women with the older TVT mesh and recurrent multiresistant infections and he might have to begin to “experiment” to take it out.

That was all she needed to hear.

Lisa asked for a third time for a referral outside of the HMO to one of the four doctors others online had mentioned who had experience with plastic mesh removal. She was denied once again.

“They don’t care. I  thought are you really going to let me die?” she asks today.

Instead she was referred to a urologist who confirmed her problem was caused by the presence of the plastic mesh. The body had lost its ability to fight infection she was told. Lisa says that same doctor never did an exam but did do removal surgery June 6, 2012. When she woke up from anesthesia, Lisa says she was told by the urologist that she was unable to find the mesh and therefore did not remove it.

Lisa says she started crying. She was told it might have absorbed by her body, but one of the four recommended doctors she found online emailed her that that was impossible. Gynemesh is not absorbed by the body. Make sure it’s Gynemesh. Lisa did. She was told it must still be there, but the urologist within her HMO said there was nothing more they could do.

Friends gather for Lisa

Chronic Infection

Last March, Lisa was referred to an infectious disease doctor who did cultures on her which came back with evidence of a superbug, Extended-spectrum beta-lactamase (ESBL) and its cousin ECESBL, bacteria resistant to beta-lactams antibiotics such as penicillin.

“My infectious disease doctor said e-coli had colonized around mesh,” she tells MDND.

“I was told the reason I developed these was because of so much medication over the years, I became resistant to all oral antibiotics. I was told I would have to turn to injections of antibiotics.”

This presented two problems – first, she didn’t know how to do an injection and second, the antibiotics recommended had side effects. With no urgent care center to turn to to teach her how to administer the injections, she got help from an M.D. who came to her aid as a favor.

She was told the injections were important because they might be the last defense to save her life.

The first one was the antibiotic, Amikacin, often used for treating hospital acquired infections. Lisa read the product insert.  It said she could lose her hearing from the drug. After five days Lisa said her ears began popping and felt like they plugged up. After 10 days she emailed the doctor who wrote the prescription to request a hearing test which showed she had mild hearing loss in the left ear. The doctor who had come to her aid with the injections said she should have had a baseline hearing test before the antibiotic which also can damage your eighth cranial nerve. Her urogynecologist sent her to have an ear wash.

Pashenee then began a second once-daily injectable antibiotic, Invanz.

In the first three months she says she received 34 shots to quell the bladder infections. Finally, her husband learned how to administer the shots. By this time Lisa says she was warned not to miss any injections of antibiotic since she had become resistant to other antibiotics and an unchecked infection could end up in her bloodstream with fatal consequences.

Feeling a sense of urgency now, Lisa tried to go outside of her HMO seeking a referral.

“I was told they would not pay for a consult when we have 13 credible urologists here.”

Stop Playing by the Rules

To make matters worse, Lisa says there is a shortage of Invanz and she can only receive small amounts at a time. So after four different doctors, surgery, a battery of test, ongoing infections and antibiotics and no answers Lisa says it was time to stop playing by the rules.

“If you can’t win by paying the rules, you’ve got to break the rules. I’m not going to lay down and die. I have a 12 year old and a 17 year old. I’m 49.”

Friends gather for Lisa

Her son set up a Facebook Event page and invited people to a gathering to picket for his mom’s life.

Placards and picket signs were made most mentioning mesh. “Don’t let mommy die,” “Mesh equals death.”  Lisa says she called the police to inform them ahead of time. Lisa expected maybe eight people to show up for their peaceful protest outside of the HMO headquarters.

Lisa says 25 people walked outside of the HMO headquarters on Thursday, June 21, complete with bullhorns. Lisa wore her red Rosie the Riveter shirt.

“Within 20 minutes security came out and I gave her a flyer,” Lisa says.

A half hour later, an unidentified woman and a female doctor came out and invited her in for a meeting.

“Okay I went up there and four people listened to me. They tried to send me back to my original doctor, they even pulled him out of the operating room. He is willing to help you, they said. But I answered, no he’s not, he’s willing to experiment on me. I said I don’t want him touching me.”

Lisa says she left and went back to the picket line.

But 30 minutes later the same two women came down and said that after talking to Pashenee’s doctors and the physician’s board, a decision was made to refer her outside of the HMO to UCLA. One of the women in the room, a doctor added that there is nothing wrong with mesh and it is the ‘gold standard’ and still the best treatment for urinary incontinence.

Dr. Larissa Rodriguez, UCLA Urologist

That was not what Lisa wanted to hear but the referral was.

Dr. Shlomo Raz is the premier surgeon in the world for mesh removal visited by women who fly in from around the globe to UCLA Division of Female Urology, Reconstructive Surgery and Urodynamics to have the polypropylene mesh removed when no one else can help.

Lisa called off the picket.

Dr. Shlomo Raz, UCLA

On July 1, Pashenee received an authorization for an appointment for a consult and translabial ultrasound at UCLA with Dr. Larissa Rodriguez, MD, who shares the same clinic with Dr. Raz in mid-July for an initial consult. Testing, using a specialized MRI, will follow in another appointment and then hopefully surgery to remove the “gold standard’ from her body forever. She has confidence UCLA will find the mesh no one else has been able to and she will be able to stop the antibiotic injections.

She has filed a complaint into the FDA’s MAUDE database.

Why did she turn to the picket line?

“I don’t know why everybody doesn’t do it because I did everything I was supposed to do. Even four to five doses of pain injections were not helping me and I finally let them do the surgery. It was unsuccessful.  I appealed and they said no. I was in a union and I know companies don’t like publicity. So I thought everybody needs to know about it. The mesh is the big thing, it’s not about me, it’s about the mesh,” she says adding, “and they’re still putting it in!”

Lisa adds, “What if we organize a national picket on the White House with mesh survivors, friends & relatives & women in general? If the FDA won’t recall it, we should stand up and protest!  Worked for me! It would if nothing else gets the word out to women everywhere not to do it. We could call it a mesh convention.” #


Learn More:

Two FDA Public Health Safety Notifications- Transvaginal Mesh Complications

October 20, 2008

July 13, 2011

Safety Notification

FDA Executive Summery – July 2011 – Urogynecologic Surgical Mesh

How to Post an Adverse Event with the FDA

By | 2012-07-05T22:09:34+00:00 July 5th, 2012|News, Patient Profiles|40 Comments

About the Author:

I’m National News Editor, Jane Akre and I began Mesh Medical Device News Desk aka Mesh News Desk (MND) in the summer of 2011 just after the Food and Drug Administration issued an explicit warning to the public that complications associated with surgical mesh used for prolapse repair (POP) and incontinence (SUI) are NOT rare! That was the starting point for the litigation you see today and thousands of lawsuits have been filed by women whose lives have been altered, some permanently, by the use of this petroleum-based product.


  1. MarieAnn July 5, 2012 at 11:16 pm - Reply

    It is as if women are treated like second class citizens when it comes to our health! I’m sick and mad as hell! The FDA has got do it’s job! I’m so glad Lisa had the support she needed to go outside the HMO. As a nurse, I would never work for an HMO. I also think they are a microcosm of what we can expect with socialized, government managed care. These device companies are in bed with the FDA. We do need to march on DC, for those who can walk after this crap!

  2. Kathy Gillard July 6, 2012 at 2:39 am - Reply

    I have to agree somthing needs to be done in regard to mesh. Vaginal mesh is a problem I agree. However there is a large population implanted with mesh for hernia repairs. I have had two explant surgeries one being Kugle mesh. The patch they used to replace the kugle mesh was called CollMend FM it to was removed before the year was over. My freind experienced the same ordeal he was not as lucky as me. He had his Kugle mesh removed and replaced with collmend fm the year before me he LOST his battle when the new patch failed. He was transported to UCLA during his final days but there efforts failed

    I have another freind who completed an explant at UCLA, she is doing well, I beleive you are in the hands of the same people as my freind she can give you some insight on the matter.

    As for me I have had two explants surgeries one in California in emergency surgery and the other in Idaho in the same year. I am very lucky to be alive. There are countless number of people looking for DR to help them, I was one of them. I know how we suffer.

    However there are hospitals and dr that can help, like you and me the patient needs to demand answers before it is to late. Garden Grove medical center and UCLA in California can help. Protnuff Medical Center in Idaho can help. People suffering form mesh complications and overcome the problems need to share the names of the DR and Hospitals that made recovery possible. Dr Fouladi at Garden Grove medial center in Calfornia saved me the first time, and Dr Birkgenhagen at Portnuff Medical Center in Idaho saved me the second time, in fact is has advanced knowledege in explant surgeries and abdominal wall reconstruction surgery. He restored my quality of life and gave me back my health. WE CAN RECOVER.

    • jane akre July 6, 2012 at 10:57 am - Reply

      Hi Kathy-

      Just so we are clear, are you referring to explant surgery for hernia mesh or vaginal mesh? There is a huge difference and if we are mentioning excellent doctors I’d like to be as clear as possible. Thank you so much for speaking up!

  3. linda kilpatrick July 6, 2012 at 8:46 am - Reply

    I love it when women find it in them to get up and fight. Not all women can do this physically or mentally, but Lisa, you did it for them. Now we have to make sure you have the right surgeon to remove it. Good luck when you go.

  4. patricia July 6, 2012 at 4:25 pm - Reply

    Thank you for your story. I’m sorry you’ve had to endure the denials and the pain. I am exactly 1 week out from surgery with Dr. Raz. He explanted my sub abdominal Bard mesh this past Oct. and now the Monarc tvto by

    AMS this past Friday. It ended up being a little more difficult than first thought as my bladder had fallen again and I also required a rectocele repair. Dr. Raz was able to extract the mesh and do the other 2 repairs. Today I’m walking, taking stairs, and generally feeling better than I thought I would at this point. The best part is that I know the mesh is OUT. I feel like I can look forward to healing. Good for you for seeking the best help and fighting your HMO. Working with insurance companies is never pleasant, but it pays to perservere. I know that’s hard when you don’t feel well. Know that you’re seeing the right doc. Dr. Raz is the only one I know of who not only understands the importance of getting it all out, but knows how to do it. Good luck to you!

  5. Jane Akre July 7, 2012 at 11:24 pm - Reply


    I hope your healing journey continues. You deserve it…. I’m glad you are already feeling better.

  6. Alisa July 8, 2012 at 4:47 am - Reply

    AWESOME! way to go! No one should should just have to lay down and die! when they have a fighting chance… I love the family and friend support that was shown. My prayers are with you as you travel down this road to recovery!

  7. Lidia July 10, 2012 at 10:07 pm - Reply

    Lisa, you are in my thoughts and prayers. I know so well what you are going through. I myself have had and continue to have complications from the same surgery procedure. In June of 2011, I had the first surgery. I developed a colon infection post operatively. My right buttocks, leg and toes have been feeling numb. I had significant pain on the right side of my vagina. Turns out the mesh had penetrated and peirced through the tissues of my vagina causing a whole lot of discomfort. In January of this year, I had a second surgery, Some of the material was removed but the doctor was unable to remove it completely. The docotor in Santa Barbara told me there was nothing more she could do help me and that it would be like a bullet. She said people live with bullets and they are fine. Well I’m not fine. I still have discomfort and the numbness is still there. Desperately searching for help, I too found Dr. Raz at Ucla. Soundis like we are in the best hands. I’m ready for this to be over as I know you are also! Good luck to you!

  8. LENNA July 14, 2012 at 4:12 pm - Reply

    The story you have shared made me cry for you and all the women who are out there suffering and given the same response! Patricia, who is my best friend suffered for years and was even told she has Fibromyalgia. I’m so happy you had the courage to not take it anymore. I’m ashamed of the medical staff

    just didn’t listen to you and help you!! Best of luck. Lenna

  9. Amy G July 15, 2012 at 7:57 pm - Reply

    I admire your courage to fight for your health and social justice!

  10. Adina Lekwa July 31, 2012 at 5:02 am - Reply

    Bladder infection can always be managed by taking antibiotics. It is also very helpful to drink more than 8 glasses of water a day. *””;’

    Till next time“>

    • Lisa Pashenee December 5, 2012 at 2:37 am - Reply

      Adina, sorry for the delayed respnse, I am just now seeing these comments….you mentioned that bladder infections can be handled by antibiotics and water, which is absolutely true. Since 2004, when I got 4-6 bladder infections a year, I faithfully took all the prescribed antiobiotics: Septra, Cipro, Macrodantin, etc.,. until finally November 2011, I developed such a resistance to all these antiobiotics that they stopped working. I always drank a lot of water. I even ordered Ellura online, a cranberry supplement 4x stronger than health food stores, which cost $47 a month. I started on injections of antiobiotics, since I became allergic to others. I took Amikasin, and lost hearing in my ear. I then took Invanz or Ertapenum injections, 5 separate times. I started getting infections every 10-21 day, and eventually every 7 days. I was told I could die by the infectious disease doctor, when I became resistent to the last medication.

      Since the mesh was FULLY removed 8-20-12, I am 105 days healed, after having had 13 infections in 9 months.

      I do not care if I ever take another antibiotic again. I am now taking probiotics to recover my immune system, since the antibiotics destroyed all my good bacteria. So, yes, initially antiobiotics work,,,,but if you have an underlying foreign body response to the mesh, you can throw antibiotics at it all day long,,,the infections will always come back. The doctor explained it like this, ” the ecoli has colonnized around your mesh, so no matter the antibiotics, the infections will always come back.”

      • Tammy March 25, 2013 at 1:23 am - Reply

        Lisa, I am so proud of you! I was there people, Lisa truly thought she was dying. As soon as she finished antibiotics it would return within days. She called me one day and asked me to (and I quote) “please be there as a mother role for her daughter” if she did not survive this. Her fight for the referral and the subsequent surgery literally saved her life. So proud of you!

  11. Nancy Steele August 6, 2012 at 6:20 pm - Reply

    I had a large hernia mesh put in in 2006. For the last 1 1/2 years, I have had 8 UTI ‘s. The Dr.’s think I have Intersticial Cystitis. I keep having sharp pains in my abdomen and blood in my urine. I think it ‘s the mesh from all that I ‘ve read. Thre’s a recall on the Kugal mesh, but the Dr. swears that’s not the one he used. I don’t think it matters which one, my symptoms are sttill there, and I’m tired of the Dr’s thinking I’m crazy because I am bi-polar. My symptoms have nothing to do with my mood! I’m medicated and under control, but I’m frustrated I’m not being taken serious when I suggest it might be the mesh!

    • Lisa Pashenee December 5, 2012 at 2:39 am - Reply

      Get your operation notes, and get the mesh removed at ucla in California.

      • Lupita Tagle January 10, 2013 at 11:37 pm - Reply

        Liza, I admire every thing you did to go public and help other women to open their eyes because some of them had the mesh surgery and have no idea what the doctors did during surgery. Women need to start collecting their medical records. I am in San Antonio, Texas and I am going public pretty soon to let the PUBLIC NOT ONLY WOMEN WHAT THIS DOCTORS ARE DOING TO US , WE ARE HUMAN BEINGS. BLESS THE VETS THAT TREAT OUR PETS WITH TLC. MAYBE I SHOULD TRY TO MAKE AN APPOINTMENT WITH ONE OF THEM maybe I’ll get some answers that I haven’t been able to get from those BUTCHERS that operated on me. And for the students that are operating with no supervision shame on them also. Liza, you have a very good idea all of us should get together and protest and make them hear us out. I am going to try and get the ball rolling here in San Antonio with the Lord’s help. I am sure there are some innocent women that don’t have a clue what was implanted in their bodies until they start having complication. Men also better wake up right now it’s the mesh problem with women later it could be something with men or God forbid with our children and grand children. Doctors are getting to be so cold blooded all they care is to make money PEOPLE WE NEED TO WAKE UP. I’ll be looking for your comments Lisa, you got me going Girlfriend May God Bless you and your family keep you healthy, happy and with lots of LOVE and PEACE

  12. Nancy Steele August 6, 2012 at 6:33 pm - Reply

    I had a large hernia mesh put in in 2006. For the last 1 1/2 years, I have had 8 UTI ‘s. The Dr.’s think I have Intersticial Cystitis. I keep having sharp pains in my abdomen and blood in my urine. I think it ‘s the mesh from all that I ‘ve read. There’s a recall on the Kugal mesh, but the Dr. swears that’s not the one he used. I don’t think it matters which one, my symptoms are sttill there, and I’m tired of the Dr’s thinking I’m crazy because I am bi-polar. My symptoms have nothing to do with my mood! I’m medicated and under control, but I’m frustrated I’m not being taken serious when I suggest it might be the mesh!

  13. carol September 28, 2012 at 11:32 pm - Reply

    Sorry you have what i have, I just to know are you being blocked by statues to be able to SUE big time? I hope because i got mine in 2005 and (i just found out last month) that all my hell is from the T.Vag. mesh that i will still have a valid CASE so i can obtain surgeries and part way recover some quality of life.

    please let me know of the best Attorney for this case in Ca. that can help me and maybe get me to their Doctors quick. My life & married because if this is RUINED!

    how may I get your phone number? Would you call me please?

    May God bless you dear

    Servant for Jesus,


    • Lisa Pashenee December 5, 2012 at 2:40 am - Reply

      916-202-9144 call Pacific time, afternoons on the best, sorry I just saw your msg., God bless

  14. margaret October 29, 2012 at 10:29 pm - Reply

    I had mesh 6 years ago. All your symptoms of mesh problems were the same as mine for 6 months and then settled. After 3 years was diagnosed with polycythemia vera or thick blood. Now find my ferritin levels (iron protein) are very low having dropped from 62 to 19 over this last 3 years (30 normal). Local doctor cannot find cause as no other symptoms. Taking 8000 units Lypo vit C daily to keep some health as only way to stay on top. Have any others have a problem in the long term? Local doctor is stumped suggest specialist cancer check in Brisbane to check but I do not have any other pain just think I am being slowly poisoned by the implant? Would appreciate any help.

    • Lisa Pashenee December 5, 2012 at 2:43 am - Reply

      My friend has poly blood disease, but no mesh…have all your symptoms resolved like you said in 6 months?

  15. Lisa Pashenee December 5, 2012 at 2:49 am - Reply

    I had no other symptoms, but now doctors are saying what I had with infections is called a “FBR, a foreign body response”. Mesh is made of propylene, which is a type of plastic, which slowly heats in your body (remember, we now know not to heat plastic in the microwave or to freeze plastic, because it causes cancer), and it can migrate to other parts of your body, adhere to other organs, and cause many other problems. My urethra had to be partially rebuilt, and although I had a 20% chance of incontinence, I removed my catheter a week after surgery, and was continent, thanks to Dr. Larissa Rodriguez at UCLA in California. This fine Doctor, recommended by her colleague, was referred to me by Dr. Raz. She saved my life, and I will never forget her. The pain will not end till the mesh stops, and just because I am healed, doesn’t mean I will forget my fellow mesh sisters…we are in this together, till the FDA puts a stop to this.

    • Maria March 8, 2013 at 6:00 pm - Reply

      I have a similar story with medical complications that I manage trough supplements to prevent UTI’S, but as fas as the discomfort there isn’t too many options. I’m wondering why dr Raz refered you with dr. Rodriguez instead of doing the excision himself, any particular reason,?? since i read dr Rodriguez does minimal invasive and maybe not dr Raz, please let me know, since i”m schedule very soon, thnaks

  16. Mary blanks February 14, 2013 at 2:17 pm - Reply

    Lisa. I am so thankful you made it to dr. Raz and you are better. I am going on 8 months post surgery and 15 months post my diagnosis of death pending with no hope of help. I am recovering but it is very slow. I am suffering with extreme heat and chills. Two days ago, after doing very well with incontinance I became totally incontinant!!!! I had a couple days that I actually felt like Mary but as usual it was short lived. I know I need to make an appointment with dr. Raz but my funds are very low. My dr does the best he can but I just don’t even know how to explain what I’m going through !! Recovery for me as been long and hard but it is still better than the alternate diagnosis of death if I had done nothing.

    I’m with you about the march on Washington I believe it would give us the exposure we need , create a platform to start from, and also be a loud voice to warn women to say no to this procedure. I can still not be intimate with my husband and I pray his strength in The Lord. I wouldn’t want to see the worst person in the world go through this. I feel as if its Abadan dream and one day ill wke up!!

  17. Kathy February 18, 2013 at 10:46 am - Reply

    So , I guess my Fibromyalgia is poisoning from the mesh and not Fibromyalgia? I have had this sling since 2007 and am so afraid. I am trying to be strong, but feel so bad it is hard to find my strength.

    This is my only place to vent. I am working on getting to UCLA. It is all so overwhelming. That is another piece of the puzzle….. us having to solve our own medical problem with people looking at us with a blank stare, or a doctor running out of the room to avoid discussing the entire mess.

    My new name for it is ” Meshgate”. They will not be able to hide from this forever. I just pray we all survive long enough.

  18. teresa hughes May 10, 2013 at 7:50 pm - Reply

    I had mesh removal 20 February 2012 and have an infection called Acidovorans. I also suffer with Fibromyalgia and have had this since this mesh was put in me.

    I also suffer with Costochondiritis which is inflammation of the ribs/chest which is what many Fibromyalgia sufferers are also prone to.

    If you have a stabbing in your chest and it also affects the breathing you think you are having a heart attack.

    Costochondiritis was what my GP diagnosed for which there is no cure.

    It is just a matter of resting and can take 6 to 12 months before the symptoms go some what better.

    Since having this mesh inserted it has been a nightmare when all these illness’s start. and your quality of life is diminished.

    • Valerie Griner May 16, 2013 at 11:48 pm - Reply

      Hi, Teresa!

      Glad to hear that you have had the mesh removed. I still have mine…along with all of the inflammation and autoimmune disorders it has brought. The symptoms are getting much worse and I am very afraid that I may die from it. As you said, it’s a nightmare! I only hope that I can find a doctor soon who will take my mesh bladder sling out! I thought I had found a compassionate doctor, (urogynecologist I located on the Internet), but he called me tonight and seemed very reluctant to help me. I was so disappointed. I have good medical insurance and was willing to fly to the state where he practices. He wound up saying,”well…you may be better off to just leave it alone because you could have complications, etc. etc.” I have blood coming from my urethra and feel like I have a pinecone in my bladder…in addition to all of the Sjogrens Syndrome, anemia, and chronic fatigue stuff. I’m sorry to vent to you like this, but I’m at a loss as to how to proceed from here. Any advice would be very much appreciated. Thank- you, and I pray that you will have a speedy recovery. Take care, Valerie Griner (Nashville, GA)

      • teresa hughes July 14, 2013 at 6:16 pm - Reply

        Hello Valerie

        Sorry I have not replied to you but I must of missed your post and beside everything else I seem to have trouble these days also with my eyesight also and I have not been on the site for a while

        Have you managed at all to get to see a surgeon since you last wrote this post?

        Is it to far for you to go to see Dr. Raz in LA as he seems to be the person with the expertise.

        It took many years before anyone would touch the mesh in me and remove it.

        I found that other surgeons who you go to see in The United Kingdom for a second opinion see us as baggage from someone else’s botched up surgery and they do not want to touch you.

        It is very hard to find a surgeon to trust and who has also got the expertise in mesh removal

  19. Jessie May 20, 2013 at 12:47 pm - Reply

    I believe these companies are using us as human testers. Guinea pigs in their sick game of raping the general public with a cactus right in the anus, just to earn an extra buck. It is like a bad science fiction movie.

  20. Jessie May 20, 2013 at 12:55 pm - Reply

    When are we marching!

  21. MNSCgirl September 27, 2013 at 9:36 pm - Reply

    I wanna march, too!

    We could do this.

    We MUST do this.

  22. Jessica March 24, 2015 at 1:15 am - Reply

    So after having your mesh removed from Dr Rodriguez are you feel 100% better? Also have any of you got a mesh put in by Dr Rodriguez? How was your outcome? Good?

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