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Mesh Resources Online

Thanks to Jennifer R. and all the leaders who are keeping the mesh information presence online for others to learn.  Congratulations!  Raising the profile will help others. Please visit and join in!  Together we are stronger. 

(Closed/Open refers to privacy setting–if you have a pending or potential lawsuit, please keep this in mind)

WEBSITES:

1. http://meshmedicaldevicenewsdesk.com/ (News, patient profiles & more)***

2. http://meshproblems.weebly.com/ (Research and activism)***

3. http://www.meshmenot.wordpress.com

4. http://themeshwarrior.com/

5. http://www.meshiesunitedgroup.co.uk/ (United Kingdom)

6. http://www.meshedup.eu/ (European site (Netherlands)

7. http://meshmenot.wordpress.com/about-meshmenotblog/deb-who/ (blog)

8. http://www.transvaginalmesh.ca/Home_Page.php (Canada)

9. http://corporateactionnetwo.ipower.com/survivors/ (New Meta-group; take action)****

10. http://meshangelnetwork.com/ (blog)

11. http://inguinalhernia.org

FACEBOOK GROUPS & PAGES:

Community/Support

1. Fighters And Survivors of All Transvaginal Mesh And Hernia Mesh/Plugs (Closed)

https://www.facebook.com/groups/111893665491196/

General support; compassion & understanding

2. Meshmenot Facebook page

https://www.facebook.com/MeshMeNot

 

3.Women’s POP/SUI TVMesh Complications Support

https://www.facebook.com/groups/317477065098820/

Only for women who are mesh injured (with transvaginal mesh); support

 

4. The Mesh Warrior Foundation for the injured (Closed)

https://www.facebook.com/groups/352918284849381/

 

5. MeshedUp (Closed)

https://www.facebook.com/groups/meshedup.eu/

 

(Netherlands)

6. Mesh Down Under Support Group (Closed)

https://www.facebook.com/groups/MeshDownUNDERsupport/

For New Zealanders with mesh

7. Transvaginal Mesh UK Support Group (Closed)

https://www.facebook.com/groups/498720546916693/

8. Inguinal Hernia Survivors (Open)

https://www.facebook.com/groups/648529241867186/

9. Get rid of synthetic surgical mesh (Closed)

https://www.facebook.com/groups/371020267006/

10. That’s Meshed Up Bro (Page)

https://www.facebook.com/thatsmeshedupbro

11. Transvaginal Mesh – Medical Alerts (Page)

https://www.facebook.com/tvmeshalert

12. Scottish Mesh Survivors (Friend/Profile)

https://www.facebook.com/search/more/?q=mesh&sid=0.4177619765064208

13. SurvivingMesh.org (Page)

https://www.facebook.com/SurvivingMESH?ref=br_rs

14. Transvaginal Mesh Support UK (Page)

https://www.facebook.com/meshcomplications

15. Mesh Removal Hope in Australia.

https://www.facebook.com/groups/465698156902021/

 

News & Research

1. Mesh Medical Device News Desk (Open)

https://www.facebook.com/groups/142368339207055/

News on medical & legal developments

2. Links on Mesh (Closed)

https://www.facebook.com/groups/LinksonMesh/

 ***Great source of information in Files on the vast array of symptoms & other research; read about people’s experiences with different doctors***

***More medical kind of info here

 3. Stand up and be counted against MEDICAL MESH (Open)

https://www.facebook.com/groups/641561235885800/

Natural healing; biofilm infection info; health research & news

public, so it’s a great place to post general info that would be helpful for everybody-everybody to know about mesh, or for opening up about your experience with mesh (help others from getting it to begin with)

4.The Mesh Warrior (Page)

https://www.facebook.com/themeshwarrior

News; affiliated with Mesh News Desk; coverage of trial; an advocate whose mother has mesh

5. MESHED-UP! (Closed)

https://www.facebook.com/groups/446245878825536/

Symptoms caused by mesh, including autoimmune & neurological

Legal

1. Medical Mesh Legal Support (Closed)

https://www.facebook.com/groups/209955715772164/

General questions & answers; no lawyer moderator, so it is just word of mouth & experiences

Activism

1. Medical Mesh–Outreach and Activism (Closed)

https://www.facebook.com/groups/498720546916693/

Share ideas/writing; develop tools to educate doctors, lawyers, politicians; anything proactive & empowering to get results is welcome!

 

Groups for Specific Symptoms

1. Mesh Page for Auto immune Diseases (Page/Open)

https://www.facebook.com/pages/Mesh-Page-for-Auto-immune-Diseases/492344350796007

 

Patient Safety & Injury Sites Beyond the Mesh Community

1. Patient Safety Action Committee (Open)

https://www.facebook.com/groups/1410960942480340/

Fighting caps on medical malpractice suits; Patient safety advocacy; For engaged activists

 

2 Comments

  1. debcny says:

    Thanks for compiling this list! What a great resource to refer people to. I have a lot of these listed on the footer of my blog, but missed some. It’s hard not to, there are more & more. Which is both good and bad, isn’t it?

    Can you update my listed blog link when you get a chance to be just:

    http://www.meshmenot.wordpress.com

    I also have a public Meshmenot Facebook page if you want to lost it:

    https://www.facebook.com/MeshMeNot

    Thanks again!

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