Mesh News Desk Trial Coverage Cut For Being ‘Advocacy’ Organization

//Mesh News Desk Trial Coverage Cut For Being ‘Advocacy’ Organization

Mesh News Desk Trial Coverage Cut For Being ‘Advocacy’ Organization

mo lawyers coverMesh News Desk, December 9, 2015 ~ A funny thing happened on the way to covering a pelvic mesh trial.

As editor of Mesh News Desk (MND), I cover trials either in person or remotely through a feed provided by Courtroom View Network (CVN).  David Siegel who works there, has always been very friendly. We alert each other to upcoming trials.

Lately CVN has impose restrictions on coverage – do not capture images from the court or show exhibits.  Okay, I said.   They are a for-profit company and I could see if, in the unlikely event, someone found our coverage, it could hurt the CVN business model. No problem. I appreciate the access (though courts require a “pool camera” to share with other media).

After covering approximately eight of these defective pelvic mesh trials, the expert witnesses are often the same, Peggy Pence PhD, Bruce Rosenzweig, MD, T. Michael Margolis MD, on and on, so their background is easily augmented by accessing past coverage.

And as is customary, readers of Mesh News Desk (MND) make comments under a story.  That’s what happened on the second day of coverage (here) of the Eve Sherrer v. Boston Scientific and C.R. Bard trial in Kansas City. See MND coverage of opening arguments here.

raz and suzanne mcclain

Dr. Raz and Suzanne M.

The plaintiff had been implanted with two pelvic meshes to treat her prolapse. Most women receive only one and about one-third of them have problems with intense pain, shrinking mesh, nerve encapsulation, chronic infection etc.

This is the first time a trial has focused on two defendants at the same time, so it was an interesting case to follow.

On the second day of the trial, the defense criticized a world-renowned doctor who has now turned mesh removal expert. He caused the plaintiff’s injuries, at least partially, they claimed.  As expected man comments praised Dr. Raz as a hero. I monitor comments for civility. Nothing stood out as particularly profane or inappropriate.

lori cohen

Lori Cohen, Lawyer for C.R. Bard

But the comments caught the eye of the defense team. Oral arguments were made before Judge Robert M. Schieber to disallow the camera in the court.  This would not only hurt MND coverage but CVN as well.

CVN immediately hired a media attorney from Kansas City, Jean Maneke who filed a well thought-out motion and presented it to the judge on Sunday December 6, according to the docket.

Among the things she wrote, CVN could not be held responsible for content posted on a website over which it has no editorial control, according to a Missouri Lawyers Weekly story on the issue.  Reader comments appear on newspaper and television websites regularly. Restricting access to the court, does nothing to prevent comments.

Jean Maneke, media attorney

Jean Maneke, media attorney

“Trials are inherently public events, and attorneys representing large, publicly traded corporations at a multi-million dollar product liability trial involving medical devices alleged to have injured thousands of women nationwide can and should expect to be the subject of news media coverage and public discussion, whether in print on social media sites or around the local coffeehouse counter, which may not always be flattering or may be potentially hostile.” ~ Attorney Jean Maneke.


She characterized comments in question as “inflammatory” but not threatening. Here Jean Maneke’s Motion for CVN.

Mesh News Desk had no representative in the courtroom.  As editor, I had talked to the public information officer previously, given her my name, background (30 years in news, including a stint as an anchor/ reporter at KTVI in St. Louis. MO), assured her I’m not a legal referral service or work for a law firm but just a journalist who thinks this story deserves the light of day.   She listened politely.  We were cordial.

I asked if I should talk to the judge on Friday, December 4, as this all broke, to introduce myself. Thinking he might be a reasonable person, I’d have expected a speaker phone to listen to the proceedings and make my own case.  That didn’t happen.

Judge Robert M. Schieber decided to curtail the camera access to MND while CVN maintained its camera in the court. Split the baby in half as judges are inclined to do.

Today’s story in Missouri Lawyers Weekly on the issue says the basis for the judge’s decision is that MND is an “advocacy organization.” (I spoke to them looking for a law firm. They did a story instead. ) This is my first understanding of the objection to continuing coverage.

(Sorry there is a pay wall and I was asked not to share the story)

Interesting. MND is an “organization” of one.  It is a for-profit publishing business. I alone own it.  Just like newspaper and TV station websites, comments are allowed.  There is no difference. Comments are monitored for civility and profanity, just like any media website.

Even if MND was an advocacy organization, there is nothing in the rules governing media access to Missouri courts that prevents access to the courts by anyone who is a member of an advocacy organization.   If the Susan Komen organization wanted access to the CVN feed for educational outreach to its members, would they be denied?  Missouri Court Operating Rule 16 says no.

The story in Missouri Lawyers Weekly ends with your editor’s comment, “This isn’t just a private club that the defense gets to make a decision about what coverage they like and don’t like,” Akre said. “It’s ridiculous.” #

Bottom Line- About 5,000 daily readers of MND lose a resource to keep appraised of litigation involving two of the largest mesh manufacturers.  MND is still attempting to reach out to the judge through legal means to regain access. Please allow the process to take its course!  



Jean Maneke – MotionCVN camera in the courtroom

Web reporter shut out of trial after reader’s comment

(Sorry! Paywall)

By Scott Lauck

“An online journalist remotely covering a major trial in Jackson County Circuit Court has been shut out of access to the proceedings after defense counsel objected to a reader’s comments posted on her website.

Jane Akre, the Florida-based editor of Mesh Medical Device News Desk, said she was trying to re-establish access to a privately maintained pool camera that provides a web feed of the trial. The case, which began last week, involves claims against companies Boston Scientific and C. R. Bard that make transvaginal mesh products that plaintiffs allege have injured women in whom they were implanted. It’s one of a series of such suits around the country.

Akre covered the first two days of the trial via a pool camera arrangement through Courtroom View Network, a private company that provides subscriptions to video coverage of trials nationwide that are of interest to legal professionals. According to court records, CVN applied in November to serve as the pool camera for the trial, providing online access for a number of traditional and trade media outlets, including Akre’s.

According to a court filing made by CVN, attorneys for the defense on Friday complained to the court about comments left by online readers on Akre’s website and asked that CVN’s coverage be suspended. The company successfully argued that it should be allowed to continue. CVN, however, terminated Akre’s access to its feed.

It was unclear if she would be able to regain access……”



Court Operating Rule 16

Media Coordinator, shall work with and through the appropriate media coordinator regarding all arrangements for media coverage.

“Pooling arrangements shall be the sole responsibility of the media coordinator, and the judge shall not be called upon to mediate any dispute as to the appropriate media representatives authorized to cover a particular judicial proceeding. Requests for copies of audio recording, video tape or photographs shall be directed to the pool representative only, who shall supply copies upon request to media representatives at a price not exceeding actual cost.”

“COR 16 does not affect the right of the public, including a member of the news media, to attend and observe any judicial proceeding which is otherwise open to the public. In other words, this Rule does not affect existing law under which reporters, sketch artists and others may attend judicial proceedings as members of the public.”


JEAN MANEKE-  Mo Gets ‘F’ Ranking in Sunshine Law, 2007




By | 2015-12-09T13:03:05+00:00 December 9th, 2015|Media Reports|96 Comments

About the Author:

I’m National News Editor, Jane Akre and I began Mesh Medical Device News Desk aka Mesh News Desk (MND) in the summer of 2011 just after the Food and Drug Administration issued an explicit warning to the public that complications associated with surgical mesh used for prolapse repair (POP) and incontinence (SUI) are NOT rare! That was the starting point for the litigation you see today and thousands of lawsuits have been filed by women whose lives have been altered, some permanently, by the use of this petroleum-based product.


  1. anonymous December 9, 2015 at 1:18 pm - Reply

    This is so wrong on so many levels we are being discriminated against Jane!!!

  2. anonymous December 9, 2015 at 1:21 pm - Reply

    I also have to wonder about a conspiracy against us

  3. Debbie gore December 9, 2015 at 1:29 pm - Reply

    Wow, they would love to keep us ignorant and silent it appears?

  4. halfofhart December 9, 2015 at 2:08 pm - Reply

    Excellent article – very thorough Jane – you make the big boys nervous – you must be doing something right – keep up the good work – let us know if there is anything we can do to assist – Always the very best to you and yours

    • anonymous December 9, 2015 at 3:35 pm - Reply

      I agree Jan you are making the big boys nervous they don’t want the truth to get out they don’t want people to be aware of exactly how badly they can be hurt the only reason they wouldn’t want you there it’s because they just don’t want you to get the truth out are to bring light to this very dark time in all women’s lives keep up the good work Jane which senator can I call her write!

  5. Tammy (KY) December 9, 2015 at 2:52 pm - Reply

    This is so WRONG. Please keep us informed Jane…

  6. kitty December 9, 2015 at 4:56 pm - Reply

    Jane–thank u for report

    .in some ways it is hard to understand being so deconditioned from surgery at this time. Are u restricted from going into court as well? Such a big corporation being threatened by you—-

    • Jane Akre December 9, 2015 at 10:59 pm - Reply

      No, I could actually get on a plane and go there myself and sit in the courtroom…….Actually I believe they are threatened by “You” If even a few women sat in the courtroom who were mesh affected, defense does not like that. I’ve seen the looks they get. You they are afraid of, my friend, not me.

      • Bejah Blue December 10, 2015 at 10:06 pm - Reply

        This makes it even more important for us to exercise our rights and fill all the empty seats allocated for the public in every courtroom where these trials are taking place. We need to turn up the heat in any way we can. We might also approach the Law Schools at nearby Universities and ask them to help us fill seats, offering them material for a case study or project and they , in turn could provide us with reporting. THIS is the wall I was speaking of. The greater the resistance the harder we must push. I have no car and very limited financial resources but many of you can take action. It is time. I recall that now timeless expression, “Let’s roll” from the time of “911”. Do we have that kind of courage, commitment, resolve? I think we do.


      • Aaron Leigh December 14, 2015 at 10:59 am - Reply

        It’s true. At Ms. Batiste’s trial, there were up to four of us on some days.

        • Jane Akre December 14, 2015 at 11:11 am - Reply

          Wow- Wish I had been there. The jury sees you. They know there are more of you out there…. it is very powerful, just ask those who have sat in a trial.

          • Kansas December 21, 2015 at 7:44 pm

            I would have been more than happy to attend the trial, it was close. If anyone could let me know in advance of others in my area, I would be more than pleased to sit in!

          • Jane Akre December 22, 2015 at 11:37 pm

            You are lucky Kansas. The trial has been postponed until after the holidays. Mesh News Desk will have an advocate in the court asking for access again. If you could attend it would be very wonderful. I will soon keep you posted on our progress. Hope to see you there!!!

      • Deb J December 14, 2015 at 3:04 pm - Reply

        Jane, first of all, thank you for providing us as much information as allowed; without your input “we” would be totally in the dark. Secondly, my case is based on S.S. Bard and then second surgery Boston-Scientific. I truly wish I could travel to sit in the courtroom…if I could afford to I would. Unfortunately I am unable to financially, if I could afford it I would simply to let them see the quality of life I’m struggling with…24/7. day in, day out! UTIs, bursitis, pain, bladder issues….etc., nothing other ladies have not dealt with, something we all share is the loss of quality of life and trying to get our families to understand our restrictions…

        Again, thank you Jane, for such honesty and thoroughness, it is appreciated!

        • Jane Akre December 14, 2015 at 6:58 pm - Reply

          You are very welcome. I’ve made some headway in regaining access to this very important trial So stay tuned!!! You have suffered from two different manufacturers like this plaintiff. I’m sorry.

  7. Mary Pat December 9, 2015 at 5:32 pm - Reply

    Ok, everyone who has wondered why mainstream media refuses to cover mesh trials or to report on the mesh mess, you don’t have to wonder anymore! This travesty clearly show the world how the pharmaceutical companies operate behind the scenes. Now we know for a fact and don ‘t have to guess any longer! Of course news agencies rely heavily on pharma advertising dollars, so what is this judges excuse? Jane – even though you reach a small segment of the population compared to CNN or Fox news, you should be very proud of the work you do. You have obviously presented a threat to big pharma’s media blackout. I believe you will wear a crown with many jewels when you get to heaven for your relentless dedication and hard work. May God bless you richly in your work and in all that you do. Thank you, Jane. Keep up the good work. I still think the ACLU might fight for your freedom of speech and against the injustice of the discrimination that is taking place.

    • Jane Akre December 9, 2015 at 10:54 pm - Reply

      Yes I haven’t given up Mary Pat….. Thanks for the encouragement. I agree with you about the media and big pharma… watch television, Cialis, fungus cream, Xarelto commercials abound. Journos are reluctant to bite the hand that feeds these days. That has always been a reality, but news organizations used to have deep roots in journalism. Journalism, in the public interest. Sort of sounds naive doesn’t it?

      • Bejah Blue December 13, 2015 at 10:39 pm - Reply

        I hope it is not naive Jane referring to copy of your post below. The idea that news organizations are no longer philosophically or morally connected to the tradition of journalism in a deep way is so upsetting and had not occurred to me until now but it would explain a lot. I will always believe that journalism in the public interest is among the highest callings. I do not see Jane as one who would “give up”, quite the contrary. But there is no question that it is overwhelming and just never ceaces, the parade of bad products and big money…it is exhausting just thinking about it.

        On that note Jane, I pray you can get away for Christmas/New Years to some favorite place for a good rest where there are no electronic devices to distract from the peace and quiet.


        Jane Akre says:

        December 9, 2015 at 10:54 pm

        Yes I haven’t given up Mary Pat….. Thanks for the encouragement. I agree with you about the media and big pharma… watch television, Cialis, fungus cream, Xarelto commercials abound. Journos are reluctant to bite the hand that feeds these days. That has always been a reality, but news organizations used to have deep roots in journalism. Journalism, in the public interest. Sort of sounds naive doesn’t it?

        • Jane Akre December 14, 2015 at 8:35 am - Reply

          Thank you Bejah…. I do think a low profile is best so the trial outcome is not impacted negatively, you know?

    • Aaron Leigh December 14, 2015 at 11:00 am - Reply

      I agree. Well said, Mary Pat!

  8. meshie December 9, 2015 at 11:15 pm - Reply

    Isn’t it great that the thing they tried to stop just might be the Trojan horse we need to bring our fight to main stream America, for that I am grateful to Jane.

    I am truly sorry that they cut the feed because we do go and come to your site to get the updates that are needed to keep our sanity, we have lost so much , and you and your MDN give us the updates need to hang on one more day. I for one hate when nothing new pops up and I begin the downhill spin of depression then you pop something up and I go another day.

    Thank you for continuing to cover this for such valuable information.

    • Jane Akre December 9, 2015 at 11:45 pm - Reply

      You are welcome… I find it a fascinating chapter in women’s health… and I’m sorry you all are suffering.

    • Bejah Blue December 10, 2015 at 10:08 pm - Reply

      People, They are cutting the feed, not dismembering us. We will find another way over the bridge.


      • Jane Akre December 11, 2015 at 11:11 am - Reply

        And I am not done with my challenge. This is a bad precedent

      • Jane Akre December 11, 2015 at 11:11 am - Reply

        And I am not done with my challenge. This is a bad precedent

  9. Pam December 10, 2015 at 8:22 am - Reply

    For the 1st time ever I find myself speechless. I am appalled that they don’t have thick of skin as I had 1st thought, & how sweet it is that we have found a soft spot. There is such weakness within their defense, & it is a victory knowing that they are taking interest in what we have to say!!!!

    Now, it’s time we make it known & our presence public! !! That will impact the MESH market, & the MESH hell we all live daily. This includes the hernia MESH victims! It’s time we take a stand, & join together! !! It’s time we support the victims in court, & time we seek legislation to do more to protect us from these carcass eating maggots! ! This slammed door tells me it’s time to link my wounds, & pick up the pieces to fight!! We hold more power than most realize, & even our own FACELESS LAWYERS know it in which is why we are to keep silent!!!

    Well, I have found something to say, What has silence done for us? For me? Absolutely EVERYTHING! !I’ve lost my marriage, & my kids have grown up so fast and are now gone too. In a matter of 5 years, I’m left alone and with NOTHING! I’ve lost my career, I’ve lost my dream home on the lake, I’ve lost my life savings, & my 401k! I’ve lost Faith in doctors! I’ve lost hope in healing! I’ve lost my identity, my reason, & my will.

    I’m asking & telling everyone do not become me! Do not TRUST anyone can or will ever understand what you are going through, & would do everything possible to avoid this happening to you! Do what your instincts are telling you to do even if it goes against everything that your faceless lawyer advised. Get your family & friends to be a voice for you. Display it, exploit it, & expose it everywhere you can. Even if it’s just a bumper sticker on you & your family & friends cars!

    Mesh sisters & brothers, it’s time we take this stand!!! Stand together! Let God guide us, & not the corporate world!

    • Jane Akre December 10, 2015 at 11:29 am - Reply

      Thank you Pam. Wise words. You’all carry power indeed.

      • Janis Urban December 10, 2015 at 3:06 pm - Reply

        Pam. Well said. I applaud you for taking a stand. Thank you. We do have the POWER indeed!!!

    • Aaron Leigh December 14, 2015 at 11:01 am - Reply

      AMEN, Pam!

  10. Janis Urban December 10, 2015 at 2:57 pm - Reply

    Well Jane it seems the defense are pulling out all kinds of stops lately. Whats with the Judges ruling? Why is it fair that the defense and offense gets to watch and you don’t? Freedom of the Press? You provide non BIAS coverage of this Mesh Debacle and cover the trials that as Plaintiffs have found the most valuable knowledgeable information about a MDL and its proceedings that I feel should be provided by our counsel but is not. Does our 1st Amendment Rights have any meaning when it comes to making comments in the Press or social media? This the United States of America? Hmm… Afraid of the Mesh Injured sitting in the Gallery during a trial. Well I might have to consider getting on the road and attending these trials.. I’m sure my Mesh Sister’s will help me in any way they can and possibly attend the trial themselves. I will check the up coming scheduled trial dates.

    • Jane Akre December 10, 2015 at 3:31 pm - Reply

      Best to have folks in the courtroom. They will not be thrown out.

      • Madenna December 10, 2015 at 6:00 pm - Reply

        I wish I would have taken off this week and went. This is so wrong. As a double mesh injured I wanted to be able to know how this trial was going. I may be able to go some day next week.

    • Aaron Leigh December 14, 2015 at 11:02 am - Reply

      I’m with you Janis!

  11. Michelle December 10, 2015 at 4:43 pm - Reply

    Unbelievable. Really desperate move on their part- they must be sweating.

  12. Mamohio December 10, 2015 at 5:50 pm - Reply

    This is the exact thing I was trying to explain and ask for women to help stand up for ourselves. Staying behind a keyboard is just a small thing and they are trying to cut Jane down now. WE HAVE TO TAKE A STAND! THE PENDULUM IS SWINGING THEIR WAY. Don’t keep waiting lets attend rallies and court trials. We have women in every state that can support. AGAIN DOING NOTHING IS GETTING US NOTHING! Don’t wait until we don’t even have a place to go here or on facebook MAM. LADIES ITS NOT GOING TO MAGICALLY HAPPEN, WE HAVE TO MAKE IT HAPPEN. WE HAVE TO HELP JANE AND OURSELVES! So far I have received anyone interested in Ohio but a couple women. We need dozens, family and friends to show up too. The defense is probably reading this thinking “they aren’t going to do sh%@, just stay behind their keyboards cause they are weak. Lets attack the only place they have to go. Don’t wait until this site gets closed down, Jane I hope you don’t but it may be what has to happen to get all you women to fight for justice.

    • Bejah Blue December 10, 2015 at 10:21 pm - Reply

      No one can legally shut this site down unless Jane doesn’t pay the phone bill! Let’s be clear. But you are right MAM….people need to get moving in ways that we have not and could. What are we waiting for? In every city there should be a group of victims that meets regularly, coordinates with other groups, watches the court calendars, monitors the news on these issues and plans protests, flooding courtrooms, picketing the residences and offices of offending organizations and key players, getting articles in the news, if not mainstream then other sources, flooding political representatives with repeated mailings, trying to get measures on ballots that will slow down the defendants or embarrass them, damage their credibility and brands…there is so much we can do. Please tell me what we are waiting for. Please tell me the phone number for the group in LA, in Seattle, in Great Falls….where are you people? Tammy says they have a group….that is WONDERFUL. Why can the rest of us not do that? Is it because your attorney told you not to talk to anyone? That does not make sense…you can talk about the issue without talking about the details of your own case….you do not even need to use your real names with eachother….just organize. If you want victory you are going to have to fight for it..


      • Mamohio December 12, 2015 at 10:20 am - Reply


        Very true I have tried to get some people to show up just in our own States. To get this thing rollling. I have tried and tried. I even did and paid for like Lisa Mason suggested. I paid for it, was going to use my home for planning and preparation. I have also volunteered to pay for the badges that someone was offering for our group in Ohio. Tried to get a group of Ohio women to meet and double at a central place to drive to Wheeling last year. Even offered to bring wheelchairs or canes to use if needed. Bring chairs for us to sit on. NO ONE BUT I THINK 1 REPLIED. I had an organizational plan with objectives, was prepared to make signs. You can lead a horse to water but you cant make them drink.

        Also I feel we have potential lawyers on this website who are thinking are they really hurt? They cant even get a rally together? Show us the numbers of potential victims inside and outside the courthourse? Or maybe they really are too sick to travel but that’s to our defendants advantage. They don’t see us so is our claims really of any value. I know they are personally because I have been down that road with all of you. Whenever I post for a rally all I get are negativity from people I don’t know are working for the defendants or my mesh sisters. I have given my phone, email, pm me on fb. NOTHING! Only 1 other person in Ohio. We aren’t dead yet and as long as I can breathe and get thru the pain I have been willing to support, lead, participate in any activity. Ask Jane how many times I have tried to rally the troops. That’s how she feels when she is in the courtroom all alone. She isn’t a victim but our voice. We need her, help fund this page if possible, DO SOMETHING FOR GOD’S SAKE. LOOK AT WHAT THEY HAVE DONE TO MRS. BATISTE? IT IS A TRAGEDY AND I HOPE IT ISNT OUR STORY BUT POSSIBLY COULD BE IF WE DONT DO SOMETHING! AGAIN, OHIO LADIES MY EMAIL., pm me on the MAM facebook page, call me 740-972-1885. My lawyer told me we have freedom of speech and it is in our best interest to put faces on this travesty. We do noteven need to talk, give our names. You willnot lose your cases if they don’t know you and you don’t give your name or answer any questions. We just tellnthem to go to the page or MAM fb page to read our stories. Again ladies we need to swing the pendulum our way. I wont beg for your support again. I don’t like to give up but I have offered OHIO women to support especially now during all the election campaigns. We can send all the letters we want but when will we ever get a response? I’m still waiting and I probably wrote to 50 organizations with not one response. We need to take control of our future and exhaust all efforts before we get the same settlement as AMS. It is pathetic. I love all my mesh sisters and I wish you all well. But we are broke, sufffering and are going nowhere. If I get no responses after this I will be done and you will not beg anyone again to support. Just a name that you want to be a part of Ohio MAM supporters. Love to all, MAMOHIO

        • Bejah Blue December 13, 2015 at 10:50 pm - Reply

          Bless you MAMOHIO for what you have done and tried to do. I pray that this time you will get more responses. I do not understand why women are so resistant to become involved. Are they afraid they will be arrested? Are they afraid their attorneys will be upset with them? Are they feeling too unwell? Or are they, and I say this with great sorrow, only concerned about themselves and just waiting for a payday as some have speculated? GOD help us if this nation was in a war in our homeland and all Americans reacted like this…hiding in their houses instead of coming out to defend their nation. The failure to even respond, to even contact you and say “sorry I can not come, but….” is pitiful really.

          Having said that, thank you to those who do respond to MAMOHIOs call to action.


          • anonymous December 14, 2015 at 10:22 am

            ladies I don’t know about you or your state or any state for that matter but I am not afraid to do what I can do but I can only do it from my arm chair or bed. I am not afraid of being arrested I am Not Afraid of my attorney I am hurt I cannot stand more than 10 to 15 minutes at a time or sit for that long so what the hell do you want me to do I’m tired of you guys putting us all into a general category that says that we’re lazy or afraid or just want to pay day, stop it! I’ve always taken compassion and understanding towards all of my mesh sisters but for them to indicate or insinuate that I am lazy afraid or just waiting for a payday pisses me off until you walk a mile in my shoes and what has happened to me stop putting us all into a general category did you ever happen to think that maybe yes maybe we want to get our money maybe we want to go on with life my life is not going to be consumed by mesh it has been for the last many many years and I will not continue to have every minute of my day of the about mesh I wake up every morning trying to find a reason to get out of bed because here we are another long winter and there with nothing to do but sit in our houses we can’t walk anywhere can’t drive anywhere so where prisoners in our own home and then to see the other people that have been evidently hurt by mesh make suggestions that maybe we just don’t give a s*** and we just want a pay day is unfair to us to have been catastrophically hurt. And I have an exception to whoever wrote about we can all go to work we can all get through this pain and thst it is just in our mind I’m going to tell you something whoever wrote that I can not work through the pain I am on narcotics I have to find a way just to be able to eat sometimes because my stomach is so upset from the meds that I’ve taken I can’t eat I get nauseated I can’t even ride to the store anymore without being in pain can’t go out and look at Christmas lights because of pain don’t tell me that I can get through this pain and then it’s all in my head the doctor sure in the hell don’t think so that’s why they’re giving me the medication I have to take and sometimes that doesn’t even barely touch the pain down a little bit permanent nerve damage is not something you can just say oh well I can get through this and go on if you’re one of the lucky ones that can do that Bravo I’m all happy for you but I am NOT one of them people I’ve always said that if I could go back to the former self I would do it in a heartbeat but I am sick and tired of people making suggestions on this website that maybe we’re just lazy don’t care about other people or whatever I can’t sit very long permanent disability catastrophic injuries do you understand the meaning of these words I may sound angry at you right now and I will forgive you for insinuating that some of us just don’t care maybe some of us don’t but please don’t do the same thing that all the big medical companies are doing and throw it all into one basket there are many different levels and yes to those people who can go out and do something go ahead and try it its not going to make any difference the big pharmaceutical companies pay the government and if you don’t believe that you ain’t been watching what’s going on. As far as the getting through the pain issue again I have tried every last thing from acupuncture to physical therapy water exercises so many different meds I can’t even think of it electrical stimulation nerve blocks it goes on and on I’m gone to a doctor just about every week for the last 4 years and you know what maybe I’m just sick of it . Just so you know I have sent letters many letters but no one cares get it through your head unless you are a mesh family mesh attorney pharmaceutical company or God bless this angel from heaven Jane no one really cares. Seems lately though we lashed out at each other or implied things that are just not fair I’m begging you stop putting it all into one category maybe Ohio maybe that way I don’t know I know other mesh victims in my state who are also extremely hurt they can’t do much that’s just the way it is I don’t expect to live very much longer because my body is breaking down I keep getting infections things are happening to my body that just never happened before mesh yes I would you like some great miracle from the sky to come down and all the sudden it be on the nightly news and all of a sudden we’re getting paid what we deserve but realistically that’s not going to happen in the end I do want to pay day so that I can try other therapies that my insurance won’t cover so that I can try to find a normal life again where I have money to pay my electricity my heat and be able to buy food all in the same paycheck which doesn’t happen now none of this happened before mesh all of this is been after mesh you can scream it from the roof but again no one’s going to listen I don’t believe perhaps I am wrong I wish I was but you’ll excuse me if I don’t drive or try to get to Ohio or West Virginia or anywhere else because I don’t have the money I am fighting for my basic survival needs right now that’s all I have the energy to do so if I’ve hurt anybody’s feelings on here I’m sorry but I get tired of having people complain because the people in their state aren’t doing nothing perhaps people are like me hurt badly sick of the day to day struggle just to be able to get out of bed and have someone normal in a day maybe they too just want to put all of this behind them maybe we are a little selfish excuse me for being that way I think I’m entitled to a little bit of selfishness right now because my world is s*** and nothing I say or do to the government is going to make them do anything different they’re going to send me to programs for chronic pain and find a doctor for this and find a doctor for that no no more been there done that called every agency I could find and they all do the same thing they try to help us cope with what the living style we have right now and that’s all any of us can hope to do is cope and get through this nightmare the best way we can this will be just another Christmas for me in pain without presents without anything because of mesh and somewhere along the line big medical companies and the government are trying to basically say while too bad you were stupid you had put in the only thing I can do is give this all to my God and keep praying I know he’ll take care of me I believe in him and trust in him and that’s all I can do but again I ask you ladies please don’t put down assumptions that maybe the people are scared maybe they are let them be scared they have the right maybe they’re just lazy and they don’t want to do anything that’s their right to and for those people who can get up and go and do whatever they can at the trials protest whatever good for you if it makes you feel better go for it just please don’t assume that I’m just waiting for a payday because you know what I would give up my payday in a heartbeat to be normal again but I never will be and so I have to deal with that sadness and depression everyday because I’m a prisoner in my own home and no my permanent nerve damage will not allow me to do many things the only thing I have left is hope and faith

          • Jane Akre December 14, 2015 at 11:03 am

            I’m so sorry anonymous. Not too many people really understand but your words are powerful….. I”m sorry if any comments hurt you…. I’m sure they were not meant to. BTW- if you could do a story I would love to talk to you. Your lawyer would have to understand and Im sure there would be limitations which I could follow. I”m to the point where I believe the information getting out is the power you all hold. Your lawyer may feel differently and no one wants to hurt your case, but, if many people spoke up, if many attended these trials (I know many of you cannot) if many became more visible, I believe things would move along faster for you. Again, confer with your law firm since they are in charge of your case…

          • anonymous December 14, 2015 at 11:34 am

            Thank you Jane I appreciate your understanding and I will talk to my attorney thank you for understanding and I hope my mesh sisters would understand too that I would be the first to fight if I could that I would be out there doing everything I can possibly do if I could if some people are confused again please read Dr Vigna’s comments on catastrophic pudendal neurology damage some days I get up and I’m just angry at the world because of how I have to live now so please don’t have anybody take it personally but I want you to understand there are some of us that struggle to just making it through the day let alone doing anything else please Jane don’t leave us we would be in the dark without you without your kindness and your sweetness I don’t know what any of us would do thank you again from the bottom of my heart for being there for us and for understanding

          • Jane Akre December 14, 2015 at 12:15 pm

            I’m so sorry. I wish I had a magic wand to take away your pain… I would gladly do so.

          • Bejah Blue December 17, 2015 at 1:25 pm

            Anonymous, Please do not feel badly about this. The comments are general and in no way directed at you or anyone else who can not do more than they are. If I have upset you in any way please forgive me and try not to take these things personally. All you have to do is survive your life. Anything more is just extra. Your contract with GOD just asks that you survive your life. No one has any right to ask more of you.



    • Aaron Leigh December 14, 2015 at 11:04 am - Reply

      Totally agreed MamOhio! Our COMMUNITY NEEDS TO UNITE!

  13. jennifer December 10, 2015 at 7:03 pm - Reply

    I live in Kentucky, Ohio is not far. Let me know and I will go.

    • Jane Akre December 11, 2015 at 11:16 am - Reply

      Its in Kansas City Missouri. If anyone is in the area, sitting in the courtroom would be very helpful…. let me know.

  14. Donna Pringle December 10, 2015 at 8:37 pm - Reply

    Awe Jane, this sucks but speaks loudly about what big pharma wants to cover up!

    Hang in there. I have a feeling anyone who mentions anything about big pharma defence has a lot to HIDE! Lol


  15. Don't give up December 10, 2015 at 8:39 pm - Reply

    Jane this is against the law isn’t it they can’t keep you from watching what happens in a court of law if you are a reporter especially when your writing articles to let those all involved who has had a mesh product and had it taken out this is rediculous.I’m very surprised that none of the lawyers who work for the mesh victims have come forward to help you as they know how important meshmedicaldevicenewsdesk is for all of the mesh injured I don’t think Judge Goodwin would let this happen in his court room.Your doing something in which these big Pharma companies don’t like and they know your writing the truth and the truth hurts.

    • Jane Akre December 11, 2015 at 11:16 am - Reply

      No Judge Goodwin is a very smart man. He would not let that happen I believe.

      • K December 11, 2015 at 8:30 pm - Reply

        I’m really glad to hear you say that. I get frustrated with him letting the trials be pushed back. I really hope he wouldn’t allow what this judge has done.

  16. Don't give up December 10, 2015 at 8:57 pm - Reply

    I would also like to add if the defence doesn’t like what is being written on here then tuff don’t look don’t read these poor women have and are going through hell I know this because my wife is one of them how dare you try to take away this site from these ladies when everything else has already been taken from them.Sorry Jane this is just typical of what happens when people don’t want the truth to be told I hope you get to keep writing your articles as they are so important to so many men too who have been injured by mesh.Thank you Jane for all of your hard work I’m willing to send some funds to get you in the court room if need be I think all of your readers would help in getting you on a plane if need be if you wanted to get the story and truth out to us.

    • Jane Akre December 11, 2015 at 11:15 am - Reply

      I really appreciate it but I do not want to ask of you all financially….

  17. annonynous December 10, 2015 at 11:29 pm - Reply

    Any trials coming in Wisconsin I’m here. I will gladly sit in on any trials here. My health is not good,but willing to do what I can. …

  18. Peggy December 11, 2015 at 12:58 am - Reply

    Why not order transcripts and write story from them whenever they are made available to you? I’ve covered federal trails and was able to get copies of the videos about 3 or 4 days after each hearing. Peggy

    • Jane Akre December 14, 2015 at 11:20 am - Reply

      Peggy- then you know the tremendous cost associated with daily transcripts, at about a dollar a page, we are running into the thousands of $$. It’s a great idea but for far less money I could fly to KC and sit in the courtroom.

  19. Angry December 11, 2015 at 8:58 am - Reply

    I’m sure most injured would want to get to some of these trials, lots of us,probably thousands of us ! As most of us have been forced into financially ruined and or dealing with the every lasting medical nightmare that their junk product has forced down our throats. It is so sickening!

  20. Don't give up December 11, 2015 at 1:09 pm - Reply

    There’s an old saying don’t poke the bear and I think they have and it’s going to back fire them Jane your the mother watching over her cubs.I’m sure your cubs will be 110% behind you to help in anyway they can.

  21. Ronald James December 11, 2015 at 7:40 pm - Reply

    Jane can the commenters that they had a problem with, sue for freedom of speech? If they are silencing the voices of fellow victims, isn’t that illegal?

    • Bejah Blue December 13, 2015 at 10:53 pm - Reply

      Ronald, Did you not get the memo? They are above the law.


  22. Aaron Leigh December 14, 2015 at 10:56 am - Reply

    Seriously? I’m still trying to wrap my head around how that’s even legal. The government monitoring the press, beholden to the defendants? It’s friggin Tammany Hall!

    • Janis Urban December 15, 2015 at 8:08 pm - Reply

      The Bill of Rights means nothing today unless you are a Multi National Corporation, the Lobbyist, or one of the Wealthiest of Wealth, a member of the Private Club up on Capital Hill (our Congressmen and Senators) The bought and Paid for Main Media, acquired by Graft in so called Advertising Dollars. We the People have had our Membership revoked. Our voices to Congress, the Agencies that are put into place to Protect us, an entire Medical Community Ignored and now we are being shut out to coverage of a MDL because we express ourselves and seek information in an open forum. Can’t help but feel this is unjustified.

      • Janis Urban December 15, 2015 at 9:04 pm - Reply

        We fought for our Independence once. From that We the People became the Grantor’s and it is by our will that we have Representation and are Protected not the Lobbyist or Multi- National Corporations. I may be wrong, but the Declaration of Independence and the Bill of Rights granting us rights to be safe and happy and so much more…. seem to be missing from this Mesh Debacle?

      • Mamohio December 16, 2015 at 7:50 pm - Reply

        I agree Janis. Since we cant seem to rally enough troops I wonder how much billboards with our message near The big Pharma co. Or the state and federal courthouses. People drive by them everyday. Quick and easy but anyone know how much. Each state would be responsible for the cost. We could a “Go fund me ” page to help pay for the billboards or do fundraisers. But each board needs to same the same info with this website and maybe the mam fb page? Any thoughts?

        • Bejah Blue December 17, 2015 at 1:28 pm - Reply

          Nice idea MAMOHIO but methinks those billboards are pretty expensive and there is no assurance they would not be defaced even if we could pay for one (I’m guessing $500,000. per billboard). If we could get the owners to donate the space for a set period of time that might be possible.


        • Janis Urban December 17, 2015 at 2:09 pm - Reply

          I’ll do anything it takes to bring Mass Awareness to this Mesh Debacle. There is no way, even in Hell that any of this is RIGHT!!!! I’d give up my Monthly Social Security Check (I took early to have an income) to start the Fund Raising out. You could not script a story, screen play, movie that would come even close to the deception, greed, corruption, drama of this Debacle there are are so many twists and turns, cover ups. The fact remains that Bodies and Lives have been mutilated, assaulted and we have been Abandoned. Many more Lives are at risk daily. Bill Boards is a Good idea for they last more then a ad in a Newspaper!!!!

  23. kitty December 15, 2015 at 2:59 pm - Reply

    Didn’t u guys know that Michelle Obama and her husband Barack had considerable business with J n J. It would be nice if someone could go sit in court. I am getting stronger. Will be in DC 12-25. To 1-3. If anyone else will be there we could do something blog on and I’ll tell Jane whete to reach me

    • Bejah Blue December 17, 2015 at 1:30 pm - Reply

      I did not know about the Obama connection with JnJ Kitty. Thanks. I will search for more info. Happy you are feeling better.


  24. Mamohio December 15, 2015 at 7:16 pm - Reply

    I have received 1 name. You do not have to give your name or respond at all. The posters, badges, tshirts, posters will give the info to this page and the MAM fb page. You will not jeopardize your case. We need to just be seen! Bring family and freinds who have seen you suffer. We are beginning Ohio after the holidays just send me an email. The confidential info will NOT be posted anywhere. You will get texts. They cannot read or pull texts. We will then have a meeting before the WV trial and we will all go support the WV women. All States around WV can join OHIO or any state for that matter. We don’t have to say a word. Our presence will say it all. It is an awareness rally to give them the info to educate themselves before a hernia, POPNor SUI surgeries. Then we will go into the courtroom and support these women. Its now or never. AGAIN or 740-972-1885 or Pm me on the fb page MAM. LETS GO LADIES WE HAVE TO ORDER, ORGANIZE AND OBLITERATE information to all without saying a word! STAND UP AND BE COUNTED!

    • Bejah Blue December 17, 2015 at 1:32 pm - Reply

      Everyone, Please support this effort in any way you can.


  25. Bejah Blue December 15, 2015 at 7:34 pm - Reply

    If “they” are able to shut down Jane’s site (and I am really not sure I understand all of this) but if they are able to do that we should be sure we all have her email address and phone number so that we will still have a way to get in touch with her and each other and regroup elsewhere in cyberspace, perhaps in the undernet if it is still there.

    I wonder how a shutdown would look, would the site just be gone, would there be no more posts from anyone? It would at the very least be a severe blow to our freedom of speech, assembly, expression, etc. and I would think one that should be brought to the attention of the DOJ, the Senate, Congress and the Supreme Court? I am sure Jane will do what is appropriate. She is experienced where matters of just action are concerned, thank Heaven.

    I will take this opportunity to wish you all Happy Holidays….make them as happy as you can. I am too tired to get the tree out of the garage or put up outside lights but maybe tomorrow and maybe tomorrow it will not be so cold and so windy. I will do what I can. I hope you all are able to also, even put something decorative on the coffee table. I hung a couple of ornaments from lamp shades!


    • Still Standing December 16, 2015 at 8:28 pm - Reply

      Bejah, I may not understand what happened, but it appears to me that the judge wanted to cut access to Court View Network because the defense argued that this site is an advocacy platform, as opposed to a non-biased reporting news organization. In Dont think “they” nor anyone else can shut down a website unless It promotes terrorism or other form of anarchy, though that is still protected speech as well. The defense was obviously aware of the comments and believed they could interfere with the non-partiality of the jurors. It is disturbing that Jane was not allowed the opportunity to present evidence to the contrary. As it stands, our free speech has not been shut down at all, but a determination was made that MMDN is an anti mesh advocacy organization, thus the shut out from the court room feed. I would like to know how the criteria is set legal wise to determine the difference betwen advocacy and news organizations.

      • Jane Akre December 16, 2015 at 9:35 pm - Reply

        Still standing. First- this is not an advocacy organization but even if it was, there is nothing in the court rules that allow anyone to not have access to the feed, if they are disseminating information and news. Period. Defense wanted to cut out CVN as well, but they had a good lawyer step in. I was the compromise position. They cannot shut down a website ythat educates the public, especially a news site BUT THEY DID. Ironically CVN is not a news website but a for-profit entity that sells its videos.
        As I look at Administrative Rule #16 it says:
        “Nothing in Court Operating Rule 16 is intended to limit in any way the right [sic] any member of the news media to attend and observe any judicial proceeding that is otherwise open to the public.”

        Court Operating Rule 16
        Media Coordinator, shall work with and through the appropriate media coordinator regarding all arrangements for media coverage.
        “Pooling arrangements shall be the sole responsibility of the media coordinator, and the judge shall not be called upon to mediate any dispute as to the appropriate media representatives authorized to cover a particular judicial proceeding. Requests for copies of audio recording, video tape or photographs shall be directed to the pool representative only, who shall supply copies upon request to media representatives at a price not exceeding actual cost.”
        “COR 16 does not affect the right of the public, including a member of the news media, to attend and observe any judicial proceeding which is otherwise open to the public. In other words, this Rule does not affect existing law under which reporters, sketch artists and others may attend judicial proceedings as members of the public.”

        • Still Standing December 17, 2015 at 6:19 pm - Reply

          Jane, I understand that this is not an advocacy organization, but wondered if their perception was different.

          • Jane Akre December 17, 2015 at 7:19 pm

            What I don’t understand is the website it fully visible. Just look at it. Is there any advocating going on other than to file your adverse event report with the FDA? Am I posting the emails of defense counsel? Of course not. Emails will NEVER be posted to enable folks to contact or even to harass someone, no matter what side of the issue. NEVER.!!! I am adding that to the rules for posting so everyone is clear!… frustrating, can you tell?

          • Still Standing December 17, 2015 at 9:49 pm

            Absolutely understand your frustration and just perplexed after reading the legal wording how this happened. I dont understand the judge’s frame of reference. Just seems bizarre, but what about this mesh experience isn’t?? I live in Missouri and think I will send a letter to the editor of the Kansas City Star this weekend. i also have a contact there who reports on health issues. I will see if he is interested in doing a side story.

          • Jane Akre December 18, 2015 at 12:18 am

            Thank you SS. I did a Google search for Lori Cohen today. Guess what pops up first? Perhaps making your contact info so readily available is not a good idea if you don’t want to be contacted? Regardless, it is NOT a good idea to do that, especially during a trial. Readers, please do not contact defense attorneys! That little move and the resulting allegations of a threat may cost thousands to regain trial coverage or have it curtailed for good. Dumb.

          • Still Standing December 18, 2015 at 11:03 am

            So Jane. You do NOT want me to make contact with the KC Star until the trialmis over? Im a bit confused

          • Jane Akre December 18, 2015 at 11:10 am

            Media is fine and thank you!! Just not the participants in a trial during a trial….. that is over the top!. Never contact the judge unless its in a letter… just electronic communication is too invasive I believe.

          • Still standing December 18, 2015 at 4:33 pm

            I was not referencing any one in the court. My contact is at the KC Star newspaper

          • Jane Akre December 18, 2015 at 7:36 pm

            Got that… thank you for doing so.

        • MeshWatcher55 December 20, 2015 at 7:53 pm - Reply

          I’m not sure it’s fair to say selling content means a company isn’t news media. I’m pretty sure the New York Times “sells” copies of its paper, and that NBC News is a division of Comcast, a for-profit company. And if you watch the local news, I’m pretty sure all those advertisers are paying to run those ads. Nearly every news organization tries to sell their product. That’s how they stay in business.

      • Bejah Blue December 17, 2015 at 1:36 pm - Reply

        I think that Jane’s reporting is generally very neutral and I believe it is her intent to be certain that it is. The commentary is not something she has control over unless she bans it to please the defendants which I do not believe she can be forced to do. Have said that JnJ has a history of creating truth out of nothing at all and we should all be wary of this monster. I think we all know the best way to handle a bully.


      • Bejah Blue December 23, 2015 at 8:10 pm - Reply

        SS, Thought provoking points to say the least. Thanks as always for sharing your thoughts.


  26. Mamohio December 15, 2015 at 7:35 pm - Reply

    If you cant attend maybe you van help from home, make copies of the flyers for us to handouts. Or create a ribbon we could wear in unity. We have all been down similar paths. I was on fentanly patches that did help the pain. But there’s also deadly consequences. I am now on Butrans 7 day pain patch and it helps without all the side affects. But if you cant go or attend its ok but I know there’s more than1 woman out there who can stand up with us. So we have offered wheelchairs canes rolllators etc. Butnot one person commented they needed anything. You can come up with some idea and send to us and we will attach to our posters orntshirts. MAMstate your from. I will be gladly to help solve any problems you have if you really want to support just contact me with your concerns and we willnfind a way for you to be represented. We love and support all our mesh sisters even if I get pissed Bc the lack of enthusiasm doesn’t mean I don’t pray for you every night. But don’t complain and do nothing. Any obstacle can be countermeasured. We are smarter than what the Pharma Co think we are. WE ARE THE FREAKIN BACKBONE OF THIS DAMN COUNTRY AND I FOR ONE AM TIRED OF LAYING ON IT!

    • Jane Akre December 16, 2015 at 3:55 pm - Reply

      Yes and activism from your own couch- PLEASE file your adverse reports with the FDA. Have the reporting person read it back to you to make sure it is accurate!

      • Mamohio December 16, 2015 at 7:43 pm - Reply

        Yes already did that 2 yrs ago. Waste of time.

        • Janis Urban December 17, 2015 at 1:46 pm - Reply

          For several years I have been emailing and calling my Congressman and Senators to redress the 510(k) clearances. Asking the question if the Manufacturers, Hospitals and Doctors reported any of our complaints of adverse effects after our implants. It’s a Federal Law. We the patients really should not need to do this under this law. I doubt very much that they did? That is a lot of reports that our missing? I have asked my Legislators to open an Investigation on this Federal Law, the 510(k) policy, reclassifying the devices, the 21st Century Cares Bill and much more in regards to the medical, corporate negligence, the FDA’s handling of this matter and their neglect to even respond to my requests therefore I am demanding accountability for the harm that these devices have caused and to prevent further harm to anyone else in this Mesh Debacle. There are 7 Big Medical Device Manufacturers in the United States. 100 Billion Dollars Plus in annual Profits does not give these Medical Device Manufacturers the right to cause Bodily Harm, permanently injuring and destroying Bodies and Lives is against the Law. All the while you as my Representatives sit back and Legislate the Regulations that permit these Manufacturers to market these Untested Devices? And when they Fail and Lives are harmed you do nothing when asked. Correct me if I am wrong? Is Commerce over the Safety and Lives Morally or Ethically Right? I’ve tried to be nice…. the gloves have come out. It’s wrong!!!! So much is Wrong in this Mesh Debacle!!! Our Lives Matter!!!!

          • Jane Akre December 17, 2015 at 2:10 pm

            You’ve hit the nail…. the 510(k) approval process has let many defective devices onto the market in fact, most medical devices are approved that way. The public does not know that we are relying on those companies who have the most to gain, to give assurances to the agency that their product is safe. A third party oversight is much needed.

  27. Mamohio December 15, 2015 at 7:45 pm - Reply

    Join us if you are near WV in April. Contact me info posted above!

  28. Still Standing December 16, 2015 at 12:39 am - Reply

    Im not sure where to post this but I know some of you are interested in the new CDC guidelines for prescription opioids for management of chronic pain. The CDC reopened the public comments section for the guidelines yesterday. I urge all of you who rely on opioids for pain to go to these links and enter your comments. Below are the links to the comment section and to the proposed guidelines. The public comments close on January 13. Those who are involved with advocating for people in pain have worked hard to get the CDC to reexamine their proposed guidelines so there is some cautious optimism that they will rethink their policy. This is your chance to have your voice heard, so I urge you to read the guidelines and make thoughtful and honest comments about how restricting opioids for chronic pain management will impact you on a personal basis. After the public comments close, i will keep you imformed about when the modified draft is out. Please take time to take part in this process. If you have any questions about the guidelines,post your questions and I will try to provide clarification.

    To Comment :!documentDetail;D=CDC-2015-0112-0001

    Download the PDF of the guidelines –

  29. Mamohio December 16, 2015 at 7:54 pm - Reply


  30. Lorie December 17, 2015 at 3:48 pm - Reply

    I am here to stand with all of you! I am from Utah and I am willing to do what it takes to get our voices heard. I am looking for other women here in my state that are ready to fight with me. How do you find them? Any suggestions, guidance would be greatly appreciated. TY.

    • Janis Urban December 19, 2015 at 5:21 am - Reply

      17 years and the silent suffering continues. A medical Community that can implant these Untested Toxic Devices and 100,000 plus women have been permanently injured most are Ignored when the devices fail. There in no standard of care for the complications of mesh. We are as invisible as the mesh is that is in our bodies. Recently I received a letter from the Director of Risk Management of Summa Health Systems in Ohio. Summa is a very large Health System with over 1000 Doctors, I had approach them to form a Panel of Doctors to sit down and discuss the Complications of Mesh to possibly format and implement a Standard of Care Policy for the Complications of Mesh. The Director of Women’s Health assured me that Summa follow the guidelines of AUGS and sent me the Guidelines from AUGS on the exact type of SUI Mesh Device that I was implanted with. No where did I mention any type of Device. She had called my removal Doctor and asked him about me?(Hippa Laws)?I wonder? I sent several more emails with all kinds of Data, videos, studies, opinions, press releases. Then the certified letter came from Summa’s Risk Management . They appreciated my zealous manner and passion for my cause, but have not the resources or desire to form a Panel of Doctors to discuss Mesh and felt that my emails were forceful and threatening and I was to cease and not contact any Doctor in the Summa Health System about mesh and the matter is closed. This just shows me that a Mesh Injured person is abandon. 17 years later and Summa has no Standard of Care for the Mesh Injured. In fact the Doctor who removed my mesh told me 10 weeks after removing my mesh (I had10 wks open wound care for infection) that I was his first Mesh removal??? He implants between 80-100 women with mesh every year. He is very skeptical of the complications I have from mesh but listens and learns. I’ve told you this for a reason..our struggle to receive medical care for the multitude of complications will continue, we are toxic a liability and its hands off. Do you want to live like this for the rest of your lives? I don’t. It’s time to tell Congress to Investigate. Call them, Email them NOW. Big Election Year coming up. How can it be wrong to ask that the FDA and Congress to Investigate this debacle? How? It’s Time. A Tort System is never a effective Regulator.

  31. Mamohio (sad & disappointed) December 22, 2015 at 11:07 am - Reply

    Honestly I don’t think too many women want or can fight. I have tried and tried on this sight and the fb site, left my number, fb pm, email, and no responses but maybe one. I know Janis Urban is from Ohio and I will support her after the first of the year if she contacts me for support. She has my number. I am no longer MAMOHIO, I will no longer ask for your support, offer to pay for rally needs, or etc. The billboards idea I thought was a great idea to collect monies in our own States and get the awareness out. BUT NO RESPONSES. So I will support when I feel the need, requested or asked. Obviously its all about the money, yea I get it I want compensated too! BUT ITS ABOUT AWARENESS TO OUR OTHER SISTERS TO EDUCATE THE HAZARDS OF MESH. Anyway, I will no longer be active on this page or fb. Good luck to all of you, I wish you all great health and happiness over the holiday’s and the New Year 2016. I have done my part, filed for reclassification of the mesh to the FDA, I have written, emailed, etc to over 50 women advocates, news sources, political people and you my mesh sisters. Its sad when most people only care about themselves in this world. I get it with the politicians, news, lawyers, pharma co, etc they truly don’t give a shit. BUT my mesh sisters esp OHIO I am more than disappointed in your lack of particpaiting in anything. Except for a couple, they know who they are and Jane you are the true epitomy of how women should stand up and be heard. I hate to say it but I am sincerely discouraged by the lack of enthusiasm to help bring awareness to others from us women who are living this pain every day. I tried and I am done. Good luck and God bless you all. MAMOHIO IS DONE FOR GOOD, YOU WILL NEVER SEE ANOTHER REQUEST OR OFFERS LIKE I HAVE MADE. I WAS PREPARING TO SPEND MY LAST BIT OF MY IRA TO GIVE YOU THE PLACE, TOOLS, VOICES FROM YOU AND BE A VOICE FOR YOU. BUT I CAN ONLY TAKE A SLAP IN THE FACE SO MANY TIMES TO KNOW YOU NOT RESPONDING TO MY SERVICES AND SUPPORT. LOVE TO ALL AND I HOPE YOU GET THAT POT OF GOLD YOU’RE EXPECTING. BETTER YET THE GREATEST OF HEALTH GOD CAN GIVE YOU. Just do me a favor and keep spreading the word.

    • Jane Akre December 22, 2015 at 11:34 pm - Reply

      Mam I’m sorry. Don’t go away. You have done more than most but understand many women cannot move out of their homes. Many have been frightened by the law firms not to do anything. That sort of freezing has not happened to the Essure folks or power morcellator women for some reason. So yes, I hear how discouraged you are. I’m sorry… You did a wonderful thing. I know for a f act that thousands of women participated in your rally remotely by looking at the pages and images. You did good work! You should be proud.

    • Bejah Blue December 23, 2015 at 8:21 pm - Reply

      Dear MAMOHIO, Thank you for your efforts. Please do not leave us though. We are very thankful for your enthusiasm and for trying. I do not know why things happen as they do but consider the percentage of people who vote, for example. You are not alone. People will learn that if they do not become involved, do not vote, do not tend to their nation, their citizenship and their responsibilities they will eventually lose their Democratic form of government and much more. This is already happening. Some of us are, we know all too well, too sick to attend any gatherings, and to exhausted to do much of anything but managing their households. Some do participate and take action and we are very thankful to have them. Others do not do much at all and I do not understand why, perhaps they are just numb, after all our lives have been permanently damaged to some degree and that can make it hard to move through the day. We must continue to do what we can and not ever give up.


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