Mesh, Autoimmunity, Allergies and Vitamin D

//Mesh, Autoimmunity, Allergies and Vitamin D

Mesh, Autoimmunity, Allergies and Vitamin D

Mesh Medical Device News Desk, June 25, 2018 ~ In some mesh-implanted patients, an autoimmune response is incited.

There are far too many cases to be just considered coincidental to the  average observer, but how might that observation become science and what is happening within the body of an implanted patient?

Mesh, Autoimmunity, Allergies and Vitamin D

Jan Willem Cohen Tervaert, is the Director of Rheumatology at the University of Alberta, Canada.

His current fields of interest are inflammation and autoimmunity caused by not only genes but environmental factors such as low levels of Vitamin D, S. aureus (Staph. Aureus bacterium), silica and the foreign body implantation of silicones, such as breast implants and polypropylene mesh. All appear to be factors in the development of autoimmunity disorders.

As a result of his interest, women with systemic reactions to their mesh, as well as men implanted with hernia mesh, are being referred to him.

The similarities to silicone breast implants are tough to deny.

The reports are numerous, pain, rashes, muscle aches, weakness, brain fog, even Lupus, and cognitive impairment. Treating doctors says there is no evidence.  You are alone, no one else reports these symptoms. Maybe they are in your head.

Professor Cohen Tervaert believes large scale studies are needed into the link between mesh and the development autoimmune disease.

In women with silicone breast implants Professor Tervaert has identified ASIA – Autoimmune/Autoinflammatory Syndrome induced by a spark called an adjuvant, an additive that activates a response.  Adjuvants are added to vaccines to make them work in the body.  It has been demonstrated that silicones also act as an adjuvant.

Remove the implant tends to cure the symptoms.

If silicone acts as an adjuvant, might polypropylene (PP), the main ingredient of most meshes be one too?

Your Editor, Jane Akre talked to Professor Tervaert about his findings.


Macrophages at work, Stonybrook Medicine

Q: Maybe you could tell me when you started seeing mesh implanted women, how many and what are you telling them? And with hernia patients too?

I saw 40 patients in the last several years, eight were men and 32 were women. The symptoms were basically the same as seen in patients with ASIA (Autoimmune/Autoinflammatory Syndrome) as has been described for silicone breast implants.

Mainly patients are very tired, even when they wake up and generally if they have an extra day where they have to be active, the next day they have to lay in bed to recover.  It’s called post – exertional malaise (PEM). They have pain in their muscles and joints and generally widespread pain. Frequently in these patients a diagnosis of Fibromyalgia or Chronic Fatigue Syndrome is made.

In addition, they often have fever or feverish feelings like menopause flushes, night sweats. Another important symptom is sicca or dry eyes and dry mouth.  And that can result in burning eyes and inflammation whereas dry mouth can result in gum disease, problems with swallowing, and enlarged salivary glands.  Also we see general cognitive impairment with problems finding words and concentration problems and forgetting things.

Those are the six symptoms I encounter most and are comparable with ASIA as seen in silicone disease (breast implant patients).

In addition, they sometimes have not well understood neurological symptoms which are stroke-like or Multiple Sclerosis-like. Patients might develop a numb leg or a temporary paralysis of the leg. Also Raynaud’s phenomenon (numb fingers in the cold with tripahsic discoloration such as white, blue and red) is frequently found. They also may have irritable bowel syndrome (IBS) or at least abdominal pain because the mesh itself is painful, so pain is an important characteristic.

It’s also important that 8 out of 10 patients have allergies that were pre-existing, so before the mesh implant already present. Allergies generally become much more severe after mesh implantation.

Dental work, Erik Christensen, WikiCommons


Q: What about dental symptoms such as losing teeth? A lot of women complaint about that.

Dental is related to gum disease. If you produce less saliva your teeth are not in good shape.  Saliva is very important as an antibacterial mechanism to keep your teeth in good health.

Q: Could all of these symptoms in so many be simply coincidental?

That’s an important question. Because we see a specific combination of symptoms in patients with ASIA, we think it is more than coincidental. Of course, opponents of the idea say it’s coincidental.  So that’s why we need more research into this.

One of my PhD students actually did some research on silicone breast implants complaints and she found that compared to the normal population, this combination of symptoms was three times more often present in breast implant patients, suggesting there is an adjuvant mechanism operative and that these symptoms probably are not coincidental. Before we can say we can exclude it as coincidental, we should do more studies in patients who got a mesh implant as well.


Q: What is going on in the body of both hernia mesh and pelvic mesh patients?

These symptoms are probably not coincidental because we also see other symptoms of adjuvant disease, which is the occurrence of well-defined autoimmune diseases, which I found in my population in 45%, and finally also immunodeficiency. We postulate that the immune system cannot make enough antibodies anymore because the immune system is so tired it cannot at a sufficient level.   So, what is the adjuvant mechanism? Adjuvant means the immune system is helped by a certain chemical or in this case by a foreign body. It means the immune system is constantly activated.

Adjuvants were discovered in the beginning of the 20th century.  They have played an important role to make vaccines.  Without that generally peptides of a dead bacteria do not induce sufficient immune response so they need a helping chemical, mostly aluminum salts these days to activate the immune system. Not only aluminum, but also silicones are a known activator of the immune system, as well as most microbes.

Biofilm around mesh

Also there is research that demonstrated that foreign bodies implanted in animals act as an adjuvant. Is it the foreign body reaction or is it the biofilm which is around most of these foreign bodies and that contain bacteria that is responsible for the adjuvant activity?  We don’t know. The hypothesis is that these foreign bodies, like mesh, induce the adjuvant activity.  But whether the microbes in the biofilm play a role as well, we don’t know. It is clear, however, that there is an adjuvant activity, resulting in an activated immune system causing symptoms such as feverish feelings, fatigue, myalgia and cognition problems. So that is basically the hypothesis.

Q: The body is smart- it senses something is wrong and it’s responding to it?  

Yes, immediately if you implant, the body reacts. That’s a little bit problematic because officially these things were put on the on the market as if they were inert and non-toxic but they are immediately recognized with a foreign body reaction. The foreign body reaction starts with all kinds of proteins and histamines. Subsequently, all kinds of white blood cells – specifically macrophages are attracted to the foreign body. Finally these macrophages turn into giant cells giving the typical foreign body inflammatory reaction. Everybody agrees on that. There is not a lot of research needed. Industry tries to avoid this foreign body reaction but to my knowledge that is not possible. So, there is a foreign body reaction with those inflammatory cells around the mesh.

Q: What would your large population mesh study look line? 

Mesh explant, St. Michaels Hospital, CTV Mesh Misery

These are the questions that need to be asked and answered:

Among the patients with mesh implants, so more of them have complaints than observed in the normal population?

Do we see more autoimmune diseases in patients with mesh than in the normal population?

The third question is can we demonstrate, with a good animal model, that autoimmunity can be induced?

For silicone breast implants these studies have been produced.  Similar studies in mesh implants should be performed. Hopefully, there is a little less reluctance to approve this whole concept of adjuvant disease in patients with mesh. In breast implants, the concept is not yet widely accepted. Unfortunately, breast implant studies always trigger non-evidence based opinions.

Finally, it is my dream to develop a genetic to predict which patient will suffer from mesh complications. How the immune system reacts is in your genes. What we’d develop now is a screening tool with a questionnaire to patients. But it would be great if we could predict this using just a little bit of DNA.

Q: Breast implants are still on the market though.

In the Netherlands, the breast implant victims sued the inspector of health and wanted them to get silicone breast implants off the market.  They were not successful but we should focus on the fact that we can predict better who is going to be ill.

Getting silicone breast implants and the mesh off the market it too difficult because the options as an alternative are not that well established yet.

Q: Describe the allergies you are referring to?

Generally allergies were hay fever, house dust allergy, dog and cat allergies, allergies to nickel, those are the main allergies among my patients who had an overreacting immune system.

Q: Could we call them “high reactors”?

You could translate that as a quickly over-reacting immune system.

Vitamin D Walgreens

Q: Was there any immune suppression therapy or vitamins or diet that could address that?

We don’t know, but we know that allergies generally become less severe if Vitamin D levels are in the normal range. If you have a low Vitamin D your allergy is more severe.

There have been some studies where allergies are treated with Vitamin D supplementation. .   And we have proven if you measure several factors of the immune system, such as hyper-reactivity, it can be down-regulated by high doses of Vitamin D.

So, Vitamin D seems to be the safe therapy that could be given to patients and also as a pre-treatment.  Generally, a Vitamin D dose of 800-1000 IU (International Units) is sufficient, though recently some advocate 2,000 IU.

In studies we performed, to down-regulate the immune system, to down-regulate the hyper-reactivity of the immune system, we used 10,000 to 15,000 IU per day.

Q: What did you see when people were treated with that?

We saw better regulation of the immune system.

One of my PhD students actually became the principal investigator in a large study, not yet published, but has been presented in abstract, where the patient with MS (multiple sclerosis) not only gets their standard therapy, interferon beta, but also 15,000 mg of Vitamin D a day. And what they found is that at the end, the patient with high dose of Vitamin D had fewer lesions in the brains. That’s really considered to be an effective therapy.

Q: Did people feel better? 

That’s another issue, I’m not sure in this study but generally there are many studies showing high dose Vitamin D is an alternative method to reduce widespread pain, and fatigue.   So there are all kinds of reasons to treat these patients with high does Vitamin D.

Q: Any Vitamin D?

It has to be Vitamin D 3!   Most of it is Vitamin D 3 today.

Q: Should a warning about pre-existing allergies be in IFU (instructions for use) with a mesh implant?

Because of the similarities with silicone breast implants, I’m convinced that that is the way to go. From studies in breast implant patients, we already concluded we should warn every person that wants silicone breast implants, if they have a prominent history of allergies – they shouldn’t do it.

In The Netherlands, for breast implants there is already a warning about allergies.  Two years ago, a warning was sent out to all plastic surgeons that any patient with a history of allergies should not be a candidate for a breast implant.

That didn’t happen in the U.S.

Polypropylene raw resin pellets

Q: What role might the chemical additives to mesh play in sparking a reaction?

I’m not an expert in biomaterials, the hypothesis I put forward is that polypropylene (PP) itself induced a foreign body reaction and subsequently acts as an adjuvant. So, I don’t need other explanations yet.  A similar study with silicone breast implants, silicone is causing adjuvant activity, but the biofilms may contribute, I don’t know.

Q: Is it fair to say PP is not an ideal material for implant and is not biocompatible?

It’s fair to say it’s recognized by your immune system there is no discussion about that everybody knows.  If you remove those meshes that have been placed in hernia patients, and we did it with some patients and then examined the mesh, a massive foreign body reaction to the mesh was seen in the explanted mesh.

Q: Yes only a percentage have reactions?

Yes, but we don’t know which percentage. In silicone breast implants, we estimate that about 15 to 20% of the population will get symptoms of ASIA.

Q: That’s what we’re finding in mesh up to 30% of the population is reacting. 

So that would be in line, yes. ###


Camb Times- Kath Sansom Interview, June 12, 2018


By |2018-07-10T17:51:37+00:00June 25th, 2018|News|27 Comments

About the Author:

I’m National News Editor, Jane Akre and I began Mesh Medical Device News Desk aka Mesh News Desk (MND) in the summer of 2011 just after the Food and Drug Administration issued an explicit warning to the public that complications associated with surgical mesh used for prolapse repair (POP) and incontinence (SUI) are NOT rare! That was the starting point for the litigation you see today and thousands of lawsuits have been filed by women whose lives have been altered, some permanently, by the use of this petroleum-based product.


  1. Suzanne McClain June 25, 2018 at 12:47 pm - Reply

    I have been saying for the last couple of years that meshies with autoimmune complications need to be tested for Quaternary Ammonium Biocides and Oleamides. I am still trying to figure out how to go about this, as I definitely want to be tested for these two things. Meshes, as I understand it are dipped in these two ingredients, and complications may include asthma, changes in eye site, and skin rashes/lesions. I have all three of these complications. SAD, what Big Pharma and the FDA have done to us!

  2. Ed June 25, 2018 at 6:21 pm - Reply

    Wow, this just about sums up, all the issues I have been having since the mesh was used I. Me in 09 for bilateral hernias. 1 more that occurred quickly was enlarged prostate…..BUt out of over 20 doctors I have seen, only 1 would even entertain the thought that my issues were caused by the mesh…Not that there is any hope of some one actually. Helping me at this point, maybe someone else won’t have to suffer as have I and many others..

    • Jane Akre June 25, 2018 at 9:05 pm - Reply

      Let us know where you are, perhaps there is a doctor who has some knowledge of mesh complications near you…

  3. Cheryl June 25, 2018 at 10:37 pm - Reply

    Would love to know about aquired hemophelia factor vlll which my hemotologist stated and charted from tvm ob mentor tape 2004 eroded ..2014 35 blood transfusions WHOLE BLOOD AND FACTOR novo vll ..

  4. Lesley O June 26, 2018 at 7:06 am - Reply

    I have my explanted mesh pathology report describing clear foreign body reactions to the mesh. It was Dynamesh IPOM hernia mesh. If this Dr wants a copy, I am more than happy to send it.
    Interestingly I have allergy to nickel and an unknown.

    • Jane Akre June 26, 2018 at 12:30 pm - Reply

      Wow- please print this story and send it to your doctor or email him it……

  5. Anonymous June 26, 2018 at 9:11 am - Reply

    I have most of these symptoms and I was diagnosed with fibromyalgia. I’d like to see if maybe some doctor could figure out that perhaps if it was from the mesh. But I pretty much given up all hope of getting any help or ever being paid for all of my injuries that I have to live with the rest of my life. In fact in the last few weeks I’ve gotten a notebook and I’ve written down things that I want at my funeral. My responsibilities on this Earth will be up before I know it and I can leave this earth. I cannot live the rest of my life with the pain that I live with. I cannot live with the fact that my life feels like it’s over because I can do none of the things that I used to be able to do. And the sad thing is even the attorneys are buckling under and giving in and not taking a lot of cases to court. Instead they pressure their clients to settle. It seems like except for Jane and for a very few other people no one cares. Not the judge not the attorneys and sadly enough many doctors don’t either. All you have to do is walk into a doctor’s office and say the word mesh and immediately you get eye rolls, a pursed mouth and dismissed as some lady just trying to get a dollar. I thought perhaps after the 60 Minutes piece things would get better but it did not. I hope the men and the women who did this to women or who are trying to dismiss women face God one day and have to pay for everything they did. Because there is no hope here on the Earth. I will live with pain and any of the symptoms that are mentioned. I thought there may be something wrong with my brain perhaps a stroke coming perhaps all Alzheimers and every morning I wake up in pain. After reading this story all the symptoms seem to fit. If I go out on an outing just for an hour or so I know the rest of the day will be laying in bed crying in pain and this will last for days. I have no hope or dreams of the future I can only survive until my responsibilities are taken care of. Any of you who may read this may think this is so dark. Well I have a right to disappear. Who I was has already disappeared. The person that used to laugh and be active and have so much fun only sees darkness and pain ahead of her. I can’t even afford the medical care that it’s been recommended for me . My medical company has left me disabled and broke . For those who care they can do nothing. The damage was done the day the my medical company put this device out on the market. I have talked to counselors and Priests and ministers and everybody you can think of no one has the answers no one can help. Perhaps if we were 5 million strong someone would take notice but because there’s only in the greater scope of things were people would call a handful of women who had problems we will be dismissed buried and forgotten. Thank you for the article it sheds a lot of light on what’s going on with me. There is a doctor who is told me everything I’ve experienced was for mesh. but unfortunately I don’t even live close to him so I can’t see him all the time. So I live in a constant state of no hope, depression, pain, confusion, concern, and a complete loss in faith in humanity and the justice system. Not to mention how sad and in disbelief about all the attorneys who tell people to settle even though our lives have been destroyed forever. And if you have a bad company as they say some attorneys won’t even look at your case they won’t even help you. after all if they can’t walk away with more money than you or just as much money as you then you’re not worth it. All I can say is I hope that God gives Mercy to your greedy selfish Souls all of you who destroyed women with your motives.

    • Jane Akre June 26, 2018 at 12:25 pm - Reply

      Anonymous- Your story makes me sad and MAD. Especially since I know you have AMS and one of the executives is planning on re-launching their incontinence products!!! Can you send him this message? Here is his contact information. I suggest mailing it certified mail…..Is this the definition of insanity? I’m so sorry, you are depressed and in pain and in need of medical intervention.

      An SEC filing from March (here).

      701 North Third Street,
      Minneapolis MN 55401

    • Jen June 27, 2018 at 8:40 pm - Reply

      Hi, please don’t give up! I’ve been in his darkness with you but you have to find a Dr who will listen to you and treat you for it! It took me YEARS and more Dr’s than I could even count, like you I got the eye roll, the look of “yeah right” I even had a woman Dr who was the head of a University women’s clinic tell me I was having Phantom pain! So I get it! After years had past nd I had all but given up, word came to me there was a local Dr who had begun helping women with mesh issues! So there are a few out there and I can say this Dr listened d believed me and did more scar tissue removal and I did so much better, there are still times the pain will hit from out of no where for no apprrante reason, I’m still living in the fog/dry eyes/ massive abscess tooth that I had no pain with but have had over a year and I’m trying to get all that sorted out, the tiredness and exhaustion daily is what drags me down. I look around at all the things I “use to do” and it hurts me so to know I’m not physically able to do those things anymore. Only the people who have had his done to them can understand the pain, the sickness and the frustration of it all. I agree my life as I knew it was taken from me the day that mesh implant went in. But I want to leave you with something positive so let me say, the past few months have been one of the hardest for me to get through, the depression came to stay or so I thought this time. I finally went to a a shrink who got me on the antidepressant I needed and it took several weeks but suddenly I found myself laughing again! Enjoying being with my husband again
      So there is hope! There is always hope! Never give up for tomorrow may be the day when a way is made for you! I pray a lot but even my faith wavers through this ordeal and sometimes I have a hard time talking to God. But when I hear of others hurting that I can’t help I go to God in prayer and ask Him to touch everyone who is suffering from this. I know He’s able. #nevergiveup.

  6. URSULA June 26, 2018 at 3:18 pm - Reply

    I have all of these symptons. My mesh is polypropylene mesh from Atrium, but I think they are all the same. My mesh protruded through my vagina and 11 months after insertion part had to be cut out along with scare tissue. So I have not been able to have sex since my first surgery, because of mesh damage and pain. I have been hospitalised a few times because of fever and pain. I get rashes on my arms and fingers and torso. I am extremely tired all the time and get pain in my legs and feet and terrible pains in my stomach. I get exteme hot flashes and bright red in the face. My allergies are now supper charged. I have a hard time finding words at times and have brain fog. This mesh has ruined my life and quality of life. I now get sick very often, which I never did before. I have had 3x pneumonias, shingles, 3 x virtigo (once for 4 1/2 months) , dry eyes and mouth, pains in the rectum area, pain in the vaginal area and lower abdomen….and at times bowels and abdomen sounds are absent because of damage…….ext ext

    • Jane Akre June 26, 2018 at 4:32 pm - Reply

      Was your mesh cut from a sheet? I’m not aware of any pelvic mesh made by Atrium….Or do you have hernia mesh that cut into your vagina? You are right it is coated polypropylene… pls advise please.

  7. Vicky June 26, 2018 at 5:40 pm - Reply

    This is me, I have allergies before the MESH and now I have an auto immune disease, most likely Lupus. It’s ruined my life.

    • Jen June 27, 2018 at 8:50 pm - Reply

      It’s amazing the more I learn from reading these articles the more clear things become not longer is my increase in allergies mysterious but it has a reason! My eyes got so bad at work last year I had to leave and go to the eye dr! I thought I was losing my vision but thankfully it was just dry “skin” in my eyes and some drops were given to me to use for a few days, here I am Year later and that same old dry eye has started again. I have rashes on my arms, my tongue itself often feels like it’s burning or I have thrush? I have one appt on my scalp that started out as a bump but it has now been there at least two years and it won’t heal completely I do know any cuts or such on my body do not heal in a timely manner anymore! Not to mention the day you might feel okay or even pretty good for a while but then your wiped out and cannot go another step! What is that about? So many things happening to our bodies and we don’t have a clue it’s related to the mesh until you read an article like this and all the bells start going off in your head; it’s like clarity, that’s what was causing this or this! Simply unacceptable.

  8. Mariel L. June 26, 2018 at 7:41 pm - Reply

    As I read the article my body contracts as it recognizes all those symptoms. I wish I would had found this doctor a few years back when my body was crashing down and doctors didn’t know what’s going on with me. This doc has describe me 100% I had umbilical mesh and breast implants. Until 6mo ago I thought I was not going to last long in this world since I stopped being able to eat and lost 60lbs in a few weeks. I’m still weak, 20lbs under weight, still in pain(lesser intensity than before) and low energy, but I have had a long and painfull joyrney to be where I’m at right now. I have found most of my progress has been to a combination of treatments. I used western(for diagnoses only), Chinese medicine and other like ozone and cryo therapy that has help me the most.
    Unfortunately, I lost my trust on western doctors, and I have been treating myself. I know still a long road to full recovery, but I have lots of hope because my son needs me and I’m fighting with all I got.

  9. tiredofwaiting June 28, 2018 at 10:34 am - Reply

    Wow…..Some days I feel like my blood is boiling. I sweat constantly. My teeth, which I take care of are deteriorating.

  10. Kathy July 5, 2018 at 6:58 am - Reply

    Great interview ! I have each issue he discussed. I take 3000 IUs of vitamin D3 a day ( still have low numbers), have Fibromyalgia, wake up tired. I have such pain, allergies, my immune system weak. Pelvic pain at my age, 60, is not normal. I’ve had mesh since 2007.
    Still waiting for help.

    • Still Standing July 5, 2018 at 7:41 pm - Reply

      While I respect the knowledge of Professor Tavaert, I think readers should understand that excessive vitamin D does create some serious health problems and I hope people havent decided to start medicating with Vitamin D in large doses with just this information. The current medical thinking is that most all adults have an adequate amount with an average diet and some exposure to sunlight. Even 15 minutes of sun on your limbs gives you more than enough vitamin D 15,000 or more. In fact, new guidelines discourage routine vitamin D testing in adults. Many sources discourage intaking vitamin D above 4000. You cant just factor in the amount of your D supplement. If you take a daily vitamin, they usually contain 200% of your daily vitamin D. Milk products, including ice cream, yogurt, cheese have added vitamin D to maybe 35%. Fatty fish has vitamin D. Orange juice has. Added vitamin D and egg yolks and cereals. It all adds up. If your total intake of vit d is over 10,000, you can develop toxicity.

      Too much vitamin D can cause muscle weakness and fatigue, digestive disorders,excessive thirst, high calcium in the body, which actually HURTS your bone density, and many more issues, including kidney damage.

      You can read more about this through Harvard Health, WebMD, and other sites like Popular Science. Just please talk to your own doctor before you decide to take more D. It is not a benign product when used improperly.

  11. Kathy July 7, 2018 at 5:49 am - Reply

    Still Standing,
    Very good information. I’ve been on 3000 a day for a very long time. I’m tested often and still very low.
    I also would recommend taking Vitamin D only in the morning as it can interfere with sleep is taken later.

  12. Still Standing July 7, 2018 at 4:36 pm - Reply

    Sometimes medical,people dont get the impact of Vitamin D from a DNA Methylation perspective. You may be genetically predisposed to not being able to utilize certain Vitamins. It you have a D Merhylation mutation, your body is not capable of breaking down the D in a way that can be used in your body. I have this with vitamin B . I had a great deal circulating in my blood, but could not utilize it on a cellular level, which is what counts. I have a folac acid mutation. Taking folic acid is harmful to my body. I can take natural folate, but the cheaper folic acid, which is in about everything you eat is actually harmfulmto my health. If you have the financial resources, go to a functional dietician or functional medicine doctor and have a good DNA test done to see if you have methylation issues. Dont do the 23 and me test. It only gives raw data and you have to find someone to download it to a program and interpret it. Genomics has a good DNA test, but it is about $400, but if you are spending money on supplements that cant be absorbed properly, you are wasting your money. If you have genetic mutation, there are food and supplement things you can take to help you utilize the vitamins you can take. Of course,the purpose of Vitamin D is to help us absorb calcium. Have you had a bone density scan to see what your bones are saying about vitamin D utilization? Taking vitamin supplements cant be done in a vacuum. How your body uses the vitamin on cellular function is a wise and important variable to consider.

    • Jane Akre July 7, 2018 at 11:51 pm - Reply

      Thank you for that… so are you advising the $400 test before you spend more money on supplements?

  13. sarah July 8, 2018 at 10:51 pm - Reply

    I have had multiple episodes of something called Lobular Panniculitis with necrosis. Plus, chronic low grade fevers and one hand that swelled like a bear paw, starting about a month after my last two hernia surgeries.

    Has anyone else had panniculitis after hernia mesh? All my blood work comes back great and looks like I will live to one hundred….which I don’t want to with the pain in my hernia area now. I’ve been battling this for 5 years now. My inflammation in my blood is as low as you possible can get even though the biopsy shows inflammation. I also have horrible feeling the my skin on my inner thighs are being burned alive. Now that Dr’s won’t help you with chronic pain it’s so unbearable. So far the rheumatologists don’t know what to call me except “unknown inflammatory condition” . I have allergies to metal, and life threating allergies to penicillin and contrast iv, so I fit all of what the dr in the article talks about.

  14. Mart July 11, 2018 at 4:42 pm - Reply

    I to have been diagnosed with fibromyalgia and have a vitamin d defiency still having abdominal pain after mesh removal still having continuous inflammation and unusual symptoms when my bladder fills I’m having severe pain mesh had started to go around my pelvic bone had to have my urethra reconstructed and wear a bag for 2 weeks repetitive infections when will this nightmare end

  15. Noon July 18, 2018 at 11:18 pm - Reply

    I am a victim of this, but I was on the Mdl 2325 against AMS but I feel that the settlement payment was not enough for the suffering I will continue to have. The only reason I settled is because the Attorney Was urging me to do it or he would have to drop me as a client and when I replied that I didn’t want to do this he said to look for another attorney but I would still have to pay him in the end, and that it was the best offer I would get. How can someone who has no clue of what I am experiencing and the torture I have already been through tell me what my pain is worth? I mean 2 devices implanted and 4 surgeries and still need more and at the age of 30+ is a big deal, my husband left me, I cant work and became homeless yet somehow he felt like he summ that all up to thats the best i will get, after all said and done i end up with 13,000 and everyone else had a field day on my expense, not to mention that I was the one collecting everything and paying for everything yet they billed for it.. they couldn’t even remember my case. I am very frustrated with the service, and the neglect i received during this entire ordeal, yet still suffering through it all.
    Is their anything I can do to have my case reviewed to make sure that I received the proper justice?

    • Jane Akre July 18, 2018 at 11:40 pm - Reply

      Have you signed off on the settlement? Once you do so, you have entered into a contractual agreement to take the monies offered, no matter how pathetic. As you know, it is based on the number of removal surgeries…. what does your lawyer say? If they promise there may be more money down the road, sorry, but that doesn’t ring true and may just be a way to encourage you to sign,,, but that’s just my opinion.

  16. Barb July 20, 2018 at 12:50 pm - Reply

    I also had severe reactions to the mesh immedately after it was implanted. Ran from doctor to doctor with them all telling me it wasn’t related to the mesh. After suffering for a few years, I decided to try testosterone therapy after researching and seeing it helped MS patients. For the past 5 years, I have been getting testosterone implants every 3 to 4 months and it;s been amazing how much it helped. I also learned about LDN and decided to try that too. This combination has given me my life back. I just wanted to share, hoping it may help someone else. I’m still debating on having my mesh removed and would love to talk to someone that has had it done or find a doctor that can help with this decision. I live in Ohio. Thanks Jane for getting this info out!

  17. Brendan July 22, 2018 at 11:55 am - Reply

    I had laparoscopic inguinal hernia repair surgery using mesh in April of this year. I have had problems with eyesight, foggy brain, fatigue, groin pain, extremely painful constipation, post exertional malaise, recurring infections, bladder/urination problems, hip muscle problems, depression and loss of libido. As I type, I have a drain tube sticking out of my lower abdominal region that is painful and cumbersome, six days after having a suspected abscess ‘drained’ (there was no fluid to drain; whatever they found next to the mesh has “become highly organized”, or more solid than liquid, like “cream cheese”).
    My hernia surgeon is due to remove the drain tomorrow and tell me if the results show any sign of infection in the three drops of fluid extracted from this mystery structure that was found in a CT scan. I am certain that my doc is going to suggest that he remove the mesh yet I am not sure I want him to do it. He has been mistaken on three occasions:
    1. claims that only 3-4% of patients have any problems related to mesh and it is therefore safe
    2. the “pocket of fluid” he saw on my CT scan was an abscess, therefore infected (he might still be right if the cultures show bacteria growth in the next 24 hours) and therefore needed to be drained, and
    3. that the intense left side pain I had couldn’t be related to mesh, and it had to be muscular (I doubt it and the left side testicular, groin and pelvic pain that sent me to the ER last week, though not the side with the mesh, are so new and weird to the touch that I am now convinced the mesh is responsible… when constipated, things move around in my groin in a manner that cannot be attributed otherwise ).
    If there is no infection in the drops of painfully extracted fluid, I plan on seeking a second opinion on the necessity mesh removal surgery (at this point, as long as I do not get constipated, and have access to antibiotics, it seems that the intense pain does not recur) and probably, depending on his attitude regarding my symptoms, a more experienced surgeon.
    Needless to say, I am terrified and have a nagging voice telling me that this is the beginning of the end (which is not like me at all)… It seems that at 50, I have gone from excellent/good health to poor health within the space of 4 or 5 months, and that the process is irreversible.
    I live in Detroit. If anyone knows of a good surgeon with extensive mesh removal experience in this area (Midwest-Great Lakes region of USA), please advise.
    Many thanks

    • Jane Akre July 22, 2018 at 5:04 pm - Reply

      Closest to you is Kevin Petersen in Las Vegas,,, who maybe your best bet! Sounds like your guy can’t be relied on for a procedure gone bad if he denies mesh can cause pain. Have white blood cell count done as well….I’m so sorry…..Do you have your medical records? Anyone reading this would be doing himself, herself a favor to research a no-mesh repair as a first line treatment, just in case you are one of the unlucky ones who has terrible complications. Doctors seem to be in the dark when that occurs. Their sales reps didn’t tell them what to do then. Patient abandonment is frequently the outcome, then pain management,,,,,How can any doctor think that is an optimal outcome?

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