Mesh Resources Online

Jane Akre
January 10, 2015

Thanks to Jennifer R. and all the leaders who are keeping the mesh information presence online for others to learn. Congratulations! Raising the profile will help others. Please visit and join in! Together we are stronger.

Guide to Medical Mesh Support Groups & Pages on Facebook & on the Web (please add & improve!)

(Closed/Open refers to privacy setting--if you have a pending or potential lawsuit, please keep this in mind)


1. (News, patient profiles & more)***

2. (Research and activism)***



5. (United Kingdom)

6. (European site (Netherlands)

7. (blog)

8. (Canada)

9. (New Meta-group; take action)****

10. (blog)




1. Fighters And Survivors of All Transvaginal Mesh And Hernia Mesh/Plugs (Closed)

General support; compassion & understanding

2. Meshmenot Facebook page

3.Women's POP/SUI TVMesh Complications Support

Only for women who are mesh injured (with transvaginal mesh); support

4. The Mesh Warrior Foundation for the injured (Closed)

5. MeshedUp (Closed)


6. Mesh Down Under Support Group (Closed)

For New Zealanders with mesh

7. Transvaginal Mesh UK Support Group (Closed)

8. Inguinal Hernia Survivors (Open)

9. Get rid of synthetic surgical mesh (Closed)

10. That's Meshed Up Bro (Page)

11. Transvaginal Mesh - Medical Alerts (Page)

12. Scottish Mesh Survivors (Friend/Profile)

13. (Page)

14. Transvaginal Mesh Support UK (Page)

15. Mesh Removal Hope in Australia.

News & Research

1. Mesh Medical Device News Desk (Open)

News on medical & legal developments

2. Links on Mesh (Closed)

***Great source of information in Files on the vast array of symptoms & other research; read about people's experiences with different doctors***

***More medical kind of info here

3. Stand up and be counted against MEDICAL MESH (Open)

Natural healing; biofilm infection info; health research & news

public, so it's a great place to post general info that would be helpful for everybody-everybody to know about mesh, or for opening up about your experience with mesh (help others from getting it to begin with)

4.The Mesh Warrior (Page)

News; affiliated with Mesh News Desk; coverage of trial; an advocate whose mother has mesh

5. MESHED-UP! (Closed)

Symptoms caused by mesh, including autoimmune & neurological


1. Medical Mesh Legal Support (Closed)

General questions & answers; no lawyer moderator, so it is just word of mouth & experiences


1. Medical Mesh--Outreach and Activism (Closed)

Share ideas/writing; develop tools to educate doctors, lawyers, politicians; anything proactive & empowering to get results is welcome!

Groups for Specific Symptoms

1. Mesh Page for Auto immune Diseases (Page/Open)

Patient Safety & Injury Sites Beyond the Mesh Community

1. Patient Safety Action Committee (Open)

Fighting caps on medical malpractice suits; Patient safety advocacy; For engaged activists

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