UCLA Autoimmune Registry
Mesh Medical Device News Desk, September 25, 2017 ~ The autoimmune registry, which is collecting comments from mesh-injured and non-mesh injured, is about to close its questionnaire.
UCLA researcher, Dr. A. Lenore Ackerman asks all to add their voice, whether you have autoimmune reactions to mesh or not since they need a control group.
She thanks all who participated!
You made this possible!
In August of last year, Mesh Medical Device News Desk asked mesh- implanted persons to respond to data being gathered by researchers at UCLA concerning autoimmune reactions to mesh, whether hernia or pelvic.
Autoimmune responses to a mesh implant are anecdotal at this time and include, rashes, fibromyalgia, overall flu-like symptoms, loss of teeth, brain fog, Lupus, among other impacts. These symptoms are reported after a mesh implant by so many it became tough to ignore and UCLA researcher Ackerman knew that. Collecting data is the only way to study an issue and is a start.
See the Hope Pagano story here.
Researcher, Dr. Lenore Ackerman tells MND she will close the survey and finalize the results at the end of October of this year. Until then, she is asking us to recruit folks to participate.
There are about 450 responses so far! Fantastic!!
"I would love to make it to a nice round 500 – which would make any results pretty hard to dispute with that large a number," ~ Lenore Ackerman, MD
Please feel free to share the survey, which will be conducted anonymously! And if you have contributed to the registry, please take the 15 minutes or so to take the survey so that results can be tabulated into the UCLA database for consistency.
You do NOT have to live in the U.S. to fill out the registry. Men with hernia mesh can also participate. You can participate anonymously so please do not be dissuaded from participating! Thank you all!!!
NO MESH SURGERIES - You Can Still Participate!
If you have folks in your family or friends who HAVE NOT had mesh surgeries who are willing to fill out the survey, it will provide a comparison population. The need is to find a comparison population so they can serve as a sort of control group that can be measured against the mesh-implanted population.
Early reports are the results are profound - the devastation and impacts on life are tough to argue with. Results of this data should be issued shortly and Mesh News Desk will stay up on it!
Thanks you for your efforts and patience as we try to address this serious and poorly understood problem and for all of your help trying to bring light to it. ~ Lenore Ackerman, MD PhD, Assistant Professor of Surgery, Urology, now at Cedars-Sinai Medical Center, UCLA Health
Dr. Ackerman thanks Hope and all of you who participated. You made this research possible!
MND, The Links Between Surgical Mesh Complications and Autoimmune, July 2017
MND, May 2016, Autoimmune Registry Brainchild of Hope Pagano
MND, UCLA Partners with Mesh News Desk, August 2016