Mesh News Desk, May 23, 2016 ~ The autoimmune registry and alive and there have been so many comments, it is being posted again so you can continue to comment.
The registry is being considered by medical researchers so your imput it vital. If you have any kind of mesh, pelvic, abdominal, hernia and have experienced auto immune issues afterward, please add your comments. The registry is the brainchild of Hope Pagano and you may have read her profile (here) on the pages of Mesh Medical Device News Desk.
Hope, the mother of six and wife to Steven, developed Lupus after her implant of an Ethicon/ Johnson & Johnson TVT-Abbrevo sling.
Besides pain and chronic infections, following her May 13, 2011 surgery, Hope developed symptoms which included fever, muscle fatigue, muscle aches, headaches, sensitivity to light and sound and brain fog. Within eight months she was diagnosed through double stranded DNA (ds-DNA) and an ANA test revealed full blown Lupus.
Lupus is an autoimmune disease that means the body is attacking itself in some form. Essentially it is fighting off a foreign invader. See more from the Lupus Foundation of America here.
Hope Pagano wants others, who have also developed autoimmune issues following their implant, to add their names to this registry. Include the symptoms that developed after a mesh implant and how soon after. You might also include the name and manufacturer of your mesh.
"There is strength in numbers," she says. "Only with proof in numbers will this be taken seriously."
Thank you for your participation!
PS- Be Sure to add your voice to Mesh Problems (Facebook) questionnaire as well.!
Editor, Mesh News Desk