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Mesh Injured Address KY Healthcare Conference

Tammy and Janis

Tammy and Janis

Mesh Medical Device News Desk, November 5, 2016 ~ Two vocal mesh-injured women addressed a room full of health professionals at this annual conference with a medical device patient safety focus.   See the  videos below. 

It was called the Conference for Healthcare Transparency and Patient Safety and occurred Friday, November 4 in Lexington, KY. Those in attendance could receive 6.25 hours of Continuing Education Credits.

About 100 doctors, nurses and health care professionals filled the conference room at the Lexington Four-Points Sheraton.

The Goals and Objectives  were to describe the problem of adverse events and to develop an appreciation of the importance of a culture of safety and the prevention of adverse events, also known as complications; to identify problems in research integrity and conflicts-of-interest which hampers initiatives; and to discuss medical device patient safety problems.

Janis and Tammy had a lot of experience on the latter.

Tammy Jackson

Tammy Jackson

Both women had been implanted with a polypropylene mesh material to treat incontinence. Both had suffered severe adverse events. Patient advocate, Joleen Chambers of Failed Implant Device Association (FIDA), could not make the conference she let the two women know at the last moment and they enthusiastically took Chamber’s place.

In her address to the room full of professionals, Tammy Jackson of Kentucky said she was implanted with TVT mesh (tension-free vaginal tape) in 2007.

She outlined the complications thousands of women have experienced- mesh erosion, chronic pain  from the pelvis down to the feet, bleeding and infections, organ perforation, nerve damage, dyspareunia, vaginal scarring, reoccurring prolapse, and foreign body reaction.

“Its a lot more than you hear in the commercials,” she said.

Jackson used to work in the nursing field, now she is on full disability. She told the attentive crowd there have been 10 deaths in the last two years due to transvaginal mesh, women have lost their jobs, their homes, their husbands and their healthcare.

As many women do, Jackson had to leave the state to have a series of surgeries to attempt to remove her transvaginal mesh.  Dr. Sara Daiz from Indiana was her “savior” who got as much of the mesh out as she could, Jackson tells MND.

“Know the risks before you get pelvic or hernia mesh she concluded.” 

Byonia

Byonia

Byron Jackson

Byron Jackson

Tammy was accompanied by her daughter Byonia and husband Byron.

Janis Urban told the crown the foreign body reaction in the body involves inflammation and bacteria.

She was a slender woman all of her life. Now she’s up to 275 pounds and she has experienced what many woman do, a distended abdomen after their mesh implant, which she profiled for the crowd. Her doctor, Dr. Christopher Rooney, a urologist from Akron, Ohio, attempted to remove the TVT Exact, which was implanted in 2011.

The difficulty is these mesh implants are meant to be permanent. A full removal is unlikely, though some of the most experienced doctors have had some success at a mesh excision. Mesh anchors may be another story. Often embedded deep in tissue, many removal surgeons will not attempt to remove the anchors.janis-urban-at-nov-4-cvonference

“This is toxins in the body. We know something is wrong. Patient engagement where is that?,” asked Urban.

There is no medical device safety in this country, Urban told the crowd.  Many may not be aware that medical devices do not go through premarket approval that drugs must pass to ensure safety and efficacy.

Jackson and Urban were the last to speak. The room rose off their chairs and applauded. They appeared to be very thankful to hear first-hand from those very patients who experience the downside of untested medical devices first hand.  ###

LEARN MORE:

Facebook Tammy Jackson here.
https://www.facebook.com/tammy.jackson.18062533/videos/1756302254693964/

Janis Urban addressing conference.
https://www.facebook.com/janis.urban.7/videos/1424178224278375/

Tammy and Janis the night before conference
https://www.facebook.com/janis.urban.7/videos/1423201527709378/

Janis Urban – After the conference.
https://www.facebook.com/janis.urban.7/videos/1424553144240883/

19 Comments

  1. Hilda says:

    Had my Mesh in 2009 told me it was a very simple procedure as a out patient doctor put in Pinnacle by Boston Scientific which was a recall .. the anchor’s cut 2 blood vessels Code blue was called I almost lost my life , Had to have a Blood transfusion ,I stayed in critical unit 4 days after 10 days I came home and suffered with a weight gain and a low immune system , I had anxiety and knew I had to see a doctor for removal for it was eroding out the vagina cutting me every step after an examination the doctor said the rest of the mesh was wadded up laying beside of my bladder . He did remove 95% said he did not go after the anchors that it was to dangerous , I still have a lot of issues with immune system and pain in hips and
    legs .If someone would have told me that this hobable Mesh would cause pain and even death I would have never agreed please Ladies say NO TO MESH IT IS TOXIC POISON AND IT WILL SLOWLY KILL YOU …. Straight from the Heart ❤️ Hilda

  2. Barbara says:

    They did a great job Tammy and Janis
    You rocked the mesh out to left field!
    I so hope someone grabs it and runs with it! Xxxxxoooooo

  3. Tammy S Jackson says:

    Jane, Thank you for your hard work and helping us bring Awareness to the Mesh Mess.

  4. Sea says:

    I sincerely appreciate both these women to speak for all of us with only the truth. They are victorious and courageous. Every voice counts of every women, man, and family to set the records straight for all the wrong doings of pelvic mesh implants. Thank you Jane for all you do for so many of us and for those of us who continue to weep in silence.

  5. Anon says:

    Why haven’t transvaginal mesh victims received the national attention that the J&J talcum powder victims are receiving? I saw a piece about their struggles on the nightly national news last Friday.

  6. Anon says:

    Thank you, Tammy and Janis! Proactive at its best

  7. Still Standing says:

    Tammy and Janis. What you did matters.

  8. Mary Pat says:

    Tammy and Janis – thank you! THANK YOU!!!!! Wish we could watch video of your presentation. Did anyone record it?

  9. lordhelpus says:

    Thank you ladies for giving them such a clear, vivid look at all the pain and torture we are all being put through.
    Good job!!

  10. Disgusted says:

    All I can say is AWESOME LADIES!! If you plan on doing this again, I would sure like to participate. It is such a battle to face a health community who mostly do not even have a clue as to what has happened to us, let alone where to go next. The ability for cover up is just unbelievable. I hope we will return to a time when integrity counted. People took pride in their work and weren’t in it for the almighty dollar! Blessings.

  11. Bonnie says:

    Am I going to die even after getting the mess outI have so frightened

  12. Still Standing says:

    Bonnie, dealing with all the mesh complications can be frightening to say the least. While I can’t tell you that having the mesh out will make everything go back to your pre mesh self, I can tell you from experience that having the mesh out improved my life considerably. I still have some impossible to remove mesh, including some of the arms and it has been a long hard slog to get to a better place, but it can happen. Having the mesh removed creates some of its own unique problems. I live with those daily. Scar tissue and adhesions develop, the urethra gets shortened, which can lead to chronic UTIs, sexual function is compromised, pelvic pain can ramp up and I, as many others, deal with autoimmune issues. I developed vaginal erosive lichen planus that was so bad I had to have half my vagina removed and replaced with a graft. These are just a few of the many things we must face. However, I am starting year 9 as my post mesh self and while days are not pain free, it is manageable most days. I still take muscle relaxers, gabapentin, amitriptyline, and just recently added cyclosporine, an immunosuppressant, to try to control the lichen planus. I have had to have a new round of trigger point injections and physical therapy, but they help. I also watch my diet to control for inflammation causing foods, I try to walk daily, and most important to me, I have intentionally concentrated on self care, not just physically but emotionally. I am thankful to have a team of medical providers who listen to me and do their best to help me make decisions that are in my best interest. Even though we have been victimized, we must try not to live life as victims. That is a physically and emotionally vulnerable place to be. We are stong women who have been harmed, but we have the capacity to move past that and create a life that matters to us and to those we love. It is not the life we chose, but it is the life we have. Every time I am with my beautiful granddaughters, Im grateful that even a damaged grammy is enough for them. I know that this doesnt answer your original question but none of us are promised a tomorrow. When tomorrow comes, we must try to honor that day by being the best we can be that day even though It is far different than our pre-mesh best. We are worthy of another day. Our lives matter even now.

    • Cara says:

      Thank you so much Still Standing. I too have autoimmune issues, mesh erosion, and severe CRPS/rsd in my face, which I do believe is related, due to my body trying to reject the mesh(which is what my Osteopath doctor told me).I have horrible muscle spasms, hip and groin pain, and just recently am finding walking is hurting me. I suppose that this is a progressive poisoning of our systems, but you are correct-none of us is promised tomorrow, so do the best we can with today.

  13. Betty says:

    Why can’t we see videos from this conference?

    • Jane Akre says:

      Do you have a facebook account? If so you can click on the links under the Learn More at the bottom of the page. If you do not have a facebook account please advise and I will try to find another way to support them. Thanks.

  14. chris says:

    i have the mesh from johnson and johnson, it eroded throught my vaginal area had 2nd surgery, i just read that johnson and johnson is buying a company for billions of dollors IN CASH, pay up to those of us who you have destroyed our lives with your money makeing products, DO WHATS RIGHT…

  15. janet Holt says:

    Janis and Tammy are two very hard working women in the fight against mesh. It is by women like these two who continue to show up in order to keep the horrible life long problems associated with the use of mesh in a women’s pelvic floor. Great work you two.

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