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Hernia Mesh-Injured Doug Bean: Suffering in Silence and Neglect

Doug Bean in Maine and his friend.

Doug Bean in Maine and his friend Kairos

Doug Bean is a hernia mesh-injured man living in Maine. Please read his story. It is what happens when humans ignore the plight of those suffering, even to the extent of discontinuing their medical coverage in their greatest time of need. 

Should polypropylene mesh be contraindicated when one is already trying to recover from an accident?  Should hernia mesh be the subject of litigation just like pelvic mesh, after all, it’s the same polypropylene mesh!

Mesh News readers can help reach out to the state so this man is not left to suffer on his own.  Thank you! 

My Name is Douglas Bean & a little over 2 years ago now (Sept 18th, 2012) I had a right side inguinal hernia repair using a mesh which I now know to be a C.D. Bard 3D-Max mesh prosthesis.

I am now living the same exact nightmare that so many others are who have had mesh placed inside their bodies with empty promises; even after the FDA put out warnings regarding the use of mesh in 2011 and 2012.

Doug Bean and friend

Doug Bean and Kairos after mesh

To understand my full story, I must share that I was already disabled from a severe motor vehicle accident, in which a semi-truck hit my car three times while I was driving on the turnpike here in Maine, October 11th, 2010.  The only reason I mention the accident is because I got the hernia doing core strengthening exercises at physical therapy when I was learning how to walk properly again early 2012. The hernia wasn’t that bad at the time but because of my trouble with walking, a couple of months later, I fell getting out of the shower and it became a serious issue in which I was told that I had to stop all of my recovery therapies related to the accident, and get the hernia taken care of immediately.

So I went to see the surgeon who my primary care physician (PCP) sent me to see for a consult. It was a quick visit where it was confirmed I indeed had a right side inguinal hernia and possibly a left as well. I was told it was an easy operation, in and out, laparoscopic, that a piece of mesh would be put inside me and I would be good as new in a couple of weeks. They did “explore” the left inguinal canal but it turned out I only had the right side to be fixed.  At my consult, the surgeon didn’t ever give me an “informed consent talk” about the dangers of using mesh, nor did he ever give me the option of going the route of the $5 suture method. He just told me this is how we do it these days. And I asked him my questions that I had ready, like how long have you been doing this, “about 30 yrs” he told me. Have you ever had any problems? “No,” he said.

I was also raised in an era where if your mom brought you to the doctor, you trusted the doctor and let him do whatever he said he needed to do. I’d never heard of mesh problems at the time of my consult nor warned about the possible negative side effects. Nothing like that was ever shared with me by the surgeon or my doctors and I never thought to ask. So I went into the surgery with faith and trust that things would be exactly as the surgeon told me they would be. ‘Quick & easy, a day surgery, in & out and all good in 2 weeks.’

Well three days after the surgery I thought I was doing well. My core strength was coming back quickly. I didn’t need the pain meds. Then out of nowhere the next day, I felt something move inside me where the mesh is and then I was in the most agony and pain I have ever experienced in my life. I was in fetal position crying like a baby. I called the surgeon’s office several times over the next few days complaining of this severe crippling pain I was having and told them it felt like something moved inside of me, but I was told each time, “It’s all normal, just take your pain meds.” Well I didn’t want pain meds in my body so I didn’t take them. But finally I did and they didn’t touch the pain. I ended up in the E.R., all because of the pain which started after the 3rd day post-op.

I can’t move without agonizing pain of my right testicle being crushed and feeling like I’ve been kicked in the groin etc. Men when they are simply hit in that area by accident, are rolling on the floor in fetal position and agonizing pain. The pain shoots into the inside of my right thigh, hot burning sensation, then up the inguinal canal towards the incision areas. My surgeon told me this was the normal stage of recovery and continued to tell me the same for three months even though I was begging him to take the mesh out ASAP. He said no, too soon. Go take your pain meds, lay low and let us know of any/all changes. I knew on day three post op that something just wasn’t right. Then I finally three months of him telling me this is all normal, I asked him if he had ever seen this before in any of his other patients and he said “No,”  so I said to him, then how the heck are you telling me this is normal???

The more time that went by the pain areas spread quickly up into my abdomen all around the mesh and where it is placed. The intestine area right where the mesh is placed has continued to spread vertically across my mid abdomen (belly button line) starting from the right side where the pelvic bone is – then went toward my belly button across the top of the mesh and now spread 6″ to the other side of my belly button. It feels like I am being cut open and stabbed with a knife. The pressure in my groin is unbelievable.

Doug and daughter

Doug and daughter before mesh

I’ve lost all quality of my life & have had to stay bedridden or on the couch even with pain meds since this all started. Then to make things worse, my state of Maine dropped my Medicare December 31st when the Affordable Care Act went into place as law and because my state didn’t see fit to revamp its Medicare system they left me with no health insurance for the last 11 months.

No doctors will see me because I don’t have insurance. Even the surgeon who did the surgery has left me to suffer and won’t return my calls. Since my surgery went wrong, I can’t bathe myself and I hobble during play with my daughter outside. I do my best to try and keep it creative for her but it bothers me tremendously that I can barely get down on the floor and play with her for more than 15 minutes before I have to get into a reclined position due to my pain. We draw and read and I push her on her swing, watch her on the playground with the dog and we watch movies too. When she is with me, I push myself hard overdoing it mainly because I don’t want her to see how bad I really am or me having to hold my groin and abdomen all the time while trying to make every attempt to do the fun things I used to be able to do with her. But as soon as she goes home I’m laid up for a good four or five days minimum.

I can’t even walk my dog 20 feet out in the back yard to take him around. He is two and a half years old. I got him several months before my surgery and I haven’t even walked him – not good for a pure bred German Shepherd with tons of energy. I feel like I’m losing my mind and the surgeon who did the operation has no interest in even hearing about the continued and worsening of my post-surgery symptoms even though he said to call his office & let him know of any worsening or changes in my condition. I saw a second doctor after my surgeon told me he’d never seen this before and couldn’t explain it. “There is no known cause” and “most cases I’ve seen have cleared themselves up or healed on their own in a year or two” he said. So I have to lived with this now and the state of Maine knew I was in this situation needing more treatment and corrective surgeries when they took my health insurance from me.

My whole groin area feels like there are spiked sea urchins or razor blades moving through my intestines and under my skin, which actually causes severe itching on the top of the skin.  I can feel lumps like lymph nodes that are very tender to touch around the mesh and incision areas. If I even graze those areas the instant pain caused is so severe, it makes me jump out of my skin, exaggerated example, but it’s needed to give the full extent of the pain I live with. This is such a severe medical situation and my doctors either half believe me or say it’s all in my head.

I am 42-years-old and I need help. No one seems to care here in Maine. My female partner even left me because I can’t have sexual relations. I tried once but it was too painful for me.  And no one has even thought to check to see if I am possibly allergic to the mesh.

Doug kayaking in Maine

Doug kayaking in Maine

I was a very outgoing person and avid outdoorsman, EMT, white water rafting & kayaking guide, rock climbing guide and instructor. I’ve owned several of my own small business since I was 25-years-old – the first was an indoor rock climbing gym and retail store. But since no one will help me or take responsibility of any kind. I’ve lost everything except my home of 16 years and frankly, that is next if I can’t find help.

Even the folks at the Department of Health and Human Services, who are the folks that run the Medicare system here in Maine will not talk to me. If I do get someone on the phone, they act concerned, tell me they’ll get back to me with information on getting my health care back, saying while on the phone with me, that they can’t believe this is happening and that no one will help me.  Then even they never call me back after making promises to make sure they find out some information that can help me. I have no advocate. All I have is my 7-year-old  daughter, who is my life, and I am fighting to get my life back but like this, I can’t even keep up with her for 10 minutes without having to lay down on the couch, where I spend 18-24 hours a day. I am at my wits end and am so desperate for relief from this pain caused by a supposed “simple surgery” that somehow went severely wrong and is now spreading throughout my body.

Everyone says they understand… at first; but that ends pretty quickly once the doctors, family and or friends reach a point where they don’t know what to do. It gets turned back on me. They get mad at me because I can’t do the things they know I used to do, then pull away from me all together leaving me alone. And I’ve literally been alone through all of this. No one really understands this nightmare, unless they are living with it!

I’m in such a severe situation with no health insurance & no income due to this surgery and now every two weeks I’m worrying where will I find money just to pay for my medications. When the state of Maine took away my Medicare last December, they knew I had already been through 14-months of severe problems from the surgery and on expensive meds because they were paying for it. How they can leave someone hung out to dry, who’s completely bed-ridden, needing medications, more surgery & treatments, I will never understand.

The reasons stated in the letter to me for taking my health insurance away, were that 1.) You have no income & are 100% below Federal Poverty Standards. 2.) You’re 7-year-old daughter (whom I have shared custody of) does not live with you as her “primary residence.” These are not really good enough reasons to take away someone’s health insurance while they are in need of it the most in my opinion.

The state keeps bouncing me around telling me they will help, setting me up with the Department of Health & Human Services case workers – some of who know me said they couldn’t understand why this is happening to me and that they would “get on it” to find out why I was denied health insurance that I had since 2005 through the state right when I need it the most. Not one of them, no matter how concerned and kind they talked to me on the phone, has ever called me back. I was turned over to a new case worker in May, who seemed the most concerned and genuinely wanted to help me. Not even he will return my calls since we spoke on the phone and I’ve since gone over his head to supervisors who also told me the same as he did, and that they would get back to me.  It’s been since July that I spoke to the supervisor with never a return calls from her either.

I recently saw the record of my last visit with the surgeon who performed my hernia repair (this is where I was able to see the type of mesh implanted in me). After 25 months of asking him what type it was, I had been ignored, not responded to & couldn’t even get my own medical records from the surgeon’s office. What makes me so mad & extremely upset though is that he wrote in my records that he told me several things that he NEVER did, that I didn’t follow through with his aftercare directions in a timely manner- but he never gave me any info other than take your pain meds and this will heal itself.

By that time my health insurance was taken away anyway & even if he had given me a treatment plan, I live an hour from his office and had no way to pay for medical treatments anymore or to even get there living alone.

Doug and Danika

Doug and daughter

He also wrote several things that JUST ARE NOT TRUTH and THAT DID NOT HAPPEN. Mainly the one comment that made me so upset was where he wrote that I told him that my right testicular pain had all but subsided when I was actually telling him that it had only been reduced with medications but that it was spreading up the inguinal canal towards the mesh and incision areas into my intestines. He is obviously trying to cover his butt.

I couldn’t believe it though and now I know why I was denied SSDI last month. The last time I saw this surgeon was Oct 2013 and then he has the nerve to write that I said to him, the testicular pain I had been complaining of to him since the surgery had all but resolved itself!?

I couldn’t believe it when I read that. I had even gone to see a urologist under the surgeon’s order (self-paid) and the surgeon wrote I hadn’t done it in a timely manner, yet knowing that he’d already sent me there the year before & that urologist told me he couldn’t help me.

I’ve even written to my Maine state representative and state senator, local news channels, reached out to many different state organizations here in Maine looking for advocates, but I’m finding none willing at all to follow through and really help me. I just keep getting pushed on to the next doctor.

I’m not sure why men are not being recognized after they have mesh implants with complications?  It’s the same mesh they’ve put in so many women causing so many to suffer. And point in fact, I was never even given the choice of mesh or no mesh. If I had, I never would have had the mesh surgery or I would’ve chosen the $5 suture method instead of putting an implant (I didn’t even know it was considered a prosthesis until two months ago) into my body which it is severely rejecting.

I’ve asked repeatedly for the surgeon to remove the mesh starting a month after the surgery right through six months post-surgery and he kept saying he could not go back in so soon. That was a flat out lie! The more time that goes by, the more the pain areas have spread now throughout my small intestines, groin, into my right leg, who knows where else now at 27 months post-surgery.

Doug and Danika

Doug and daughter

Most disgustingly is that the surgeon who did the operation on me will not even talk to me, see me or take calls from me for the last year and all I’ve ever wanted to share with him, which HE TOLD ME TO DO, is keep in touch with him & his office nurses, letting them know of ANY & ALL changes/worsening of my symptoms… Does anyone care?  Is anyone listening? 

Thank you,

Douglas Bean

 

Learn More:

Anyone wanting to advocate on behalf of Doug should contact the following. No one should fall between the cracks due to injury and the lack of a safety net. Here are some of the organizations that might be able to better Doug’s living situation with a little encouragement from you!

These are the important & powerful people here in Maine. And they are as follows:
1.) Maine Department of Health & Human Services
    Program Administrator, ‘Terry Hamilton’ -Office of Family Independence (207)822-2072
2) Mary C. Mayhew, Commissioner HHS

http://www.maine.gov/dhhs/aboutus.shtml

Department of Health and Human Services
221 State Street

Augusta, Maine. 04333-0040

3.) Maine Senator Susan Collins
    Augusta, Maine. (207)622-8414 and Washington, D.C. Office (202)224-2523
    
4.) Maine Governor, Paul R. LePage
    Augusta, Maine. (207)287-3531 and Toll-free (855)721-5203
4.) Maine Senator & Representative Angus King
    Augusta, Maine. (207)622-8292 and Washington, D.C. Office (202)224-534
********************************************************

 

 

 

40 Comments

  1. sandy says:

    Doug I’m so sorry what is happening to you I guess in part we can thank Obama for this this makes no sense this is America where everyone should be able to get health care if you are a hundred percent below poverty level you should be able to get health care hands down immigrants get free health care all the time I understand your pain I too went from a very active outdoor person too laying around all the time because it hurts to move my heart breaks for you and I will pray for you only a few people understand what is happening to us most people who have not had much do not understand but a few special people do I struggled for a year with the implanting doctor but he would not listen to me I was in so much pain that he wasn’t sure where the pain was coming from but told me I had something else wrong he was wrong the second doctor took my message out but the damage was already done it was too late all I can say is keep fighting dog keep writing your senatores and Congressman be the squeaky wheel I had to write mine too but he did help me I understand about feeling alone sometimes just an email or a phone call means the world to me I spend every day alone I feel sorry for you we were all human experiments I can’t believe this has happened to us in America but it has I should have never been used in humans even the people who make the chemical products said that why is Congress or someone not investigating this this is all crazy how can they destroy lives and then try to defend this many days I considered just giving up but I will try the next surgery with hope that I will get better again I will pray for you dug my heart breaks for you and your puppy check with the Humane Society maybe they can have someone that will come out and walk him I used to do this for our Humane Society remember they want us to curl up and go away don’t do it done sooner or later I pray someone will help you at least I hope so god bless you my mesh survivor friend

  2. sandy says:

    sorry about this stupid spell checker guysplease insert mesh where appropriate

  3. sandy says:

    they have taken almost everything from me I’m so broke I can’t even buy a new computer to write a proper message so I’m sorry for the messed up message but I’m sure you all are smart enough to figure out what I’m trying to say mostly I’m just trying to say my heart breaks for you Doug and secondly how can this happen in the United States of America this is unthinkable is there no one that can help us

  4. Jane R. says:

    I too am so sorry you are going through this. It makes no sense. I understand the stabbing pain and I understand the SSDI denial. I’ve been denied 3 times now. The last denial SSDI said as long as you can walk you should be able to get a job. Okay, come be in my shoes for a week and see how far you get.

    If you could get the medical help you need, it’s very possible to get your life back and go back to work. Unfortunately our government denies you until you are so sick you can’t come back to any normalcy. And then dealing with doctors that say you can’t possibly have that pain is crazy. All they give me is anti depressants to take for the pain. And they don’t work.

    I hope and pray a doctor will see this and help you. You have a beautiful daughter. Take care.

  5. Stacy says:

    Praying for you Doug.

  6. Kitty says:

    Dear Doug – My gosh Maine is not a friendly place. It seems the people of Maine don’t have much compassion. I am remembering the Ebola nurse. She left town. If you worked–and cannot work—doesn’t SSA give you SS—and then if your need health insurance–SSI would kick in. Maybe–try one of those phone #s they give for assistance to get accepted. Did you go to the SS office and get a paper form to out.

  7. urse says:

    Hello Mr Bean:

    I know you must be tired of hearing and reading from everyone, with no answers, and I myself don’t have answers unfortunately. What I can share is…the fact that I had my first hernia repair in the year 2000 approximately, with mesh implanted. I had 4-5 additional hernia repairs….as well as 4-5 bowel obstructions over the years! It was no fun, as I know….you know….I have been severely sick since. All my 3 mesh implanted over the years are infected. I have holes all over my stomach that ooze, and I bandage up a few times a day. I spend most of my social security money on gauze pads and sponges, sterile water, tape, gloves, and then some! I am so very sick and tired of being sick, and spending so much money that I cannot get any help with. The wound care centers here won’t even see me, nor will the surgeons or emergency room when things are really bad…..cause they claim in the state of New Jersey there are no doctors that can deal with my complicated case, so I need to find someone elsewhere, in a tremendous hospital that can help me. The problem with me is…I am overweight. I am 300 pounds, at 5’8″ so I have been told I need to lose well over a 100 pounds first, before they would even attempt to go in! I am nauseous 24/7 for years. I live off reglan, I am in pain. There are days I can walk a little, and days I can’t even get out of bed….so I do know exactly what you’re going through….and the pain and suffering you are experiencing. It is no joke. What I do want to tell you also…is there is someone that experienced what we have. He is in Florida. I forgot his name….but check out his website….if you haven’t already….it is called suffering in silence….or the meshoma foundation with or by Bruce Rosenberg. After all his troubles, he studied all this, and is very knowledgeable. You can look him up and call him, and he usually has answers for people like us. Unfortunately for myself….although he referred me to a doctor here in New Jersey…..he knew all about the weight issue which gets in the way of my getting lawyers and other types of help over the years….so here I sit!…..Anyway….enough of my ear full…..Good luck to you really and truly….Hang in there….and please don’t give up….something good will come out of this for you! Take care…..Ursula

  8. Janet B says:

    Doug, there is a facebook-based support group called Fighters & Survivors of all Transvaginal Mesh and Hernia Mesh/Plugs you might want to join. It’s a closed group that is made up of men and women who have been injured by all types of mesh. There are a lot of good people in the group, and they will help you and support you. So sorry you are going through this hell. Mesh pain is horrific and excruciating, whether it is pelvic mesh like mine, or hernia mesh like yours. Makes no difference. Don’t give up. You know your body, you know you are right, and you deserve help.

  9. sunnyt says:

    Dear Doug, I am so very sorry. This is so sad.. I wish I could help you.. when I read your letter it was like I was reading how my pain is from a “simple” miniarc sling that was placed 3 years ago.. I have had 4 “revision” surgeries, been told each time the mesh and anchors are GONE, but yet I’m still in pain.. severe pain.. and i keep going down each day..it is so depressing, I don’t want to go anywhere, peopl e have no idea.. they think it’s just minor. I have been trying for 2 years to explain the “razor blades, the severe itching and hives ( i have so many scars From clawing my skin) I take 4-5 Claritin daily for that itchy painful skin, it helps some. The last doctor I went to PROMISED me he would take care of me, he would not turn his back on me.. well, that was a lie.. I missed the lawsuit cut off date.. he was pretty much done with me, he must have gotten some reimbursement for the “revision “surgeries. . I GO SEE Dr Raz in January, hopefully he will be able to help me.

    I’m sorry I’m all over the place.. I think it has messed my mind up too. I will pray for you.. I really hope you can get some help. I’m sorry. BIG Hugs to you Doug. .. please keep us updated. Sorry in advance for my spelling, and sentences running together..

  10. msm says:

    According to kff.org, all people in the coverage gap in Maine are adults without dependent children. Since when does this country allow anyone to go without health care solely because they have no children? That is blatant discrimination. What about those who could never have children? How many men do not have their child living with them even though they support the child? This cannot be legal. Maine, Alaska, and Tennessee all require a child in the house. What about someone with a child in the home who receives support for that child? They can be covered but the supporter cannot. This cannot be legal. I think they know it won’t be challenged because those in the” coverage gap” cannot afford an attorney. There has to be a human rights group willing to take this on. I’ll keep looking. This can’t be allowed to continue in this country and especially in those three states that have decided to completely turn their backs on citizens who desperately need assistance just because there isn’t a child in the house. This is the USA for Pete’s sake!

  11. Lori Pelucca says:

    God Bless and HELP US ALL, I pray for you and your family as this tears us all apart and disables our lives with pain and agony so ripping that at times we wish it would end. Never give up Your Faith and Love, they are one and the same and Miracles do happen and are natural healing power, even in this insane circumstance. I us many herbs and vitamins to help and they are far better than the many drugs the Doctors want to give us, Keep Believing. We stand together in a way far more powerful than the physical, we are Spirit and we come from love to help to save the world. Love lori

  12. Debbie says:

    Doug I am so sorry for you. Reading your story reminds me of mine except I am a woman. I went through all the things you did. I finally found a doctor 6 years after my implant to take out my mesh. Most of the pain from the mesh removal has resolved but I am left now with a huge hernia in another place due to the fact I had to have emergency surgery after the removal because my bowel broke open and I was infected so bad 1/3 of my abdominal muscle had to be removed. I also lost my insurance and could not get medications for other health issues that have now gotten worse as a result. I understand what you’re going threw. Get an attorney My time limit ran out but yours didn’t. I pray you find help. Prayers to you and your daughter, Debbie

  13. All Meshed Up says:

    As I sit here, recovering from yet again another massive intestinal infection that the Doctors say “can’t come from your Mesh”, I read of yet again another Hernia Mesh Victim that has been lied to by their Doctor and ignored by their State Government. Here again is another perfect example of what Polypropylene Mesh does to some one who was once happy, healthy and gainfully employed. I wish I could help in some way. I don’t have money because my Mesh has ruined my life as well. I lived in a converted garage that I insulated as well as I could. I hauled water to cook, drink and flush the toilet all the while trying figure out what the hell I was going to do. I went through 3 surgeries while living in that garage. Ever tried to haul 5 gallon buckets of water after abdominal surgery? I was able to get Food Stamps and eventually my V.A. Disability payments started coming in( $130 p/mo).

    My Doctor who removed the Prolene Mesh replaced that piece of crap with a Kugel Small Oval w/Ring. So now I have a “pie plate” in my gut. When I caught up to him one day while trying to get medical records, I asked him why he replaced one mesh with another and his reply was “Well, your doing better than you were when you came in to the ER” and then ducked out to a Restricted area. THe Original Doctor who put in the Prolene would not return my calls after I reported problems. He soon left town and is now practicing in Albuquerque. The Doctor who took out the Prolene and installed the Kugel, lost his surgical privileges here because of”infections” and “Implant Failure”. The failures were for Lap-Bands and Mesh was never mentioned.

    I have made this post about myself it seems but I wanted to show that Doug is not alone in his situation. Everyone from the Doctors to the State to the FDA is ignoring us and especially if you are a man with a “Hernia”. We are supposed to “buck up” and are told that the pain can’t be that bad and “be a man about this”. Many of us that had Prolene removed were prone to lose a testicle on whichever side the Mesh was on because of the way this mesh was installed for an Inguinal Hernia. Friends, Family and co-workers after time goes by start to question whether or not you are telling the truth about your Mesh pain. So and So had Hernia surgery and HE did not have the pain you “say” you have is a normal response. That response is soon followed by relationship disintegration as you cannot have sex, do physical activities or make money as you once did. We are left alone with the misery of an implant that was supposed to help us not disable us.

    The main reason that this continues, at least in my opinion, is that the FDA has done nothing about the 100’s of 1000’s of Mesh complaints and continues to ignore it’s own data base. The FDA will NOT make changes to any law that may hinder the Mesh Manufacturers from continuing the marketing and manufacturing PP Mesh in all it’s forms. I also blame the Medical Community for remaining silent about the problems with Mesh, with lying on documents and medical records about mesh problems and also not reporting with a full and concise report to the FDA and Manufacturer when a mesh has to be removed. This is an evil symbiotic relationship that the FDA has with the Manufacturers with the Doctors as enablers. Why tip the boat when your Mercedes Benz payment is due?

    I am so Very Sorry Doug. I have nothing other than kind words of encouragement. I am going on my 8th year now of Mesh problems and it has not gotten better. I hope that one day a Trust Fund will be set up as they do for the Mesothelioma patients. But until then we Mesh Victims are alone in this fight. I wish you peace. I wish you comfort. I wish you a modicum of happiness that is so difficult to have when we are in the situation we are with Mesh. God Bless you Doug.

  14. justme says:

    Doug, there is a facebook-based support group called Fighters & Survivors of all Transvaginal Mesh and Hernia Mesh/Plugs you might want to join. It’s a closed group that is made up of men and women who have been injured by all types of mesh. There are a lot of good people in the group, and they will help you and support you. So sorry you are going through this hell. Mesh pain is horrific and excruciating, whether it is pelvic mesh like mine, or hernia mesh like yours. Makes no difference. Don’t give up. You know your body, you know you are right, and you deserve help.

    ____________________________________________

    JanetB, I don’t have Facebook but want to join. I need support too. And my family. We are just like Doug. We are living in bad conditions, and we are split up, and I miss my family being together. Lost my job, my home, my doctors, no money, no food, in severe pain and have lost hope. I am in bad shape too. I look like him but am female. I am unrecognizable to family and others now.

    • Jan says:

      Justine, it is a Facebook based support group, so I don’t think there’s any way to join unless you are on Facebook. It is run solely by people injured by mesh – not by manufacturers. Also, there’s an open Facebook group called Mesh Problems – I know it is run by survivors because I am one of the founders of the group. Please consider creating a FB account, if only to get the support of these groups.

  15. justme says:

    How do we know that Facebook is real and not one of the mesh companies trying to get info? Doctors are selling out to the companies left and right. They are ruining patients lives to discredit them in court.

  16. Jessica Giardino says:

    Doug,

    Have you looked into having Dr. Kevin Petersen of Las Vegas Nevada take your mesh out? He has many videos on YouTube.com explaining his hernia repair surgery without mesh. My friend Cindy Vandiver is suffering like you and consulted with him. She has 2 meshes that need removing . He takes no insurance. She is bankrupt. It will cost $9000 to remove both meshes. She set up on gofundme.com to ask for donations to cover the cost of surgery. Maybe you could go on gofundme.com too?

    I am so sorry for you all and pray you get the help you need to get your health back.

    Jane Akre,

    Do you have any ideas as to how my friend can raise money for herself to get her lifesaving surgery?

    Thank you for making people aware of this problem.

    I am thinking of driving Cindy to the local news TV station to tell her story on air! Do you think it would be accepted as news worthy to broadcast? Or should I try albany times Union newspaper here in Albany,NY?

    • Jessica Giardino says:

      Her story on gofundme.com/gcuggs

      Her name is Cindy Vandiver and she is seriously ill and in constant unrelenting pain. Please give us any advice you think appropriate to find ways to raise awareness and money so she can get her surgery. She has suffered for 12 years and is abandoned by her doctors.

      Thank you for listening.

    • Jane Akre says:

      Jessica- life saving surgery of what kind? Is it mesh related? Please reply, Thank you! janeakre@meshnewsdesk.com

      • Jessica Giardino says:

        Dear Jane,

        Yes it is mesh related. See Cindy Vandivers story on gofundme.com/gcuggs

        She has TWO incisional hernia meshes in her which are migrating into her bowel. Constant unrelenting pain for many years. Doctors don’t want to touch it except for Dr. Kevin Petersen in Nevada. She is bankrupt and ready to give up. I wish someone would run her story on the local Albany NY news. I may just give TV station a call.

        Jessica

  17. Jessica Giardino says:

    Doug,

    Keep trying to get copies of your medical records. If one stops seeing the doctor regularly then the hospital has the right to destroy all records after 7 years. Find out exactly what type of mesh it was and serial number etc to prepare for your legal case. That’s what a lawyer told Cindy. Lawyers can get the records for you. Sometimes lawyers will do it pro bono. I am so sorry what you are going through. I hope you can find a surgeon to remove your mesh. I wish you the best. On one of the support groups there listed a surgeon in Maine I think…

  18. denise schrader says:

    I have been calling so many lawyers about this same situation…. I know exactly what Doug has gone through… I had a doctor tell me that I had 4 small (1cm) hernias in my chest from a Aortic Bi-pass that I had in 2002, that surgery left me just like I was born, I HAD A BELLY BUTTON… I was not informed about the mesh, just that he was going to use it. I had my surgery Oct 25, 2010, Nov 3, 2010 I was in the ER asking for something to get done.. the bulb that they put in looked like ”dirty pond water with fish scales” and no one even took any of it to get it tested…. you could feel the heat from 5” away from my chest… even though the ER doctor told me that he had just passed my doctor he didn’t stop for me… I told them I had an appointment on the 4th of Nov, they gave me an iv and sent me on my way… I went in and seen the doctor screaming in pain, he left me out in the waiting room until he seen everyone else, then told me he would have to put me in the hospital… now most doctors would have their nurses fill out all the paperwork, NOT THIS ONE, I had to go admit myself and go thru all the procedures’…

    I woke up November 5, 2010 with a football sized hole in my chest, 4”x3.5”x7”, along with a sponge and vac unit… no chest muscles were there because of the infection.. I was given the antibiotic AVOX which made me throw up constantly, yeah no muscles in my chest and throwing up all the time…. this wasn’t the worst of it, every other day the nurses would have to change this sponge, OMG it felt like them pulling my gut out because of the sponge sticking to my inner intestine muscles, smelled like a dead deer on side of road in sun all day….I took pictures when I could, they had me on morphine drip because of the pain and that didn’t help when they changed the sponge, I can still feel it today…. they left the muscles grow back together by themselves and it was so bad I couldn’t see my feet, I wan never this big even when I had my children back in ’89-’91…. I have known a plastic surgeon for along time now and he took me in and did the plastic surgery on me, I ended up with NO BELLYBUTTON, but 3 holes. I thought the pain would eventually go away but it never has.. the insurance (United (Medicaid))company has denied to give me a cat scan to see what is going on in there, they did all the tests on gallblatter, kidneys, liver, etc… all is doing good so my family doctor made an appointment with a surgeon, the PARTNER OF THE IDIOT THAT DID THIS,

  19. denise schrader says:

    I have been calling so many lawyers about this same situation…. I know exactly what Doug has gone through… I had a doctor tell me that I had 4 small (1cm) hernias in my chest from a Aortic Bi-pass that I had in 2002, that surgery left me just like I was born, I HAD A BELLY BUTTON… I was not informed about the mesh, just that he was going to use it. I had my surgery Oct 25, 2010, Nov 3, 2010 I was in the ER asking for something to get done.. the bulb that they put in looked like ”dirty pond water with fish scales” and no one even took any of it to get it tested…. you could feel the heat from 5” away from my chest… even though the ER doctor told me that he had just passed my doctor he didn’t stop for me… I told them I had an appointment on the 4th of Nov, they gave me an iv and sent me on my way… I went in and seen the doctor screaming in pain, he left me out in the waiting room until he seen everyone else, then told me he would have to put me in the hospital… now most doctors would have their nurses fill out all the paperwork, NOT THIS ONE, I had to go admit myself and go thru all the procedures’…

    I woke up November 5, 2010 with a football sized hole in my chest, 4”x3.5”x7”, along with a sponge and vac unit… no chest muscles were there because of the infection.. I was given the antibiotic AVOX which made me throw up constantly, yeah no muscles in my chest and throwing up all the time…. this wasn’t the worst of it, every other day the nurses would have to change this sponge, OMG it felt like them pulling my gut out because of the sponge sticking to my inner intestine muscles, smelled like a dead deer on side of road in sun all day….I took pictures when I could, they had me on morphine drip because of the pain and that didn’t help when they changed the sponge, I can still feel it today…. they left the muscles grow back together by themselves and it was so bad I couldn’t see my feet, I wan never this big even when I had my children back in ’89-’91…. I have known a plastic surgeon for along time now and he took me in and did the plastic surgery on me, I ended up with NO BELLYBUTTON, but 3 holes. I thought the pain would eventually go away but it never has.. the insurance (United (Medicaid))company has denied to give me a cat scan to see what is going on in there, they did all the tests on gallblatter, kidneys, liver, etc… all is doing good so my family doctor made an appointment with a surgeon, the PARTNER OF THE IDIOT THAT DID THIS, and he told me in no certain terms that he is NOT GOING TO TOUCH ME…. what am I supposed to do??? WHY CAN’T WE BE IN LAWSUIT ???? they are not going to do anything for me but let me suffer in pain, the doctors don’t want to give any pain medication so WHAT AM I TO DO????? 🙁

  20. denise schrader says:

    I have been calling so many lawyers about this same situation…. I know exactly what Doug has gone through… I had a doctor tell me that I had 4 small (1cm) hernias in my chest from a Aortic Bi-pass that I had in 2002, that surgery left me just like I was born, I HAD A BELLY BUTTON… I was not informed about the mesh, just that he was going to use it. I had my surgery Oct 25, 2010, Nov 3, 2010 I was in the ER asking for something to get done.. the bulb that they put in looked like ”dirty pond water with fish scales” and no one even took any of it to get it tested…. you could feel the heat from 5” away from my chest… even though the ER doctor told me that he had just passed my doctor he didn’t stop for me… I told them I had an appointment on the 4th of Nov, they gave me an iv and sent me on my way… I went in and seen the doctor screaming in pain, he left me out in the waiting room until he seen everyone else, then told me he would have to put me in the hospital… now most doctors would have their nurses fill out all the paperwork, NOT THIS ONE, I had to go admit myself and go thru all the procedures’…

    I woke up November 5, 2010 with a football sized hole in my chest, 4”x3.5”x7”, along with a sponge and vac unit… no chest muscles were there because of the infection.. I was given the antibiotic AVOX which made me throw up constantly, yeah no muscles in my chest and throwing up all the time…. this wasn’t the worst of it, every other day the nurses would have to change this sponge, OMG it felt like them pulling my gut out because of the sponge sticking to my inner intestine muscles, smelled like a dead deer on side of road in sun all day….I took pictures when I could, they had me on morphine drip because of the pain and that didn’t help when they changed the sponge, I can still feel it today…. they left the muscles grow back together by themselves and it was so bad I couldn’t see my feet, I wan never this big even when I had my children back in ’89-’91…. I have known a plastic surgeon for along time now and he took me in and did the plastic surgery on me, I ended up with NO BELLYBUTTON, but 3 holes, and that ALLODERM… I thought the pain would eventually go away but it never has.. the insurance (United (Medicaid))company has denied to give me a cat scan to see what is going on in there, they did all the tests on gallblatter, kidneys, liver, etc… all is doing good so my family doctor made an appointment with a surgeon, the PARTNER OF THE IDIOT THAT DID THIS, and he told me in no certain terms that he is NOT GOING TO TOUCH ME…. what am I supposed to do??? WHY CAN’T WE BE IN LAWSUIT ???? they are not going to do anything for me but let me suffer in pain, the doctors don’t want to give any pain medication so WHAT AM I TO DO????? 🙁 hospital lab rat is what I feel like

  21. Philip says:

    The case of Doug is really horrible. Atleast doctor who operated should have some responsibility.

  22. ive been going thru the same no one want to believe anything you say.been told it was a ulser/std wear two pairs titey whities/I work couple month then off told goback to work/ then my bosses said no more/so haven’t work for 2 yrs/tested me for cancer/ done some nerve surgreys no help/ive had to meshes in me first one moved then they put one on the out side/slowly got worst/ which I could have my life back too wish u luck and me too

  23. Judy Chapman says:

    Hi Doug, I have a similar situation as yours, however, I was lucky enough to have my displaced mesh removed 9 months (9 months too late) after my right inguinal hernia surgery. Even with the mesh removed I still have continued pain from the scar tissue and whatever other damage the bunched up mesh did to me. Anyway, I read an article by Jane Akre dated Nov. 28, 2012 entitled “Hernia Mesh Complications – Is the FDA Watching? Part II”. In the article it states there is a doctor by the name of Dr. Kevin Petersen at his No Insurance Surgery Center in Las Vegas who does mesh removal surgery and he does not use mesh to do hernia procedures. He claims non-mesh repair has only a recurrence rate of less that 3 percent compared to the 30% recurrence rate my surgeon told me. I hope you are able to get this most needed help. I can totally understand when surgeons won’t listen to anything you are saying about the horrible pain you experiened. Best of luck!

  24. Douglas Bean says:

    Thank you all for writing and for sharing your similar stories, neglect issues & about the pain we live with due to the horrible word I no longer want to speak, MESH.

    I’ve not been able to respond or to answer any of your questions because I’ve not had my own internet connection since last Fall. And now after all this time (30 months) since my surgery that went horribly wrong, some how mysteriously, my mesh has broken down and smaller pieces are moving through me wreaking havoc on my internal organs . Go figure!

    They have attached themselves to my spermadic cord & nerves around it, including the femoral nerve. Then at my lower right abdomen, inside of me & near my right pelvic bone/hip- basically a piece got caught up in my small intestines then another one continued to spread to the opposite side of my abdomen causing severe itching on the top of my skin right under where ever that feeling of a ball of razor blades has been moving slowly & torturously through me each and every day.

    Today at this point, I have had 9 partial intestinal blockages, complete digestive system shutdowns. Now a 3rd and 4th intensely painful spots in my small intestines have formed. Spots that I describe as feeling like hardened lymph nodes in my story. And between the time it took for the 3rd and 4th spot to develop while it was moving through me- it then stopped and formed these lumps in my intestines that I can barely touch because they’re so painful. During this time though, (I’ll say about the last year and a half) that it took these pieces of mesh to move through my small intestines- I was feeling it move through me in ONLY millimeters (very slowly) each & every day. When the 3rd pain spot formed, the 4th was on it’s way unbeknownst to me, working it’s way back over to the right side of my abdomen again but a couple inches higher than the others. It’s a slow torture each and every day.

    Then one morning I woke at 4am screaming in pain because right in the middle of my abdomen, under my belly button & millimeters again right above where the original 3D-Max mesh was placed inside of me- I had a hard raised red bump form over night and it felt like a sharp nail was inside of me, trying to be jammed outward under my belly button & out through my skin. So I was freaking out and I started looking at it closely of course, then touched what felt like a piece of fishing line sticking out of me like a splinter would when it’s trying to work it’s self out… I took some tweezers and started to try & remove it. I ended up pulling out a fiber that was almost an inch long and had a red chunk of tissue clumped on the inside end of it! The red spot took two months to heal. Pulling it out was another one of the most painful feelings I’ve had to deal with though this whole situation. But not much can beat the testicular, groin & abdominal pain… Anyway, when I presented the fiber to my last hope, a surgeon who comes here to Maine for only one week a month; a surgeon who used to do mesh removals… He agreed to see me for an exam under a free care program and I was hopeful that he would finally be the Dr. to tell me this is all caused by the mesh and remove it. Well he took that fiber sample that I pulled out of me, (I had put it in a tiny sterile bottle for him to see it) he looked at it quickly, said that isn’t mesh- but that it looks like a hair follicle. I explained to him what I just wrote above in regards to removing it and how it formed, but nope, it’s not mesh. Then he proceeded to tell me that my hernia surgery went wrong because of my car accident that happened two and a half years earlier, even though that’s all he knew- that I had been in an accident. He didn’t know what my injuries were or that I had none of these symptoms until after the hernia surgery. Nor did he know that I had made some really good progress in my core strengthening at PT- learning how to walk again. First I had to walk with two canes, then I got down to one, again with none of the “groin or pelvic bone or intestinal issues” ever being present before my hernia surgery or after my accident. But he proceeded to keep telling me that my surgery went wrong “due to a terrific wind up that was present with my other injuries” and that it was “inevitable” he says to me that my surgery went wrong. WELL, WHAT IS WRONG THEN?!?!?!?!?… He said I needed an MRI but he wouldn’t do it while I was right there at the hospital. And I had to drive over 3hrs one way just to get to this hospital where he was working as a general surgeon one week a month. Even after I left the office he wouldn’t order it for me, got sick of me calling & asking so he stopped responding to me too- Yay! All while knowing that I had only qualified for free care at that particular hospital for this one exam/visit and an MRI scan… This was right around the time my story was published here and he has become another surgeon who won’t return my calls, or see me again. He misrepresented himself in his exam summary, He says that he talked to me & my family about everything in detail- Only thing was, I was alone, I had no family there or anyone hiding in the room with me…. AND once again, another Dr. writes in my medical records that my condition, in his opinion was ALL due to my auto accident. NOT the MESH. And It’s now a permanent summary in my medical records- another one all full of lies. But he said I also needed to have surgery, but instead to place a box similar to a defibrillator that some folks need to have under their skin on their chests incase their heart stops, only this little box he said would go under my skin in my back next to my spine and would be attached to the nerves in my spinal cord with the purpose of cutting off the pain signals using this box thing to do so. NO WAY!! I told him you will not be putting anything else inside of my body, nor are you messing with the nerves in my spinal column. And my requests for him to order that MRI he said I needed so badly just kept on going ignored- AGAIN… So the wheel, It just keeps turning- going round & round like a hamster in a cage on a tread wheel- and never stopping on the right place to get off… I want this mesh out of me and I am becoming a very angry depressed scared man inside, all because of this BS. I really don’t know how much more I can handle at this point. I will pray for you all. I hope you will do the same for me. Thank you for taking the time to read this and for being patient with me in not being able to respond.

    I have talked with Dr. Petersen in Las Vegas and after he reviewed my medical records & talked with me, he said that I absolutely needed to have a complete mesh removal asap before more damage is done to my internal organs and that he would be willing to perform this surgery for me asap due to the ‘partial’ intestinal blockages- which I am lucky that they have only been partials so far. If someone has a total intestinal blockage it can result in the loss of 10% to 30% of the small intestine. Not good! But he’s the No Insurance surgeon, which I don’t have anyway.. And I have no way to pay him to perform the surgery out of pocket let alone get to Las Vegas from Maine… Lastly I spoke with the last of the three surgeons in the U.S. who perform these complete mesh removals and actually know what they are doing- he accepts insurance. But he’s in another State so even if I got my Maine Care Disability (Medicare) back, my State’s health coverage won’t pay for out of State medical procedures. So then I tried applying for Obama Care for the 2nd time before the deadline this year, only to be denied again. My 1st application last year was mysteriously lost & I was never entered into the system. This time their reason was that I need to make a minimum of $11k a year to qualify for the Affordable Health Care Act – you know… that affordable health insurance program that everyone is supposed to get and can receive subsidies to help those with no way to pay even $5 a month? That empty promise was made to all of us, but no one has done anything about it either.

    So I ask, HOW is it the “Affordable Health Care Act” when you have no income and the rules state that you need to make $11k a year to even qualify for the AFHCA health insurance program and or receive assistance in paying for it through subsidies that are supposed to be available to all who need it? I am losing hope here and even with my story published nationally, my State continues to deny me health care, disability or any give me any type of help. My SSDI request was also denied for the 3rd time last November and now that system says that the Judge has two years to consider “my argument” that I had to file, asking for help and or for the Judge to re-open my case…. I think this is some kind of plan to rid the world of the sick, the weak and the poor… It surely isn’t a health care system that works, not unless you have a hell of a lot of money anyway. And so other than my condition worsening to the point of becoming life threatening, as I wrote above- nothing else has changed and I still can not find ANY help or Advocate. Not even an Attorney or a Law Firm is willing to help “men” with mesh issues. Every single number I’ve seen on t.v. or heard on the radio about mesh lawsuits, I have called… And every single one of them has told me when I call, that unless I have a vagina- they aren’t going to be able to help me. What is it going to take for ALL of this to stop? So many people continue to have mesh placed inside of them every day, not fully knowing or being told what mesh is, what it is really made of and or about the adverse effects the mesh could have on the human body. And the FDA just keeps on letting BARD and the other big pharmaceutical companies get away with pushing their poison mesh on patients by giving some really nice perks to the Surgeons- like some that I have heard of, consist of long ocean cruises fully comped, new cars, beautiful vacations fully comped… I’m getting sick just writing about this now. And I am sorry but I have to stop…. But once again, please let me say thank you to all of you that have shared with us here, to Jane Akre for letting us vent on & on about all of our stories and about all of our pain & suffering, caused by we all know what!! Thank you all as well for trying to give me some hope and new directions to look towards for help. I tried all of it but; Unfortunately none of it is working out for me up here in little ‘ol Maine.

    God Bless you all,

    Douglas Bean

    • Anonymous says:

      Doug, I am truly saddened to hear of your nightmare you are living through. I can say that I personally travelled to another state 2000+ miles to get mine removed after years of pain. While I am not totally pain free, it was worth saving my life before it disintegrated further. And it has been a slow recovery process of 2 steps forward, 1 step back. But if you haven’t already seen Dr Petersen, or Dr Ramshaw, they are both experienced in this depending on your finances and if you have obtained insurance hopefully. I went with the latter for insurance coverage but had considered both. My old doctor that installed it was not experienced enough to remove it, which is sadly the case with most doctors installing these ticking time bombs. I am regaining my life back a little but I can say its not the same yet.

      My thoughts and prayers are with you.

  25. Heidi cyr says:

    All I can say today is OMG,! I have been suffering and didn’t know I wasn’t alone. I am in Aroostook county and have to be my. Own doc. Been complaining since mesh implanted November 2009 and nobody had answer. Tomorrow I travel to a Bangor doc. I expect him to also be ignorant in this rega d. From there I will carry on to the next largest city if I have to. This is freakin unreal. I’m going to look into this support group mentioned on Facebook. I am wondering if you can give names and hospital names pleassssssssssse!

  26. carlos says:

    HI GUYS ….

    Dr.Petersen is doing a survey about mesh pain …

    if you know of someone who is suffering pain mesh please share this link http://www.noinsurancesurgery.com/…/hernia-mesh-pain-survey…

    Dr Petersen has been invited to 1st Conference on Abdominal Wall Hernia Surgery conference will take place in milan italia.Dr Petersen has been invited for his stance against the use of mesh and its success in removing mesh

    • Jane Akre says:

      Dr. Bendavid will be there also from the Shouldice Clinic. Increasingly there are those doctors becoming aware and willing to speak out!

  27. jbrokenbody says:

    I feel u exactly. I’m one too. So how’s life right now for u and family. I will pray for u and all.

  28. Angie says:

    I don’t think anyone cares about the damage done to the ones who are suffering from what the hernia mesh has done to them! I have watched that horrible poison almost kill my husband until he finally got it out of him! Yet he is still left disabled due to the mesh even having it removed he lost 3 nerves and doesn’t have full use of his left leg and is still in constant pain! He can’t find a lawyer who will take his case and he keeps getting denied his disability! I don’t understand how these mesh companies expect a person to pay there bills and learn to live there life with all the damage and they can get away with it! If anyone can give me advice to help us I would be so grateful!

  29. James C says:

    Mr. Bean, please look on the web for a Doctor by the name Kevin C. Petersen, Las Vegas, NV. noinsurancesurgery.com, He can help you get your life back…….. God bless, JC

  30. Ron Vilarino says:

    I could go on and on about my suffering from a mesh screen implant. I know this pain well. However, I want to tell others how I have survived it without removal, because you know, the doctors don’t want to touch it because of the liability. Mesh was placed in my abdomen because of a rupture. It could have been sewn (a ¼ inch tear), but mesh was suggested and I believed the doctor’s judgement was best. That was the first mistake, trusting. So, if you can’t find western medicine doctors to help you, then you have to turn to alternative medicine. That’s when I started the healing process. Unfortunately, most insurance companies don’t cover many alternative medicine practices. The one advantage that I had is that I’ve been eating healthy as a way of life for at least 40 years, no drinking smoking, no coffee, no drugs (legal or illegal), eat whole organic foods, etc. So, my body was probably quicker to respond towards healing, even though it seems like a lifetime of pain and suffering. I had a very good baseline for understanding intuitively about my body as I had kept it pretty unpolluted. At this writing, after 4 years, I’m probably 90% back to normal concerning eliminating the pain. You have to take responsibility for your health and research for solutions to eliminate pain. Nobody else can do this work for you. It’s your life, so you have to take charge. There is no quick, easy fix. Don’t be afraid that you can’t do it and that there is no end to the pain. Trust yourself to find the answers. For those who are spiritually inclined, a little prayer to a higher source helps occasionally too.

    Issues that you are dealing with…

    Pain Relief: Instead of addictive pain killers, I went to an acupuncturist for pain relief. Research acupuncture and learn more about this ancient Chinese medicine. Learn to drink herb teas that reduce pain.

    Inflammation: I ate very non-inflammatory foods to reduce swelling. I stayed away from sugars and starches, as they convert to sugars during the digestive process. I ate alkaline based food, such as steamed green vegetables. I ate fermented food supplements. Salt is inflammatory, stay away from it. Research and learn about diet and what can affect inflammation.

    Immune System: I drank certain herb teas to rebuild my immune system which was attacking the body due to the mesh that it was rejecting. I took certain herbs to cleanse and strengthen my elimination organs (liver, kidneys, gallbladder, etc.) as they were stressed due to the mesh implant and all the drugs dumped into my body from 3 failed operations that were supposed to fix the problem.

    Scar Tissue: This is a big one. Scar tissue is extremely painful and is more than likely the source of most of your pain. I went to an Osteopath, who is also a medical surgeon, but uses their hands on the outside of the body to manipulate the inner body. The Osteopath slowly (and painfully) stretched and disconnected the excessive scar tissue that grew on my mesh screen that had attached itself to my intestinal tract, which had caused bowel obstruction. The scar tissue kept trying to reconnect, but after repeatedly breaking it loose (2 ½ years), my bowels were no longer obstructed. He even showed me how to work on disconnecting my scar tissue by doing my own hand to body work. I have a pretty high tolerance for pain and I did the body work myself several times during the process.

    Tissue Repair: If your bowels are obstructed and it is too painful to eat meat, then you are going to be lacking Vitamin B. Vitamin B is good for rebuilding your surgery tissue injuries and nerve damage. I used to eat homemade beef jerky (very little sugar/salt, no preservatives), which is full of Vitamin B, in order to digest without hurting due to the obstruction. If you can find the liquid herb Chamae Rose, it is very helpful in rebuilding tissue.

    Intestinal Environment: After having an obstructed bowel, you will have damage to your intestinal environment. You need to cleanse the intestinal tract with herbs that flush out unwanted organisms. Then you need to introduce probiotics, good bacteria, into your digestive tract to recreate a balance.

    Bacterial Infection: The mesh screen itself can harbor a bacterial infection, so taking herbs such as olive leaf extract, which is a natural antibiotic, can help to eliminate it.

    Metal Clips: My abdominal wall screen was “tacked” on instead of being sewn between the layers of tissue. Instead of using dissolvable clips, metal clips were used. These clips were poking into other parts of my body causing pain and injury. (Note: My operative report said that the doctor used dissolvable clips. It wasn’t until I had an X-ray taken for a chiropractic adjustment that I discovered metal clips. If I had known this, I wouldn’t have sat in certain positions and would have eliminated certain physical tasks which kept creating internal injuries.).

    These are some of the things that I did for self-healing. If anyone wants to communicate, if my experience can help you, I’m willing to share what I’ve learned. My email: recycleron@sbceo.org. Put “mesh” in the subject line so I know that it isn’t spam…Ron

  31. Sue H says:

    Aloha,
    I am so sorry to hear about your pain. I am in such pain as well since 2010. It is getting worse daily. I have black and blue all over the area and more. Lot’s of Swollen Lymph Nodes. I am waiting looking for someone doing an MDL here in Hawaii? Anyone have any advice.
    Thank you,
    Sue

    • James c says:

      I had mesh removal and repair with no mesh with Dr Kevin Petersrn in Las Vegas and it ended 3 years of pain. Please Check him out at no insurance surgery, he saved my life

  32. Marina says:

    You have a sympathizer in Canada. Although female, I experience many of your systems. Just been told “the Marlex Mesh has to come out”, but, as yet, no one knows where to send me for experience in this type of surgery.

  33. Marina says:

    Doug, as with you, the surgeon who implanted my mesh will not see me nor talk with me. Dr. Peterson tells me my case is complicated and beyond his expertise so he cannot remove it. I have nowhere to turn. Do you have pubic bone and groin pain? My mesh is over the pelvic bones, put there for obturator hernia repair. Caused sciatic injury when implanted; 26 years later it migrated, and no one knows what it is doing inside me, other than causing much, and increasing, pain.

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